Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for December 2014

Update on Cypress Cynthia from sister Patsy on 12/11/2014
"We've had a miracle today. Eileen woke up, was able to use her phone, and started discussing her medical treatment. I don't know what to think except either the chemo is starting to work or she starved her cancer. She has been off narcotics which is not the direction that end of life cancer patients go- they are usually…
A Post from Cypress Cynthia's Sister 12/10/14
I had a smile on my face and tears running down my cheeks when I read this from Eileen's sister today. This morning feeling very sad about my sister and notice a missed call from her on my phone-thought it must be a mistake. I called her husband and Eileen got on the phone and I managed to put my sister Wendy on as well…
Oncotyping rating
Does anyone know what the number is for the oncotyping rating when doctors are looking at possible chemo? I thought my oncologist said it had to be over 30% for chemo to be recommended. I'm just wondering if there is a recommended number I should focus on. I meet with the oncologist tomorrow and I'm already building up…
Travel advice
Looking for advice. We are getting ready to travel by plane. I am currently stage 4 and going thru chemo. I do have lymphedema and so will be wearing a sleeve. Any other advice to help make the trip smooth? Thanks! ~Mtmom
Thank you, Sailing wind, for my lovely handmade ornaments!
My ornaments arrived yesterday -- 2 lovely fabric ornaments made by Sailing wind! How did you know how much I love handmade things? They look beautiful on my tree -- I've posted a picture on my Expressions page, so everyone can admire your handiwork. Thank you so much for the thoughtful gift! Traci
Update from Cypress Cynthia's Sister 12/9/14
"I was thinking about Eileen today and know how many of you have sent your thoughts and prayers over the last 18 months. It really did have a positive impact on her and I am sad that she can no longer read your comments. She is quiet now, not speaking much and mostly sleeping. Danny remains at her side and has been an…
Happy Birthday wishes to Sue / sbmly53 // December 9th
Happy Birthday wishes - Miss Sue - Do enjoy your very special day. Vicki Sam
Missrenee
has a birthday today! Love and hugs Sue
Grade and KI67 ratings
I'm curious....how much value do oncologists place on the grade and KI67 score when deciding treatmwnt? My grade was considered 3+ and my Ki67 was 38% and "unfavorable." I was told as soon as the stage is known (mine is 2A) that that is what doctors really rely on. What does the "unfavorable" mean on the Ki67 rating? I…
a bit off topic
long time friend-wife had some issues a month ago. They were told a stoke-after she was released she needed a break after all the testing and went to visit a friend out of state. When she came back she found out she has stage 4 brain cancer. she thought she was coming home from a mini get away from it all to find out this…
Starting chemo tomorrow
Finally starting my chemo tomorrow. Discovered my lump 6 weeks ago, it's ER+,PR+, & Her2+. And I have one bone met on my left sacrum. I'm not looking forward to it, but anxious to start fighting this. Had a Stage I BC 20 years ago and did AC. Didn't think I'd ever be doing this again. This time around, I'm getting…
restrictions with breast expander
I had my bi lateral mastectomy with expanders 6 weeks ago. Finally can sleep i my bed! Has anyone taken a bath yet instead of a shower? also wondering if the lifting over 10 lbs. lasts the whole time the expanders are in? have slowly been doing more around the house Doc said no vacuming yet wwondering abut laundry? can…
Update
Finally got my results from the test to see the chances of my tumor recurring. I was in the low risk so thank heavens no chem or radiation! I can continue with my reconstruction. I have to take the drug Femara for 5 years. generic name is letrozole. Are there any precautions with that drug? It will be a Merry Christmas for…
Christmas *Joke* ....
Ten worst gifts to buy a woman 1. Never give a woman any kind of household appliance or something that is going to make "housework" easier. For instance, a blender, a toaster, a new vacuum, one of those mops they advertise on tv that does everything but suck the life out of you, anything in a informercial. One allowed…
IDC and High-grade/extensive DCIS, both left breast, ER+, PR+, HER2-, Stage 2A, Grade 3+, Waiting on
I was diagnosed in October with invasive ductal carcinoma and high-grade extensive DCIS, Grade 3+, Stage 2A, "unfavorable" Ki67. I chose a lumpectomy and had the surgery on 11/14/14. Originally, the treatment plan was going to be radiation (30 rounds) and Tamoxifen (Hormone therapy) for the first five years, then a…
Cypress Cynthia Updated 12/5/14 (New update 12/6/14)
Following is what Eileen's daughter, Katherine, posted yesterday. Let's continue to keep them in our thoughts and prayers. Mom had a rough night, but a pretty good day. She ate a little egg and some popsicle. She even put in jeans and walked to the end of the driveway twice. First time I have seen her in real clothes in at…
Breast forms and garment recommendation while healing fr bilateral mastectomy
I will be having a bilateral mastectomy around the middle of January. I am doing chemo before surgery and will be finished December 15. I will be having radiation on one side only following surgery. I have decided not to have immediate reconstruction. I was just curious what some of you in this situation might have done…
Cypress Cynthia
Has anyone heard anything new about her? I am hoping that she is doing well again. I believe her chemo was to be in the past couple of days if she was able to get it. Hoping for only the best! Clementine
Ornament Exchange
Thank you to GreenEyedGirl for a packagr of Christmas cheer and ornament. So much thought went into thus exchange. I really enjoy thus tradition and am so happy that I was able to participate again. Thank you Melanie. Also thank you to Victoria for taking the time out of your busy life to keep thus tradition. In spite of…
57-year breast cancer survivor story from ACS
If you haven't seen this story on the American Cancer Society's website of a healthy 90-year-old breast cancer survivor who was diagnosed 57 years ago, check it out -- this is the kind of story all of us here need to hear:…
alpha Christmas list of words
A-Amazing lights Next person B-________
Chemo choices, personal experience wanted!
I saw the oncologist today and received the final pathology report, they did find a few (<10) cancerous cells in one of my lymph nodes, which is still technically considered node negative due to such a small number and the type of cells. This doesn't really change anything since I already knew I had to do chemo since my…
Bone pain
I'm new to this forum and new to bone mets. Anyone have any suggestions for bone pain (mainly in sacrum area). It's not bad pain, just an achyness that gets worse as the day goes on. Haven't started chemo yet, so hoping that will help shrink the area ( the met is about 1.4 cm), but don't know if I can expect that or not.
Survivorship Clinic
My infusion center sponsors a Survivorship Clinic, which I attended today. I was surprised when they'd allotted 3 hours for the clinic, but it really did last that long. They had about 4 of us each in our own private exam room, and they had a rotation schedule all written up so that by the end we had all seen who we…

Breast Cancer

Discussion List