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PET results
PET Scan was Thursday and Friday we met with the Onc. Tumor is only half as much SUV as well as all lymph nodes except one and that one was stable. So great news. Not so good news is we are scheduled for simulation for radiation but NOT Proton. Sent a message to the patient advocate, but haven't heard back and they are…
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WE GO TO THE ONCOLOGIST TOMORROW MONDAY TO SEE IF WE ARE STILL CANCER CLEAR!!!
Hello all Well we are nine months from when we were first diagnosed with this ugly disease we call EC CANCER, we have had to go to the doctor if not every month every 3 months, this is our 3 month check up to see if we are still cancer free since surgery. Please continue to pray for us and wish us the best for the results…
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Disability or return to work?
I am woundering what everyone does, disability or return to work. I have long term disability insurance from work. My question is after I have esophogetomy am i considered cured? Social Security says the esophagus cancer is a straight shot for disability and if off work for more than 12 months it becomes permenant. If my…
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Anyone here being treated at Johns Hopkins in Baltimore, MD???
Hi, Just curious if anyone is being else is being treated at the same place as my father. Thanks!!! Erika
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chemo what should I expect?
Hi I'm new here my name is Jim. I have EC. I have to start chemo tomorrow at Sloan Long Island. I dont think I have any restrictions as far as eating before treatment. Any advice would help should I eat breakfast first? Thanks Jim.
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Long Island,NY North Shore LIJ Hospital??
Just wondering if anyone is from NY that might have had their surgery at the North Shore LIJ hospital? If so can you please tell me about your experience? Thank you Dorothy
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husband does not want chemo
hi all my husband has stage 2t n1 mx cancer of the esophages he is due to have his surgery and had no chemo or radiation before and does not want any after.has anyone had thhe surgery without chemo or radiation before and after. thank you, dorothy
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Thank you to Betty and Layne
Thanks to Betty and Layne for meeting with us yesterday. It was fun to meet both of you and enlightening to see Layne relaxed, eating well and seeming to be totally comfortable after such invasive surgery a short time ago. Jim's PET scan was today and he did well, although it hurts his shoulder to lie still with his arms…
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prayers and help!
I am shaking so bad I can hardly type. Just got off the phone with onc. Dan's cancer is mets. Into lungs, aorta, lymph, etc. He suggested chemo. Dan is out of house with daughter. How can I tell him??? I'm so confused??1!! First they say no chemo because it will damage kidney, now that is our only option. Who do we believe…
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update
Hmmmmm where to begin. Well, first of all, our scans were great. Nothing on them. However, our pathology from the surgery could have been better. The margins were clear, but close. The tumor was more viable than they would have liked...and they would have liked it have all been dead. Therefore, Layne has been given clean…
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Finally Home
Hi All, Al is finally home and is not in pain. He is so medicated right now that I am a little concerned. I'm sure come tomarrow he will be a little more with it. I have taken control of the meds for now because I don't think that he will remember what he has and hasn't taken. We go back to the oncologist next week and the…
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Nancy new to site
I was told I had Esophageal cancer Nov 2009. Went tot he Mayo Cinic her in Fla and it was reconfirmed. Surgery is scheduled for 11 Feb. I am luck I am told mine is just in the lining caught very early stage. I am scared!!!!! Lots of questions. Will I be able to eat regular food again? HELP I am losing it
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Al's back procedure went well
Hi All, Al had his kyphoplasty this am and so far so good. He is still pretty druged up. The Doc said that it should help his pain. We will have 2 more radiation treatments and hopefully by next week get some chemo to get the rest of the beast out of his body. I thank all of you for your prayers and support. I will keep…
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vomiting white foamy stuff---anyone psot surgery have this?
HI all, My dad is having some issues and my parents are having trouble figuring out what is a problem and what isn't. He has had some bouts with vomiting a foamy white material---he felt nauseous--but he says from "low" --just above the belly button area. I have read a long time ago of others having this---but can't find…
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Got a 2nd opinion
Hi, As you know my brother works at the hospital where Al is, when I talked to him last night he gave me the name of another neurosurgeon to give a consult and 2nd opinion. Al is now scheduled to have his vertibre cemented tomarrow. I just find the entire thing very interesting, first there sending him home or to a rehab…
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a question for William Marshall
Hi, I am new to this site but noticed you are always on it with such great opinions and advice so I thought I would write to you. My husband, age 55, was diagnosed with stage four with mets to liver, stomach and behind lung in October 2009. We went to three oncologists for their opinions and all pretty much said the same,…
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My dad just diagnosed
Hello everyone, WOW! There is so much information and good advice in these discussions. My name is Arnold. My dad was diagnosed with Stage 4 EC on Nov. 12. 2009. Luckily he is still able to eat without a feeding tube. We have been to so many doctors and my dad has undergone the entire barrage of tests. Now the next step.…
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Update on Dad and a little help needed
So dad ment with the Surgeon again and then the Onc. Dr on Thursday! Since his set back he was only allowed to have clear fluids. Well they released him and said he could finally eat. FOOD!!! he was very happy, he still has to keep his Jtube in, well b/c you know he has to eat tiny amts and he needs ALOT of calories. They…
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Now the insurance says he can't stay
Hi All, Just had a heck of a day trying to figure out what to do with Al.. The insurance co.says he can't stay for pain control and for radiation treatments that can be done as an out patient, but he is to weak to come home so now they are trying to get him into a short stay facility. This all Suc-----. I am a mess. The…
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Our first scans are Monday
We fly to Houston on Monday and do scans from 3:30-7:30. Then Tues we meet with Onc, Surgeon and Weds the Radiologist. We'd appreciate prayers, of course. I figure we have a total of 8 scans before we can breathe ...and 12 scans before we are declared cancer free at 5 years. I'm going to celebrate each set on the way. :)…
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A milestone
Today marks the end of Paul’s first full week back at work. It sounds strange, but I am so proud of him. To be honest, I had my doubts about him going back, if he would have the strength and stamina after completing treatment. It helps that he likes his work. I told a couple of friends, but they just didn’t understand the…
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Food has no taste
Hi everybody, I finally feel like posting again. I went through hell, but made it back after the surgery. I developed pneumonia and was put on a ventilator for a few days. Stayed in the hospital 2 weeks. Finally able to eat a little and nothing has a taste. Is this a permanent problem or will taste come back. I just…
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when should doctor order new pet scan?
My husband, in stage four with lots of mets, is starting up his third session soon, when should the oncologis get another new pet scan done to see if these two chemo drugs are working? I was thinking maybe end of third session which would be half way since six sessions is ordered? am I correct and am I hoping too much that…
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Surgery or no surgery?
The chemo and radiation treatment were not easy, but after discussions with the doctors and surgeons about surgery,I am left me with many questions. Should I have surgery or not? I have stage two. The tumor had gone through the wall of the esophagus, preventing my food from stay down. Radiation and chemo did shrink the…
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good news from drs visit
Hi, We got great news from the drs yesterday. First the tumor was completely obliterated when they did the surgery and the positive node was right in the tumor area and not far away so that is all good news. The best news was that I will not have to have the inpatient chemo like I did before surgery. I will only be getting…
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IS ANYONE HAVING PROBLEM WITH THE CHAT
HI AND GOD BLESS EVERYONE. I AM NEW TO THIS, BUT I WOULD LIKE TO CHAT WITH ANYONE WHO IS IN NEED OF A FRIEND AND ESPECIALLY THIS TYPE FO CANCER.
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Just diagnosed with esophagus cancer, lots of questions.
Hello everyone, I was diagnosed with barrett's esophagus with adenocarcinoma, after an ultrasound the doctors have concluded it is advanced stage 1. Lucky for me, So some of the questions I have are, who has had a laparoscopic esophagectomy with gastric pull up, and how long was the recovery, how long before I can go back…
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New to this board
Hello, everyone. I am usually on the colon cancer board as my husband had colon cancer last year. I have a question for anyone who can help. My husband just had his first after chemo CT scan and it showed no metasizing. GREAT NEWS. Surgeon calls, because he is to have his first colonoscopy next week, post treatment and he…
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my esophagial cancer - metastatic to bone
Hi Everyone, Here is an update on what has been going on with me. During the holidays, I broke my neck, don't ask me how, but the pain was excruciating. I went to the ER with a severe neck & head pain and that's when they discovered it was broken. I was having trouble with my neck for about 2 months before. I thought it…
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ONE PRAYER ANSWERED AND MANY MORE TO GO
I just wanted to share some GOOD NEWS!!!!!!!!!!! we don't usually get to share good news its usually always bad news, so with that thought I had to share that Jeff got approved on SSD and it was less than 2 months when we got our first check. We went through a firm his company he worked for recommended and with the…