Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

Archives for February 2012

sleeping at stop signs
I seem to be having a fatigue setback. I just called my internist (should I have called the Oncologist?) I just can't seem to drive anywhere without feeling like I have to take a nap at the stoplight. I can sleep up to 18 hours a day like I did during treatment. My last tx was August 15th. Lyrica has the side affect of…
Talk to me about radiation
I have had 3 sessions of my radiation, I am so scared each time I get on the scanner. I ask questions and say when will I feel this and they just don't give real good answers. They say everyone is different , just need someone to tell me what to look forward too. I'm scared knowing I have 20 treatments of large area then…
Anyone due for scans?
I'm going to MDA this weekend, scans on Monday. At the 30 month mark, you would think I would calm down a little but no...scanxiety has set in. Anyone else going for scans in the next week or so? If so, I want to wish you well and keep you close in my thoughts and prayers. Hoping to post good news next week! Hugs to all,…
Finally some results...
So I met again with my doctors to discuss my test results. Again the PET showed NED in the Anal area tho lots of scar tissue that may or may not be improved with time and surgery. We have decided to leave my colostomy in place for now since he believes I at this time do not have enough musscle control to be continent. I…
when does fatigue go away.
I have not been here in a while, finished my treatments 4 weeks ago but still feel so weak and tired. When can I expect to start getting more energy. Also wanted to mention Chemo Oncologist referred me to a Gyne Onc for what she called a checkup Gyne onc wanted to try a pap smear, (I thought it was too soon) but she…
Finished my treatment!
I completed my treatment today! 28 days of radiation and 10 days of chemo. I counted my medical appointments and in the past 66 days I've been to 71 appointments! And if you take off weekends and holidays, the average is 1.5 every week day. Wow! I am quite exhausted with oozing burns, nausea and mouth sores so I don't…
Got the port
It hurts and I don't like it but I just got it yesterday so I know it will feel better soon. Just needed to sound off, I am scared and keep thinking someone is going to rescue me, I guess I just need to be strong, I am a wimp by nature.
Can't believe it was highlighted!
Those of us treated at MD Anderson receive newsletters, etc. I just received the latest Network newsletter. To my astonishment, a profile of an anal cancer patient was hightlighted! I was so surprised and appreciative. Ebba Dunn is a organist at Trintity Episcopal Church in Alabama. She traveled to MD Anderson and was…
New and Need Support!
Hi everyone. I'm a divorced 56 year old heterosexual woman and had this irritating condition between my buttocks for about three years before it was diagnosed by my OBGYN. I've been diagnosed with high-level squamous cell carcinoma in situ of the perianal region. I've had two biopsies, a colonoscopy and am scheduled this…
Test Results
Thank you all so much for your prayers and concern, it is soooo comforting to have this safe place to turn when we need. Well I had my PET, CT, and Chest x-Ray for a one year since diagnosed ??? checkup. Most of the results were good. The anal area showed no evidence of recurrent/metastatic disease, with some activity most…
locating a colorectal surgeon
How would I go about locating a colorectal surgeon in Tupelo, MS?
HPV...Nervous About Symptoms
Hi All, I'm A 22 year old gay male who has been having an itchy anus, especially after bowel movements, when walking around on my feet (i have a job that requires me to walk often for 10 hours). After having a bowel movement and performing several wipes, I noticed that there would still be a brown substance on the toilet…
Looking for positive mental energy
I don't post too often but still follow everyone a lot. Yesterday was one year since I began the usual treatment of chemo/radiation. I was Stage3 with a large tumor. I had a colostomy ( still do ) I did not handle the chemo well and became very weak and malnurished so was hospitalized then nursing home for 3months on TPN (…
R1and r2 cream did any one use this during treatment?
Trying to find what might help during radiation. My doctor said this might help. Does anyone have any thoughts or comments on creams to soothe the skin.
What was your age at diagnosis?
What was your age at diagnosis? AND If you're done with treatment, how long have you been in remission?
Finally Updating on Surgery
First I want to say thanks for all the prayers....its so appriciated. The surgery went well, all the cancer is gone. Yes I know it can come back anytime but for now its gone. It was a kind of a rough time in the hospital. My nurses were awesome but was just in so much pain. Then trying to adjust to the stoma & all that…
Someone explain this pump thing I am going to have to have
I went to the doc today and I have to wear a pump, someone please tell me how to handle this, and if there are problems I might run into , scared. The pump will be put on after I have a round of chemo.just need a friend to talk to me about it. Thanks !
What the dr said
Well, I went in to test and make sure the h pylori was gone and got them to check my situation out while I was there. She did a DRE and said there were no hemorrhoids, no mass or abnormalities and no leisons. She did said I had a skin tag/anal fissure and gave me an ointment to use for 2-3 weeks. Then I go back to be…
Feel like I am in another world
So I now have found my doctors and I have like 6 appointments in the next week between pet scan, ct can, getting a port, blood work, oh my goodness I don't have time to think. Maybe that's a good thing. A lot of good info has been given and Martha a big thank you to you. I have stage one anal cancer so far I have have…
Symptoms BEFORE diagnosis
Can everyone tell me what their symptoms were before diagnosis that prompted them to go to the doctor?
Words I never wanted to hear dancing to time in the back of my mind.
I remember the day I wrote that line 37 years ago. The reason I wrote, is that my parents at that time had to make a major decision about my future. The choice was back surgery, traction or both. They told my parents if it was not done that I would not be walking at 40. My parents chose no,reason being already had had leg…
2 year anniversary!
Hi All! I first joined this group about 3 1/2 years ago when a wonderful woman named Joanne started a board for us anal buddies!! I haven't been on now for awhile...unfortunately have been on the breast cancer boards as I was diagnosed with yet a 3rd primary cancer last year. But I wanted to say that I celebrated my 2nd…
Has anyone had this side effect
Hi, I am 15 months cancer free so far but still dealing with side effects. I went to the dentist to have my teeth checked and before chemo and radiation my teeth were near perfect, now I have severe receding gum lines and 4 cavities. He tells me this was caused by the chemo and radiation. Has anyone else experienced this?…
live in small town looking for best care
i have been diag. with anal cancer and have been told i need chemo and radiation. the only problem is that i live in a remote small town and i want to find a doctor who is familiar with anal cancer and has treated this before. when i call doctors i get we don't have the numbers of patients we have treated for this or if…
Stiffness/aching
In the last few weeks, I have noticed that I am extremely stiff, esp. in my legs and hips. It's like I have no flexibility anymore. Almost like my bones "ache" for want of a better description. Anyone else experience this? If it's not one thing, it's another! I'm about 3 months past tx.
PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
PJS62.........
I believe your surgery was yesterday.... I am sending prayers and good wishes your way.....
Feel like on a major rollercoaster
Has been a bit since I last posted. Seems like the last couple months I have been stuck on a rollercoaster. See a doc.... do a biopsy or test..wait a week get results, you have anal cancer insitu....see another doc...have another test or biopsy...wait a week get results, yep insitu.... tumor board to review case...wait a…
I had a DRE today six weeks after treatment ended
I had a DRE today six weeks after treatment ended and the doctor said that everything looks great! He said there is still some scar tissue from the original surgery to remove the hemroid in October but that there is no sign of cancer! He wants me to come back every three months and then eventually move to six months and…
UTIs
I have been having frequent UTIs since treatment ended. Anyone else having this problem?

Anal Cancer

Discussion List