Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for January 2013

Lump on Tongue more to story
I needed to see my dentist last Friday. I had pain and needed to get checked out. She found an abscessed tooth and also noticed a lump on my tongue. She refers me to an oral surgeon. SO I saw the surgeon on Wednesday and he had to pull the tooth. The abscess was protruding into my sinus cavity. He then cut out the red…
...and we haven't even left yet....sigh...
Less than 30 days until our 'Holy Land cruise', and we get word: ...for "Political reasons" we are not stopping in Ashdod...2 days in port in Haifa, instead....could it be because Netanyahu is stirring things up? *smile* Next, they will say we can't go to Israel at all...and then, my NEXT call will be "Hello, travel…
Had mastectomy 0of left breast Nov. 5th. have been drained every week. Last one very thickand bloody
I have been drained every week after my mastectomy on Nov. 5th 2012. This last time it was very bloody and thick he said it may be coming back because Angiosarcoma cancer always comes back because its in the blood cells. ands he found a round area that he took off to have tested that looked suspicious. The results aren't…
ARE SOME WOMEN LUCKY ENOUGH TO NOT HAVE TO TAKE ANYTHING AFTER A MASTECTOMY
CANCER TYPE INVASIVE DUCTAL CARCINOMA FIRST STAGE WAS NOT IN LUMPH NODES MARGINS NEGATIVE FOR INVASIVE CARCINOMA DOCTOR SAID AT FIRST I WOULD NOT HAVE TO TAKE ANYTHING BUT SENT ME A ONCOLIGIST AND SHE SAID I HAD A 80% CHANGE OF CANCER NOT COMING BACK IF I DID NOTHING ELSE BUT IF I TOOK ANASTROZOLE IT WOULD UP IT TO 87%…
Onco Mapping - Genome Mapping
Has anyone had the Onco/ Genome Mapping process done? Wondering if results identified specific drugs targetting tumors. A Cambridge, MA company named Foundation One has just received millions of dollars in funding for this from Bill Gates and others. I have stage 4 triple neg. breast cancer...and am waiting for results…
3 word 'story'
Haven't had any 'stories' or games in a while (at least that I've seen so thought I'd start a new one. The object is to write 3 words following the last post to tell a 'story' - so here goes. "Poiar bears are -"
I laughed, until I cried ... Joke for Thursday, January 24th
.. Bye the way, this is not a personal story -- just a humorous joke. HAVE YOU EVER BEEN GUILTY OF LOOKING AT OTHERS YOUR OWN AGE AND THINKING, SURELY I CAN'T LOOK THAT OLD. WELL . . . YOU'LL LOVE THIS ONE. MY NAME IS ALICE , AND I WAS SITTING IN THE WAITING ROOM FOR MY FIRST APPOINTMENT WITH A NEW DENTIST. I NOTICED HIS…
MAKING LIFESTYLE CHANGES TO IMPROVE WELL-BEING AND REDUCE RECURRENCE
FYI: Tomorrow, Thursday, Jan 24, 12pm Central Time: MAKING LIFESTYLE CHANGES TO IMPROVE WELL-BEING AND REDUCE RECURRENCE Join CURE magazine in a 1 hr discussion on how lifestyle and behavior changes could improve quality of life for cancer patients and survivors. Details: http://www.facebook.comevents471082739617173/…
Port/Central line/ Pic line & questions
I am so confused I am told that I will have to have a Port or Central line or a Pic line but I don't know anything about them. Has anyone with TNBC with mets, stage 4 had to undergo this treatment? If so which did you chose and why. I am in a study and at first they did not allow a line of any kind but now they have…
Las Cruces, New Mexico resources?
My baby sister was diagnosed with breast cancer a few months ago and underwent a mastectomy. After surgery, something must have happened but she came out unable to open an eye! Had nothing wrong before the breast surgery. A tumor was found in the pituitary and removed by craniotomy. Eye is still half closed. I have a…
Still in pain 1 year after bi-lateral mastectomy & reconstruction
I'm new here and I'm hoping someone can shed some light on this for me. I had a bi-lateral mastectomy in Feb. of 2012 followed by reconstruction with saline implants. All went well but the pain I continue to have is getting to be too much. Constant tightness and heaviness in my chest and difficulty sleeping in bed for…
CSN update
First of all, I apologize to everyone for not having communicated sooner. You have been more than patient under the circumstances. At this point, all of the content that was missing following the upgrade has been restored with the exception of private messages. There has been an ongoing investigation for several weeks that…
Brain fog, aches and pains...
Hi Friends.. Eight years out and still struggling. So I googled some of my symptoms and was surprised to come across so many survivors that are suffering with similar stuggles. I am on a pain killer for bone pain and sleeping pills... I've been blaming them for the memory loss but now I am not sure.. I'm trying to find…
O.T. Sat will be 34 yrs
Jan 26 will be 34 yrs since my father *died..(I was 19 yrs old) I thought I was an ADULT and could handle the world and did. NOW i looke at my youngest who will be 21 day prior and even at that age how hard it would be for her to lose her DAD. *car accident-due to ICE Thanks for listening..or reading..lol Denise
Oncologist
Do you see your oncologist each time you have a chemo treatment? I'm having my third treatment tomorrow and it will be the first time I've see him since my original diagnosis in November. When I went for my second one, he was on vacation. I just wondered how often you see them. Also should I expect the same side effects…
For those of you with kids/Camp Kessem
Please check out this website if you have kids between 6-16. Camp Kessem is a week long sleep away camp for children with a parent who has/had any kind of cancer. My daughter went last year. She had a wonderful time, was too exhausted to really talk on the day she got home. Once she was more rested she talked about camp…
some what off TOPIC-hysterectomy
Due to tamoxifen I had to have hysterctomy about 18mths ago (I will call to confirm with my gyno) but curious if others still go for pap, annual exams etc? MY breast surgeron (last month srugery on same side as cancer 4 yrs ago) asked me if i still have a cervix. I had not clue..i just know I told gyno to take everything…
A Bit of Happy News...
Progress for breast cancer seems to come so slowly-too slowly for so many lovely women we have lost here . But there really is room for some hope: Cancer Death Rates Dropping Significantly http://www.medicalnewstoday.com/articles/255192.php
Loss of flexibility and strength after implants
I was very flexible in my arm and shoulder before my mastectomy with immediate reconstruction (arches, back bends, bridges). I have a tissue expander now and was wondering if anyone could speak to the issue of flexibility and upper body strength after the implant is in place.
update on fatiuge
I had started drinking gator aid for the electrolytes and that helped so I drink it first thing ( well after my coffee ) in the morning and it has helped me to feel better during that day. I also drink alot of water. ( alot ) He also told me to start taking ginseng I plan on getting it the next time I get out hopefully…
taxol
My wife is currently on taxol and after this Thursday it will be 14 treatments, 3 weeks on one week off. She was on Xeloda from Fed 2012 to Oct and that's wheen they started the taxol. She has mBC in the liver. Has any one ever had this many treatments with out a break? It's really taking it's toll on her. Db
is my mom gonna die soon?
i feel like my mom may die soon because yesterday she told me she felt like shes gonna die and also a week before that my dad said something like that. but no ones really telling me if shes gonna die soon i guess because im just a teenager but she has stage 4 breast cancer i think and can someone tell me the signs of…
Has any of your all oncologist said anything about Metformin as treatment for bc
I have heard that it may make a difference .Just wondering if anyone else had heard anything about it.
Neuropathy; What have you done
Hi all; I am very curious if there are any out there who suffer or have suffered from neuropathy in your hands and if you were successful to ANY extent in dealing with it. Medications, excercise, diet, whatever worked, if even just a little. I REALLY want to get the feeling back in my left hand so I can play guitar again.…
newer update
I am still fighting this darn ear infection. The lump on my neck is getting bigger and more sore. The oncologist says it may be from the ear infection. The ENT says it may be from the cancer. In the mean time I feel like I am losing time. The effects of the brain radiation are slowly wearing off. I only had 1 abraxane…
Cleaning For a Reason--Free cleaning service for people with breast cancer
There is a wonderful organization called Cleaning for a Reason that provides free cleaning services for people undergoing treatment for breast cancer. To access this service visit their website; http://www.cleaningforareason.org/ They will let you know if the service is available in your area and you will need to have your…
Afinitor (Everolimus)
Hello everyone, From Stage II in 2001 to Stage IV in 2012. Had brain mets in August and had Gamma Knife radiation, will be happy to help anyone with questions about it. Now, about to start Afinitor because Arimidex is no longer working and the node in my right lung is slowly growing. I'm running out of body parts to have…
Having a hard time with weakness fatigue. Any one else?
I had a recurrence this past summer Met to lungs and spine. I was put back on chemo Herceptin, Taxotere, Carboplatin. I started reacting to the carbo so was switched to Cisplatin. After a couple of times started reacting to that too. Then put on Perjeta. It has been used in Europe for awhile I am told. Has had very good…
An interesting article on mets, research, and funding.
http://www.healthpolicysolutions.org/2011/06/01/opinion-30-percent-for-30-percent/ I hope you like it. Hugs, Linda
Weight watchers
Hi I joined weight watchers Thursday I thought I would try it to get some weight off i am on the points tracking has anyone tried weight watchers Did it work for you and any tips or advise? Thank you in advance teresa

Breast Cancer

Discussion List