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Esophageal Cancer

Archives for January 2010

esophagus endoscopic mucosal resection with pdt
Has anyone had this, I have been researching it since my andecarcinoma EC is stage 1 or maybe smaller according to the PET scan, I was looking for alternate treatments. The doctors that I have been dealing with so far have not been in support of anything but an esophogetomy. So I am looking for personal feedback on these…
New member
Hi all,my husband was diagnosed in this past Sept. with Stage IV EC, lymph node activity and several small lesions in his liver. He started chemo (EOX) and was having good results. Then his tumor markers started increasing again so tomorrow he starts CPT-11 and cisplatin. His dr. says surgery is not an option because of…
Thanks Lori, I'm ready now
Hello everyone, I have recently learned as you know that Al may not be with me in this world for very long. The radiaton oncologist told me the other day that he may only be with me for a few months or maybe even less. We do have a pet scan and another mri scheduled for next week to see exactly what we are up against, but…
Saw onc dr, start the chemo on Wednesday
Hi, Ron and I went to the drs yesterday to set up the chemo schedule. He said all my bloodwork looks good just a little anemia and will keep taking iron for that. He was going to start in 2 wks but we begged him to let me start this week for Ron to have more time for insurance and family leave, so Wed we will go in for the…
feeding tube questions
my friend has been connected to a feeding tube for about 6 months - and just found out the other day that some are portable? for all this time she's been stuck in her house most of the day waiting for the cans of stuff to go thru. sometimes she's too tired or busy to do them all and is losing too much weight. do most…
are there any Canadian members here?
we've been advised here on the b. board to consider a second opinion - good idea! - but it seems that, in our health care system, all the cancer care doctors work in local teams - great teams but they don't seem independent of each other? Does anyone know how to go about getting a second opinion on this side of the border?…
what are options after radiation 'closes' throat?
I have a dear friend who says her doctor just told her that he could do nothing about her throat having closed up after radiation. She's stage 4, has had no surgery, just radiation. months later, she's still on a feeding tube, weight very low. I want to go with her to her next appt, and know that we'll need the info on the…
PLEASE PRAY FOR A VERY SPECIAL PERSON ON THIS SITE
To all my EC friends, I am asking for prayers for a very special friend on this site, I am not going to say her name for her privacy, nor am I going to say why for her privacy, but you see she came on board about the time I did, her husband was diagnosed with EC and had to go through so much more Chemo and Rads, than mine…
Today's apt. for my dad
My dad is going in for a CT scan today to see if this chemo is doing anything for him. The CT scan is today, but he's also going in to discuss having a feeding tube put in. He really needs the extra help and I'm happy he's admitting to that. Please everyone say an extra prayer for him. I'm afraid if this chemo isn't…
My tests are in, surprise to me.
Well, I just got back from two days at the VA medical center in San Francisco. I had a PET scan done on Tuesday morning and met with the surgeons later that day, the official report was not back from the PET scan so the doctor looked over it with me and thought everything looked good, my EC was or is very small and the…
More Appointments Tomarrow
Hi All, Al has more appointments tomarrow one with the radiation oncologist and one with neurosurgeon. I am praying we will get some answers to why he is still having this horrible back pain. It sounds horrible but I would rather it be another compression fracture and not mets. So again if I could have the no mets prayer I…
I'm new to this messaging board. I hope i'm doing this right.
I was recently diagnosed with stage 4 esophageal cancer witch has been ct and is in my liver. I's there any one else that is going through this also.Just looking for advise.
Latest on husband
It's been a while since I last posted. My husband has completed 9 rounds of chemo, the last 3 being 5-FU and Irinotecan. He's been feeling pretty good. Lost a lot of weight in Nov. and Dec. but now starting to gain again, YAY!!!! His energy is coming back and he's not as depressed as he was. His tumor markers went from…
post surgery pain near ribs? Steroid shot?
Hi everyone. We're new on this board, although I've read some of your entries earlier during the year. Last February my hubby was diagnosed and he's had chemo and radiation and then esophagectomy last July. He still has pain on his right rib area (about where the new attachment is.) His doctor on last visit said that there…
Top 10 high calorie foods to gain weight after esophaectomy---WE NEED HELP
Hi all my CSN EC friends..... For those that have had surgery---what are the most successful foods for you all? My dad is doing well in so many ways---looking to the future now by buying a older used RV so he can make a family get together!!! this July, eating a little more, doing more. etc. But---- still not gaining…
Advice Sought: Early Stage Esophageal, Dr. Recommending Esophagectomy (McKeown procedure)
To fellow survivors: I am searching for your advice and comments for someone diagnosed with Early Stage Esophageal cancer. According to my doctor - an Esophagectomy (non-invasive type) is recommended to arrest the possible spread of the cancer. I am interested to know if anyone can relate your recovery stories from…
Dad and EC
Hello, my Dad was diagonosed EC and in lymph node around stomach. Surgery was not an option. he did a clinical trial and all was going okay until the last ct scan showed the tumor doubled in size. They cancelled the trial and sent us back home for a different treatment. After meeting with the Dr. dad decided he wasn't…
Hope for Stage iv
Hello All, As most of you know, my husband Charlie has been battling stage iv EC since March 09. While I feel bad posting such good news for all of you who are dealing with all the "bumps in the road" we have all endured, I feel I must share this with you. We got the results of Charlie's PET today and the results are…
New Rad. Onc
We met our new Radiation Oncologist today and were very impressed. He came out to visit with us before the simulation for the radiation. Very straightforward and up front about what we are facing and the way he's going to treat Jim. This was a very good day; we feel more confident. We also visited the Proton Therapy Center…
Nancy/radiation info
Well going to see radiation dr today to see if he thinks I need radition before the surgery ont he 16th. Will know in a few hours. Does radiation make you sick like chemo? Have not had either as yet.
Not what we wanted to hear
I was so hopping I would not have to write this, but Paul’s PET done last week showed spots on the lungs. There was no activity, but I am sure it is the monster. A MRI will be done on Friday to get more detail. I spent the weekend in a numb state with a lot of tears, got it out of my system and am ready to charge ahead.…
JEFF HAD ANOTHER SCOPE DONE TODAY AND NOW WE HAVE TO EAT A LOW FIBER DIET, OR WE WILL HAVE PROBLEMS
Jeff had his scope today from when we had to rush him to ER about 2 weeks ago the doctor was able to stretch it again WHICH IS A GOOD THING!! but we have a FIBER BALL in his stomach, said if he doesn't eat that diet, he will have to have it pushed through or suck it out, which makes sence for his problems, when he has been…
Al's appt today
Hi All, Al has his appt with the onc. today. Please pray for a good out come so that he will be able to have his chemo. He needs is to kill the mets in his back and for other things. Thank you all my CSN friends. God Bless, Kath
New to Board
My name is Duane, 48 years young. I live in Little Rock, Arkansas. I was diagnosed with EC on 10-16-09. Had surgery 11-20-09 and now on second round of chemo. Back prior to 1995 I was having issues with acid reflux, indigestion and the like. I was treated with normal acid reducing meds. Then I went to a Gastro Doctor and…
VERY good day!
We just heard from the hospital. They believe Medicare will pay for this and they have scheduled Jim for Proton Therapy simulation on Thursday with a new Rad. Onc. and we have week off in between to do something fun! This is really good news and answer to many prayer from friends, family and people we don't even know,…
nightly tube feedings still no weight gain???
Hi, Just wondering if anyone out there could not gain weight after their surgery? It is the 6th week after my open esophagectomy and I have not gained any weight except a few pounds here and there and then voila I go back to 121 square one. I guess I will call my oncology nurse. I take 2 cans of Jevity with one can of…
Chemo treatment?
I have stage IV EC and active limp nodes. I haven't started chemo yet. I'm considering having a biopsy sent to Rational Therapeutics for a laboratory analysis. Does anyone have any info on this tactic? I read the website info and it seems to make perfect since. I think it would be quite the advantage, to know which drugs…
Layne did better today
He thinks he is getting used to the Xeloda. He went to work, we saw the guys, he got excited about moving forward on the new products (yes yes we have to do that so we can pay our bills) and we took the boys to the guitar store to spend the gift certificates Grandpa gave them. (they are learning to play.) Right now, he is…
Oncologist Appt. Wednesday
Hello Friends, I know I have been a little quiet lately, Al isn't completely up and around yet. He is doing alot better!!!! We have decreased his pain meds to twice a day and really doesn't like taking the Morphine at all during the day. We go back to the Oncologist on Wednesday the 20th and while we are there he wants to…
SO FAR SO GOOD WE ARE STILL CANCER FREE--- OUR JOURNEY IS STILL PROGRESSING ALONG
Hello all, Just wanted to give you an update, the PET SCAN, showed no evidence of CANCER!!!! YEA!!! the doctor told us today that they are comparing reports and so far so good, there is not any mestatic disease or any fluid floating around or nothing showing up, the only thing showing is where the surgery is still healing…

Esophageal Cancer

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