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Isn't it Ironic
It just occurred to me that William is no longer here, not because he didn't survive, but because he is a survivor. He is, however, a survivor with opinions, beliefs and 10 years of knowledge that apparently is something not valued by the American Cancer Society. Their website should state that only those who DO NOT…
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Contact Information
All, Please send me your personal contact information - email if you desire to a new email address I have created ECFIGHTERS@gmail.com. I will try to help those get on the EC facebook page it is a private group and you must be invited -- please friend me on facebook I am Cindy Collins in Wilmington Delaware - so you make…
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Feel like crying
I have been on this board for a year now, and there have been many, many times I felt like crying but no more so than today. I CANNOT believe that William and Loretta are banned from this board, it is just so undemocratic. Has it really come to this? Clearly the person or persons who monitor this site have no idea what…
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Jimbo - how are you?
Jimbo, my friend, how are you doing. Please drop a note. You are in my thoughts and prayers!
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Farewell, friend.
Please help us. You will be missed by many. Just know that all you have done for me will forever be appreciated. And for those who didn't get to know you, it truly is a loss. I hope you find peace and you will know how much you meant to me. Thank you for your advice and your hand and your guidance... ~Jayme
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Types of Esophageal Cancer
I knew this but did not think about it until earlier today. It might help some of the new folks here to know that there are 2 main types of Esophageal cancer and both will be talked about here I am sure. Adenocarcinoma of the esophagus is the type I had. This cancer is usually found in the lower part or distal esophagus…
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Support services for UPMC person
Hi all, What have people used for supporting services for UPMC ? asking for PA family. ie are they any helping hands groups, or local groups ?
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Esophageal Cancer Surgery
Hello, I am Active Duty Master Sergeant in the US Army. To make a long story short. My DR. saw Barrett's in Jan and it came out + for ESO CA, I had 2 GI Procedures to remove it and 2 Negative Biopsies' for Feb - May. The last appointment I had on Aug 7th is showing "High Grade Dysphasia" in the mucosa. With that being…
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Esophageal Cancer Surgery
Hello, I am Active Duty Master Sergeant in the US Army. To make a long story short. My DR. saw Barrett's in Jan and it came out + for ESO CA, I had 2 GI Procedures to remove it and 2 Negative Biopsies' for Feb - May. The last appointment I had on Aug 7th is showing "High Grade Dysphasia" in the mucosa. With that being…
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Another Stage IV doing well
Hello Everyone, My name is Barrie and I am caregiver for my husband who was DX in Feb of 2011 as Stage 3b. We are at M D Anderson in Houston. He had chemo/proton radiation, then the big Ivor Lewis surgery in Sept of 2011. He is 74 and was released from the hospital on the 4th day. Learning to eat again was perhaps his…
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HOW TO DEAL WITH CONSTIPATION NATURALLY?
Hi As this space has always provided answers and encouragement, I was wanting to know what to be done for constipation. Even though my sister with stage four EC has fruit juices and fruits, she is consitpated. What can be done for the same? I have given her homeopathy medicines but to no avail. Any suggestions? Bawa
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HOW TO DEAL WITH CONSTIPATION NATURALLY?
Hi As this space has always provided answers and encouragement, I was wanting to know what to be done for constipation. Even though my sister with stage four EC has fruit juices and fruits, she is consitpated. What can be done for the same? I have given her homeopathy medicines but to no avail. Any suggestions? Bawa
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How do you gain weight without sugar
Hello..it's me again. This time I want to know how you gain weight. I started at 185, very overweight. I didn't lose any lbs during chemo and radiation. But since the surgery in April 2011, I've lost. I feel pretty good. I'll loved shopping for all the new clothes shopping at first, so nice things fit. But I'm getting…
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Words for Stage IV, just for support - my best day
So many new Stage IVs, If it helps , here are words from my husband (Stage IV) during his battle: Today is my "best day" and I have all of you to thank for it. Your support lifts me up everyday. My treatments are going well and I've even started to gain some weight back. There goes my newly found 34 waist. There are many…
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jtube for severe weight loss after removal of esophagus
I really need some advice for my 78yr old father who is 10 months post-op esophegectomy. He came home with a j-tube and continuous feed pump. Had that taken out 7 months ago. Has gone from 150 pounds to 110 pounds. Very frail, very weak. I live 1500 miles away and was counting on family closer by to monitor him ans assist…
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trouble with this board??
Hi, Is anyone having trouble getting on this board? Been a member here for over 3 yrs and it is saying access denied to the general discussion boards but letting me post here. Just wondering, sometimes I can't get on the board at all but never said access denied before. Donna70
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need suggestions please
My husband was diagnosed Aug a year ago with stage 4. He has done OK as far as this disease goes. He had some major issues at the beginning but now is having some pain issues. He is currently on Fentanyl 200mcg every 3 days and oxycodone for breakthrough pain. He also takes a muscle relaxer Skelaxin. I saw the list…
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Statistics
This is just my personal opinion but since I was first diagnosed about 18 months ago with EC I did a lot of research about the disease. I started working with the old Univac Computers back in 1965 and have used a computer is some shape or form since then so when I say researched I mean RESEARCHED. One thing I noticed but…
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It's a very difficult and sobering time here on the forum now...
I'm sure that most of you who have been around for awhile are used to the ebb and flow as patients and caregivers come and go, but for those of us who are still newbies, I joined a scant 3 months ago, this is a difficult time. Reading about Judy and Don's situation has brought me to tears, learning of other more recent…
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Was looking for cancer survivors in Bay Area California to meet my sister
I need my sister to meet some cancer surviros living in the bay area of California.
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HOW IS CANCER CENTRE OF AMERICA, ARIZONA IN DEALING WITH STAGE $ PATIENT OF CANCER OF ESOPHAGUS?
Hi My sister, 33 years old found out about stage four cancer of the esophagus when she was planning for her second baby. For almosta month she thought the symptoms were of pregnancy and took it lightly. Its been two months she has been diagnosed of stage four cancer which has spread to lungs, liver and brainn. After two…
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6 weeks post Op--now eating pretty good....
Since my J-tube fell out in the shower last week, and not replaced I found a way that keeps my food down...crackers. Before I was regurgitating with lots of mucus, and now if I eat something crispy with foods, it goes down fine. Has anyone tried this? My PA at Mayo/Rochester said it's time I get going on the full…
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Chest Fluid...I Still Don't Understand How....
Not really looking for answers...just jotting down some repetitive thoughts from my head. Its been 2 weeks since my mom took her last breath on this earth. Maybe it's part of the coping or grieving process, but I keep going through everything that happened in my head. All the questions will never really be answered, I…
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Endoscope, dialation and a new Furbaby
The results of the endoscope showed the same thickening as before, it doesn't change. It showed scar tissue. They did do a slight dialation but it's still wide open. The CT scan will be next Friday. We've been anxiously awaiting the arrival of our new furbaby from Mobile, AL Needless to say Issac caused a delay. Then it…
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Eating Food
I have finished all of my treatment and am currently cancer free. I still have the eating tube because all foods taste so horrible that my Dr. is reluctant to take it out until I can eat regularly. I try different foods periodically but have yet to find anything I can actually eat. Has anyone else experienced this problem?…
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We are indeed at home - Thank you all for your comforting calls, posts and support - Freida - thank
At 9:00 pm last night we finally got Don home. It was day filled with many bumps in the road. They ordered the wrong machine twice yesterday and the dude had to drive across Ann Arbor literally from the north side to the south side twice - finally I just told the nurse to bring a wheelchair and asked the dude to meet me…
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Second Opinion
Hello, I wanted to ask for your kind help. My 87-year old mother has been receiving treatment for esophageal cancer for over a year and a half. She is receiving treatment at a large and well known clinic/hospital which has a number of oncologists. Despite the good reputation the clinic/hospital has, we were not happy with…
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Is any other treatment available aside from Chemo/radiation?
Hello, I wanted to ask for your kind help again. My mother is 87 years old, and has esophageal cancer. According to her oncologist, the PET Scan showed that the cancer existed in lymph nodes along the trachea (windpipe) and near the lungs. My mother’s cancer was diagnosed about a year and a half ago. For about a year, she…