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Clinical Trial Decisions- No trial necessary - FDA approves treatment
Some of you all have done clinical trials and some of you have chosen against them. I now find myself in the position of having to make this decision. Brief synopsis: Diagnosed in 2012, Stage Ia, Grade 1 endometrial cancer. Surgery followed by brachytherapy. CT scan for hip pain two years later, negative. After six years,…
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New problem
Hi all, I have been a member of the colorectal cancer board and now I have a situation that may be uterine cancer. I’m 66. 2016 - dx with rectal cancer. Had radiation/chemo until a fistual and had to stop. APR surgery to remove part of colon, rectum, anus and sphincter resulting in permanent colonostomy. 2018 - dx with…
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Femara
Hello, I was diagnosed with uterine cancer five years ago with lung mets. Afer a histerectomy and two surgeries to remove nodules on lungs, I was put on Fermara. The side effects are bearable, however, seem to become worse with time. I don't know if this is " normal " or whether it's an indication of something else…
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Hi, new here. 18 months post op
I'm 18 months post op from a total hysterectomy. I lost all the "lady parts" to uterine cancer. I had stage 1 and have many complications since then. I had a blood clot that left a huge scar and had the surgery done with Divinci robotic and have several scars all over the abdominal area. After the surgery, I got…
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immunotherapy did not work for me/ everolimus?
I had a CT scan earlier this week and met with my study oncologist. Unfortunately, for me the immunotherapy drug I was on did not work. My cancer has continued to progress. While not surprising to find out, ( I could both feel and see some of the tumors growing) it was still very disappointing. This came on the heels of…
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Lynch Syndrome anyone?
This is my two week surgery-versary. I had a complete laporascopic hysterectomy. I'm doing okay now, but had TERRIBLE, EXCRUTIATING pain the first few days. And the anesthesia made me so dizzy that I couldn't stand or walk for about 18 hours so stayed overnight in the hospital. When I got home, I saw that the hospital…
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To return to work or not return that is the question?
Hi ladies oh, I probably know the answer to this question but throwing it out there anyways. One doctor is saying I can work intermittently when I'm feeling good and other says she highly advises against it. I need to make a decision soon as I work as a teaching assistant and in two weeks my school year begins and my…
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New Drug w/FDA Approval Based on Tumor Genetics
The FDA just approved the 3rd type of genetically driven, "tissue agnostic" cancer treatment. Pembrolizuab (Keytruda) was the first. This article gives the details; an excellent reminder of how important genetic tumor testing is when developing a treatment plan.…
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A hot mess!!!
Hey Ladies, the 1st week after 1st chemo treatment I only was really tired for a few days. Then I had a great week and a half. Doing regular routine at home , running errands and enjoyed getting back to my walking routine. By Day 15 I have UTI and day later Thrush. UTI med not working after 4 days so got a new script.…
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Good News-Vag Brachytherapy advice/tips
Received call from Dr. this evening. Lymph nodes negative for cancer!! Praise GOD! So now I see him for followup on 9/3. I'm one week out from lymphendectomy. He will at that time schedule my vaginal brachytherapy radiation treatments. Any ideas as I prepare for these treatments? Continued prayers for you all.
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Menopause and hot flushes
Hola! I hope everyone is coping well with everything we all have in our plates. I was wondering if anyone have used “Black Cohosh” for hot flushes. I have been having a very hard time lately. I am not sure why, since I had a hysterectomy in December 2010. Since the after the surgery, I started to experience menopause…
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New clinical trial for advanced or abdominal/pelvic recurrent UPSC
https://clinicaltrials.gov/ct2/show/NCT04030000 This trial will be opening soon. It's open label. It will utilize intraperitoneal chemo combined with radiation, in a protocol similar to what is done for serous ovarian cancer. It appears that the oncologist running this is in Manhasset, on Long Island, in Nassau County. I…
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Adjuvant Chemoradiotherapy Superior to Radiotherapy Alone in Women With High-Risk Endometrial Cancer
Link to a detailed PDF: https://www.thelancet.com/action/showPdf?pii=S1470-2045(19)30395-X TAKE-HOME MESSAGE * This post hoc survival analysis of a phase III trial was designed to compare outcomes following treatment with adjuvant chemoradiotherapy and radiotherapy versus radiotherapy alone among women with high-risk…
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Phase I Clinical Trial
I started my phase I clinical trial a week ago. The trial consists of taking 2 small chemo pills a day and an immunotherapy infusion every 3 weeks. The name of the chemo drug is Cabozantinib (XL 184) and my immunotherapy is anti-B7-H4 antibody. The chemo drug is used for other cancers, including USC I believe, I want to…
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Article on lymphadenectomy
This is a link to a good recent article on the deicsion to perform lymphadenectomy for endometrial cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6189438/
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Medicare Advantage and Step Therapy for Part B Drugs
I'm looking forward to signing up for Medicare next year as I reach 65. Since I was born one year too late to get a Plan F Medicare supplement policy, I expect to select a Plan G supplement policy. While I prefer the flexibility of a Medicare supplement plan, others also nearing 65 may also be considering a Medicare…
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Fruit paste for constipation
I am an RN and I worked in a family pracitce office for the last few years. Constipation was one of the things I advised patients about. This is a recipe I copied from another office. The patients told me is was really effective. It's worth a try and they said it tastes good too. Fruit Paste Recipe 8 oz dried prunes 8 oz…
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Treatment 1 Done...thanks to u all getting me through it!
I can't thank you all for helping me get through my first treatment! Thanks to all your support and encouragement as well as what to expect I was able to walk in the Center and receive my treatment. Not to say there wasn't many tears out in the parking lot. And a plea with my husband to take me to the ocean and not inside.…
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endometrial cancer 3c
I was diagnosed with 3C1 grade 1 in January 2018 and it was highly recommended that I do both chemo and radiation. I chose to do only the 6 rounds of chemo. Chemo was completed end of May 2018. I am currently in remission. If you had a similar diagnosis - What did you decide to do for chemo/radiation treatment after…
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tumor pain
Recently (about 4 months) I have been having pain from tumors growing and pressing on nerves, pulling on muscles, etc. Most of my tumors are in my abdomen. This has interfered with me be able to be as physically active as I would like to be sometimes. I've been taking percocet which has helped with the stabbing burning…