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Uterine Cancer

Archives for September 2021

Ibrance--Pfizer patient assistance
Hi everyone, I'm writing to share our experience with the Pfizer patient assistance/oncology together program. My mom was prescribed Ibrance for her recurrent MMMT based on the genomic testing results (CCND1 amplification, which may be targeted by Ibrance). Ibrance is not FDA approved for uterine cancer (just breast cancer…
Six Years NED from UPSC
Six years ago today I had my hysterectomy. My surgeon thought he got it all even though it had spread. I only made it through three chemos. Lots of side effects I've had to live with, but the important word here is "live." So many wonderful women here didn't make it but, for some reason I did. Thanks to all the women on…
Hair Loss - Not From Chemo - Hormonal?
My surgery was 6/10 and I had brachy treatements in late July/early. Noticed the past few weeks increased hair loss in my brush after brushing or in the shiwer after washing my hair. Is this hormal/estrogen related after having everything removed during surgery and if so, any recommendations besides biotin which I have…
October Birthdays
Let us help you celebrate! After all, we fight HARD to make it to these dang birthdays, right? If you have a birthday in October, please reply and tell us when it is, and if you plan to celebrate! We ALL honor you, and will be so glad to wish you a HAPPY Birthday! Deb 2
another NED
Sorry I haven't been able to post an update before now. It has just been a crazy busy week. However, I really wanted to share with my fellow "cancer warriors" the good news. I had my baseline CT scan on Monday, and the results were: "No evidence of metastatic disease." Hallelujah! I also had post-chemo labs done that day…
Survive & Thrive - free online event
Read about this in a newletter and wanted to share this free online event sponosred by Northwestern University on Saturday 10/16/21. Here is the link to register: https://www.cancer.northwestern.edu/events/public/thrive/index.html On Saturday, October 16, the Lurie Cancer Center will host Survive & Thrive, a virtual…
Sad New from LouDy22
I'm sorry to report that Billy's mother has passed away from Stage 4B carcinosarcoma. Despite conventional chemo, immunotherapy and her previous good health, her cancer proved to be intractable. A very sad loss for Billy and his family, especially since his mom was only 59.
Immunotherapy
I have vaginal cancer - serous adenocarcinoma. I've been through carboplatin and taxol, and external & internal radiation. I'm supposed to start immunotherapy this next week. Keytruda and Lenvima. Was curious as to anyone's experience with these drugs. How were your side effects? How long before side effects appeared.…
Thank you all but the time has come to say goodbye
The time has come for me to say goodbye to all you wonderful ladies , you are all true warriors and I thank you for all your wisdom and support , I pray and hope all of you live long lives and beat this terrible disease , I for one have let this disease beat me and I don’t even have it , my anxiety and depression are off…
Interesting article about radiation
https://www.cedars-sinai.org/newsroom/radiation-therapy-effectiveness-for-cancer-patients-influenced-by-gut-fungi/?utm_source=FACEBOOK&utm_medium=referral&utm_campaign=cs_social&utm_content=post&fbclid=IwAR19OeIcebSOGO1oIQ5KrmFYPLM234s4W8aT1B53bC49rW18krAXL74VAas
Initial Follow-Up Exam Schedule Question
Hi Ladies, I had my surgery on 6/10/21 - hard to believe it's been 3 months already. Sorry if below is TMI. I saw my surgeon/medical oncologist for a post-op follow-up exam on 7/19/21 and my next visit with her is 3 months later for 10/18/21. I had 4 brachy treatments that ended on 8/2/21. The radiation oncologist told em…
Potential New Treatments Using Covid19 Vaccine Technologies
Hope everyone is doing well. I thought you might find these interesting. Wouldnt it be wonderful if something good came out of this pandemic? https://www.fiercebiotech.com/research/biontech-reports-promising-data-mrna-cocktail-mouse-models-colon-cancer-and-melanoma…
Covid Booster
Got a call from oncology scheduler before my last immunotherapy treatment asking if I wanted the Covid booster. Sure. 24 hours later I had body aches, headache and chills. No fever. I had no reactions after first two shots. Today after waking up I felt great--so 24 hours of feeling bad. Probably why I "let" my husband buy…
Full abdominal radiation
I have UPSCALE. I had chemo(6) surgery and the 25 radiation treatments to my abdome. After the radiation I was really sick for awhile diarrhea, nausea etc. then it calmed down. I finished radiation in the end of Januar. But now it's sept and I have bouts of burning pain in my abdomen. This last one was about 10 days worth.…
It's my Birthday!
Happy Birthday to all my September friends also! I was born 9/9/59, which makes me 62 this year. Last year, we were fleeing our home, as wildfires raged nearby. The sky was pink, orange, then black. Smoke was so thick we could scarcely breathe. We evacuated five cattle, two cats, and three dogs--and grabbed our passports…
Mom stopping treatment
So I got the text today from my father about how mom wanted to talk to us , deep down in my heart I knew what it was about , today has been the hardest and saddest day in my 36 years of life ..... even worst from the day the dr said " your mother has a very rare and aggre cancers called Carcinosarcoma which carries poor…
Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it in lymphodes, one ovary (removed), the Doc said it was also hanging off the colon, rectum, and bladder and its in my Omentum...…
Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it lymphodes one ovary (removed) and in my Omentum... It takes you back getting a diagnois like this. Makes you want to stop and…
Hysterectomy after all
Yesterday was my follow up appointment where my gyn onco went over the MRI. It is stage 1a, with less than 50% invasion into the myometrum but she said it's not a good idea to go forward with fertility sparing treatment. I feel like I have NO say or control and a hysterectomy is not what I want. I am 37 years old. She said…

Uterine Cancer

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