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Uterine/Endometrial Cancer

Archives for October 2020

Rash
I'm currently in chemo Carbo/Taxol for a recurrence. I had my third chemo a week ago which is really chemo #9 and yesterday started a rash on my chin and lower face. Has anyone else experienced this? I called my doctor and the nurse said to take benydral and keep an eye on it. Benydral does seem to help but does not…
My Internist of 11 years will not accept MediGap insurance anymore
Aaarrrhhhh! She got me thorugh my dx of cancer, has been a wonderful doctor who has been dealing with me as I degenerate into a puddle of old age complaints. Now I learn that she will not accept my Medicgap plan anymore. I cannot sign up for a Medicare Advantage plan because we live in two states, and I do not want to be…
Still around 9 year survivor MMMT
Good Morning Everyone, It has been awhile since I posted. I was contacted by No Time for Cancer and she said I needed to post as some of the long timers were wondering if I was still around. Yes I am still here. It has been 9 years since my last chemo treatment Aug 22 2011 from Stage 3c1 Carcinoma sarcoma Uterine cancer…
Recurrence update
i received my first diagnosis of UPSC stage IIIc in April of 2014 and received the gold standard of treatment at the time surgery, 6 rounds of carbo taxol, 25 rads and brachytherapy. I was NED after the first infusion and remained that way until this past September when severe lower abdominal pain sent me to my local ER…
Wait until there is vaginal bleeding?
Hello, I am so grateful to find this amazing community and am humbled by your strength and fellowship. I do not have a diagnosis of endometrial cancer, but did have a concering transvaginal ultrasound result. I was wondering if anyone here could comment. I am 53 and postmenopausal. I have been feeling very bloated, but…
Not giving up!!
Ive just booked an appt with my GP, to discus some repurposed drugs I've found. LDN, dipyridamole and disulfiram. I hope he will prescribe it to me. Already on the COC protocol. I refuse to give up. I have so much to live for still. All 3 children are still living at home. I need to stickl around for them as long as…
Just given the diagnosis of MMMT
Uugh. I just received the diagnosis of MMMT / carcinisarcoma. From what I have read, the prognosis isn't very good. I know I need to keep my head up but it's tough. I am fairly young, 49, so I hope that is in my favor. Anybody have succes beating this beast? ~Melissa
Six years, still NED from metastatic EC
It’s been awhile since I last posted, but wanted to let you know that I am still here and it is now six years since I was diagnosed with advanced, then metastatic endometrial cancer, and I’ve been NED for over five of those years. It is hard to believe it has been six years already. Congratulations to all who have…
Peritoneal Cancer - After Endometrial
Good Morning ladies... Happy Sunday! Wondering anyone on here, was dx with peritoneal cancer, after endometrial? If so, what were your symptoms... I know it is possible, even after a complete hyster/bso. Thanks.
This is just to make you laugh
My lymphedema in my right leg began to swell about a month ago. Because it swells all the way to the top of my leg, my PT has been wrapping the leg and I leave it for 48 hours. It has begun to get much better but he says I need support hose. We tried the knee highs but that made the thigh worse; we tried the thigh high but…
Pls Help Me Quiet the Hamster Wheel of My Mind
Hello - I have been lurking on this board all day and love how supportive everyone is. Here's my background - I pretty much stopped having a period from about 40 years old to 48. I attributed it to early menopause. I started bleeding heavily last year and was diagnosed with endometrial hyperplasia. It was not atypical. I…
Message from Susan, the Queen of Cheese
I just got a text from CheesyQueen57 (Susan). She said she wasn't up to posting yet but was ok with me sharing this with you all. "I’m doing better. The tummy bloating seems better and I’ve been able to control the nausea. Let’s hope the treatment works at least for a little while." I'm praying the treatment works!! Love,…
Update from me...
Hi all. Ive been away for a while. I'm doing weekly Topotecan. 3 times weekly, one week off. Just had my #4 yesterday. My CA125 was 600 before treatment started. Had my blood drawn on August 28th. Its now 1410 after the first 3. 18 chemos planned.. So I guess it is not working. Unless this topotecan is taking some time…
Worried- thickened endometrium with bleeding
Hello, Hope everyone is well and staying safe. I'm writing here to see if I can hear any experience or opinions that are similar to my mom's thickened endometrium and postmenopausal bleeding. A little background: She's about 65 y/o. In october 2019 she had some spotting so we did an ultrasound which showed thin endometrium…
Stage 1 Grade 1 Adenocarcinoma
Good Morning ladies... Been a very long time , since I have posted on the board however, I know this site and our group is amazing for advice, support and comfort. I was dx Nov 1 2017, full hyst and BSO on Dec 8 2017 and placed into remisson Jan 2018 after staging results where returned and confirmed with the tumor board.…
Getting a port on Friday
So I went for my second Adriamycin treatment for my breast cancer. I had talked to my oncologist early in the morning about a need for the port because the MRI guy had a hard time finding a good vein the week before. The nurse warmed up both hands to find a vein and she got one on left hand, but did advise that since I…
Three
Dear sisters: Today I picked up the results of my CT scan which marked three years since the end of treatment for Stage IVB, Grade 2 endometrioid endometrial adenocarcinoma. Before I began to post tonight, I went back and read my first post here (Feb of 2018 after reading every post on this site beginning in April of 2017…
Decision time
Update: Met with Hospice and now better understand their role. Guess I am not ready for it, so they say. In order to keep my lymphedema PT, I need to remain free agent ( : ????Just got a phone call from Hospice super and she says I can keep PT and the nurse just check every few weeks.??? So guess you will have to wait and…
FIVE YEARS and I'm still alive!!
Five years ago today I had my hysterectomy. When I went in for my first doctor visit, he gave me the bad news I had UPSC. He ordered an MRI and x-rays to see if it had spread beyond the cervix. Based on those test results he decided not to go back in and take lymph nodes. That's why I was given a Stage II/III, Grade 3…

Uterine/Endometrial Cancer

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