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Uterine/Endometrial Cancer

Archives for April 2021

11 years cancer free
Went to the oncologist today and he said I don't ever have to come back and that I am a success story. My journey started in 2010 when I started bleeding after a pap test. It took 2 years before I got the correct diagnosis. Had a complete hysterectomy and them chemo with carbo/taxil for my combination Endrometrial Cancer…
Carcinosarcoma presumptive 4B
O boy where do I begin ? I been looking at this page since March 24 everyday for hours at a time so I decided to just join and hopefully find some comfort . My mother was diagnosed with Uterine Carcinosarcoma and it feels like my heart and soul have been ripped from my chest , i don't want to take to anybody and I am just…
Pelvic soft tissue mass on CT
Hi everyone. I'm here to support my mom (Stage IV UPSC). I've gotten so much good information from the posts, so I wanted to add in case anyone else has a similar situation. A little background--cancer was found last May, surgery in July (everything out including omentum), optimal result. 6 rounds carbo/taxol done in…
New treatment option for dMMR endometrial cancer
Dostarmilab (brand name Jemperli), a monoclonal antibody, has received accelerated approval for recurrent/advanced endometrial cancer associated with deficient mismatch repair (dMMR) and previously treated with platinum-containing chemotherapy. Here's the press release: PD-1 Inhibitor Approved for dMMR Endometrial Cancer I…
Fluff
I just learned that Fluff passed away Friday. She was in a Facebook group I'm in. So sad.
Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
Lung metastasis
Haven't done an original post since this started. I will update with most recent since I have posted my treatment side effects on other posts. I also searched through old postings on this subject but didn't find what I was looking for. Here goes. Had surgery for stage 3C2, G3 endometrial adenocarcinoma on 1 Dec 2020.…
Anybody else suffering from extreme fatigue and/or chronic diarrhea?
It's been over five years since I finished my chemo; I never had radiation. There are some days when, as my friend says, I feel like I was "rode hard and put away wet." I know part of it is the chronic diarrhea but this fatigue is just so sporadic. I felt great Saturday and Sunday but yesterday, I could hardly move and…
Aromatase inhibitor and tendonitis/tendinopathy
Hi everyone. My uterine cancer is ER+ and I've been on exemestane since completing chemo in September 2018. I was initially on anastrozole and was switched to exemstane in an attempt to address joint pain from the drug. The AI has always given me quite a bit of pain in my joints, particularly feet, knees and hips. I can…
Biopsy negative, but still turned out to have cancer?
Hi All, I am a breast cancer survivor (10 years!), but this is my first time on the Unterine board. I was hoping you could help me with advice- I am 59 years old, post menopausal. Six months ago, an ultrasound revealed I had an ovarian cyst. My GYN told me it should be followed up again in 6 months. In the mean time, I had…
Medicare story
I want to share this slightly off topic story because many of us have Medicare. I recently had spinal fusion surgery and stayed one night. I am an RN and can manage my care at home, and I am concerned about the risk of hospital borne infection, especially MRSA and COVID. I have Medicare and Regence Blue Shield…
Farewell to Donna Faye
Not long after our dear Donna Faye bid us goodbye in her last post at https://csn.cancer.org/node/322878, she passed away amongst her beloved family. Her obituary is at https://www.articobits.com/obituaries/american-cremation-and-funeral-service-durham-nc/faye-gregory-obituary. It's a beautiful tribute to the woman we got…
PARP inhibitors
Hi, Ladies! I'm starting this new thread for a new discussion...which I doubt most of you have encountered, but I'm curious if you have! My doctor is encouraging me to take a PARP for maintenance, Zejula (nirapibib), post-chemo. I need to make a decision in the next month or so. So...everything I read...all research…
Early stage Serous Endometrial Cancer article
This topic is discussed a lot on the board. I found this very recent article from the Mayo Clinic. I cannot post a live link so maybe someone else can. It confirms what we have discussed. https://pubmed.ncbi.nlm.nih.gov/33622859/
My Recurrence Journey
It was seven years ago that I was diagnosed with UPSC stage 3 and I really thought I beat it when severe pelvic pain sent me to my local ER last August. The CT scan there showed 3 enlarged pelvic lymph nodes. I notified my gyn/onc and he immediately ordered the scan results and sent me in for a CA 125 which was in the…

Uterine/Endometrial Cancer

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