-
gliomatosis cerebri -- what can we expect
Hello, My wife has gliomatosis cerebri and about two years ago the part that could be removed was. The rest was intertwined in her brain and continues to grow. There does not seem to be a big group of us and if asked I can answer questions on what we experienced so far. What I would like is to connect with someone who is…
-
Need to Flag dorisEknight
spam..........spam..........spam
-
Glioblastoma grade IV
Hi all had the tumor removed at the end of Sept-just started the Tamodar and radiation this week. I've been back to work for almost two weeks. Have some mood issues with the steroid and maybe the Tamodar. Around three I really get tired. Any suggestion? for managing the workday?
-
Father in Ireland with GBM
Hello There: My Dad (who lives in Ireland) had surgery for GBM on Sept. 24, 2010 & just started a 2-week course of radiotherapy. As he is 66 years old & had complications after surgery, his doctors decided that he was too weak for chemotherapy. After the radiotherapy he'll go to a convalescent home. I just wish there was…
-
Grade 2/3 AA Frontal lobe
I am writing in regards to my sister in law who had recently suffered a seizure and put her in the hospital where they discovered she had a stage 2 AA. A month ago they removed approximately 90% of her tumor. When the pathology report came back it stated that she also had some grade 3 mixed in with the 2. The 10% that was…
-
metastatic melanoma
I have recently been diagnosed w/metastatic melanoma, that started on my right back, moved to left shoulder, right lung and now brain. I will be having brain surgery this week, then radiation and then the chemo will start. can anybody tell me what to expect from the radiation?
-
11 wks pregnant diagnosed with Grade IV Glioblastoma
My sister-in-law, 38 yrs old, who lives in Argentina was diagnosed 6 weeks ago with a Grade IV GBM and at the same time she also found out she was pregnant. She has had surgery where Drs were able to remove 80% of the tumor and from which she has recovered very successfully. As you can imagine, doctors are not too…
-
grade 3 anaplastic astrocytoma.....spread throughout my brain
I was diagnosed july 2010 with grade 3 anaplastic astrocytoma. I had surgery to remove part of my temporal lobe and some white matter. My surgeon also did a resectioning. My tumor is not a well encased blob. It's mostly in my temporal lobe but fingers over to the frontal lobe. And then there are other abnormal cells spread…
-
Acrylic bone flap
Has anyone had bone flap replaced with an acrylic flap? Any complications?
-
anyone have experience with tumor in menginal layer?
My husband was DX with glioblastoma multiforme in his spine 8 mos ago. He's not doing well, is effectively paralized below the waist because he can't bear weight and has bladder bowel issues- though he can still move them some and whatnot. ANYWAY- he's been getting his butt kicked by CPT11 and Avastin, but when he was in…
-
ommaya reservoir -- anyone????
Anyone have an ommaya reservoir in their head for chemo? Just wondering, mine changes sizes sometimes very small other times rather large. Onc says shes not worried about it I just think its odd.
-
tumor stable symptoms worse
My father was diagnosed with grade IV GBM on left side of his brain in May, 2010. Too large for surgery. He has been through standard 40 days of radiation & Temodar. He finished his 2nd round of "maintenance" Temodar (5 day/month treatment) about a week ago. He has not had nausea, but typical fatigue with treatments. MRIs…
-
Pineal Gland Cyst
My daughter was in a car accident a few years ago and since then she has had headaches .But really awful ones in last year .To make a long story short she did have surgery on neck to replace dics's closest to her neck .Headaches are still there ..she has had shots and theraphy to releave pain and headaches ...nothing has…