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My oncologist called last night and now I am a little freaked out. . . . Tamoxifen could be the prob
Yesterday I posted about my eventful weekend that landed me in the ER on Saturday. Went in with wildly racing heart and high blood pressure, head throbbing, feeling light headed and in general just feeling plain lousy. I had informed my oncologist's office yesterday morning of the events so that she would be aware. Last…
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Relaxing peaceful music from two ancient tradtions of Harp
Just to add a little distraction, I wanted to share a very beautiful piece of music by the 'Queen of Harp' Catrin Finch (Wales) and a world reknowned Kora (African harp/lute) player Seickou Keita (Senegal/Gambia). The collaboration is just stunning, beautiful, peaceful and delightful as the two play as one. I just can't…
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Had 2nd 2nd opinon today.
I liked him. He was so prepared. He had inches of charts and actually read thru it! That alone was impressive. He also was extremely respectful of my onco of 12 years, also impressive. His appriach is different. First off, I am not a candidate for trials. 1. There are so few adv cancer bc trials that I even fit into, none…
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Low White Cell Count - No Chemo Today
Cell count below 1000,so no chemo for me today. I've got numbness in the tips of my fingers,toes & tounge from last weeks chemo. Blood when I biow my nose,but no real bleeding yet. Hot flashes and lots of tiredness. No nausea yet, but eating all the time. So off this week and on half dose the next two mondays. I'm still…
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New situation developed over the weekend
Haven't posted in awhile, been busy with work and family, but all of that came to a grinding halt this weekend. Last week I had EXTREME fatigue (the kind where my coat actually felt too heavy on my shoulders, couldn't walk in a store for more and 30 minutes without being exhausted). Then on Thursday evening my heart…
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SHOUT OUT to ManWithaMission: How are you doing with chemo, Robert?
Just thinking about you, Robert, and wondering how you're doing? Looks like it's been 2 weeks since you and your new port started chemo? Sending warm, positive thoughts your way, Traci
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Partial permanent hair loss??
I went through aggressive chemo and radiation 11 yrs. ago and lost every bit of hair on my body. Eventually the hair on my head grew back and was very curly and thick...which I loved, having fine straight hair all of my life. But over time, it was back to fine...and one side of my head is now wavy and unruly and the side…
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My ornament & goodies came
The joy of sharing came. Every day I would look to see which one of my Pink Sisters would give me ornament. Our dearest Jean sent me a special Angel from Maryland. And then the goodies, yummy. My husband a true Floridian was so happy to see the Old Bay. It what use to cook his fish. Thanks for making the 2013 exchange a…
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Dawne update, sorry I was so slow
Sorry I have not been better at updating lately. Dawne is fighting the fight with all she has in her. She has not had to be in the hospital again so that is a blessing. She did find out the cancer has spread to her aorta, not sure if I had posted that or not. I have been able to go see her a few times in the last few…
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Why do people who say 'I will pray for you' annoy me so much?
I just can't cope with this innocuous crap! They all assume that I believe in this so called GOD? Did GOD stop me from getting this death sentance? NO! So please do NOT preach to me, me and God are just fine, it is his fan club that I have a problem with... :)
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I received my ornament
Thanks so much Jennytwist for my wonderful package. Not only did it have a beautiful handpainted ornament, but also candy, lip balm,and a holiday reed diffuser. You are very thoughtful and kind! Hope your holidays are happy and healthy. Gail (calvertcrafts)
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going on vacation
Some of you may remember that I had a thoractomy and that plum size mass removed from my lung past summer. I am still having pain problems from it. The surgeon says that the rib they cut and moving the cartilage, etc, is causing the rib to move around and poke me. He said it would be 6 months to a year before I am healed,…
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December 12th - belated Birthday greetings to Josie21 - Ginny
Ginny - Hoping you enjoyed your very special day .. Vicki Sam
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Happy Belated Birthday greetings to Sue Relays - December 13th
Hoping you had the most wonderful Birthday ever! Vicki Sam
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I have a question about pain after an implant
I had my implant surgery August of last year and for the past couple of weeks I have been getting a dull achy pain in my implanted breast. The pain is comes and goes and is not constant. Has anyone had this problem and should I call my plastic surgeon or my oncologist about this? Thanks in advance for your help. Hugs,…
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My Clinical oncologist SCARES ME!
My first female onco Scares me like hell! She is like Joyce Grenfell on amphetamines! She swans into the room (late) with weird clothes, full make-up and a huge smile. She adresses me like I am a primary school pupil, her eyes light up! Scared! Jxx
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Pink Bus-I was going to book it for this week but
I was supposed to have an appt with Sugeon this week but they postponed it...so in now in two weeks I have blood work-Oncologist & Mammo followed by surgeon visit. Just a follow up from last NOV surgery what ended up to be scar tissue from first BREAST surgery-Happy to say Denise
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After treatments
Ladies I am having issues three years down the line and want to make sure you all are aware of these. If any one gets jaw ache or sensitive teeth please get it checked out. I have gone down the line of dentists (we have very good ones) but only now diagnosed with jaw bone disease. This was probably caused if not worsened…
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Solving the Treatment Resistance Riddle
I really enjoyed this article in this month's Cure magazine. It was especially relevant for someone with Stage 4 and I thought it explained well why one treatment works for awhile and then stops working. http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/2208
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UPDATE: INVASIVE LOBULAR CANCER & 'DID YOU OPT OUT OF RADIATION?'
To everyone who was so kind to respond to me previous posts, I thought I would update all of you. I saw my surgeon yesterday for a post op checkup. Surgery was last week, and the pathology came back with clear borders and no lymph node involvement! I can't tell you how happy we are. Now, they will do the oncatype testing…
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another Arimidex vs. Tamoxifen question...
When I had chemo in 2009 I went into menopause on the way home from my first Taxol cocktail. After chemo, I took tamoxifen for a year - waiting the one year since your last period time. I started on Arimidex and took it for almost a year until my Dr switched me to the other A - Aromasin. During the time I was on the A's I…
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Got my ornaments + today!!!!
Thanks so very much 'calvertcrafts' - my pink sisiter sent me several lovely handmade ornaments - chocolate - warm slippers - a notepad & pen holder ... my son just had his first child, a son and he came early (2 weeks!) - we had been to his home in Denver to help out so I may have been late in getting my wonderful gifts -…
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I made a decision
After almost 7 months of only palliative treatment, I got up Monday and made an appointment for a second opinion at the Cancer Center here. I was able to get an appointment with the doctor who has been heading up trials with the immune system. I am not sure anything will come of it. I realize that I have had massive doses…
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SIROD, how are you doing?
So cold here-I can't imagine Maine! Even though highs are in 50's, it is humid and cloudy and feels awful. Supposed to clear up this afternoon. Hope you are snuggled in near a fire and doing better! Hugs and prayers coming your way.
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Recovering from "ammonia"
Over Thanksgiving, I overdid, was very lax about hugging and holding hands, and am paying for it now. Developed a little virus: mild sore throat and runny nose. After a week, I began coughing and wanting to sleep all of the time and headed to my PCP. He did an xray and came back shaking his head. He said he thought some of…
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Recovering from exchange surgery
I had surgery #3 three days ago to continue reconstruction. Three months ago I had "BMX with direct to implants" which is a one and done operation. Unfortunately I developed an infection in the hospital that caused surgery #2 fourtenn days after the first one. The plastic surgeon had to remove necrotic (dead) parts of…
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Gorgeous Slovenian Lace!
I finally went to the mail box a little while ago (it's been so brutally cold, days in the minus or single digits F ; nights down to -19F for the last week+ and our mail goes in one of those big groups of locked boxes down the road, I've only done what I had to do outside and not checked the mail). To my great surprise,…
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Shout out to Vicki Sam
Thank you so much for keeping up the ornament exchange tradition.Claudia would be so happy that we are still doing this.Thanks again. Love and Prayers
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*****LAST CALL -- ORNAMENT EXCHANGE*** mariam_11_09 you are on my List!!!
Hello Lovely Ladies, and Robert! I thought I would issue a Last Call for those that missed my original email regarding our traditional ornament exchange - :) I will keep this post opened until Thursday ... Please let me know. Thank you! Vicki Sam
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ornament came today
I received the most adorable ornament today.Who ever sent it thank you so very much.I absolutely love it.I couldn't get it on my tree fast enough.Its my fourth year doing this.I will always cherish each oneThank you and Merry Christmas.