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FDA: Robotic surgery "unapproved" for cancer
I'd posted a link to some research published last fall that cast doubt on the wisdom of robotic hysterectomy from a cancer spread / survival length point of view. I think that link got lost in the hacking/crashi this site had a few weeks back. But apparently the FDA had similar concerns about that research: "Patients and…
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I declined last dose of Taxol due to beginning of neuropathy in feet
Saw my oncologist today before 6th round of carbo/taxol/herceptin tomorrow. Based upon the beginnings of neuropathy in my feet, and my fear that it would get a lot worse with a subsequent dose of taxol, I had to choose between full dose taxol, 60% dose of taxol, or no taxol. I chose no taxol. I'm pretty worried, because so…
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Recurrence stories
Ladies, Without a major symptom, how does one discover that they recur? Those of you who have recurred, how did you discover it? CT, PET, physical symptoms? Bleeding? Other? How soon after your last treatment did you recur? I am curious because of the very different opinions about scans that we get from our medical teams.…
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Colonoscapy questions
Hey every one, Just need to give a little update. I went and saw my radiation doctor today for my check up. For those that dont know its been a few months past two years since i finished treatment. Ive been NED since. He says everything looks good. He gave me a pelvic exam and looked over my cat scan i had last november.…
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Microscopic Colitis (aka not all that runs is radiation)
We have lots of symptoms we have to live with after treatment, and doctors don't always get it or believe it's treatment related, or sometimes don't believe or suspect that it *isn't* treatment related. I found this guideline from the UK (so not all tests translate to the USA or other countries), but I thought it was so…
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Catheterizing
After having a radical hysterectomy 2//2/18 & 25 external radiations I’m left with a weak urethra and a poorly compliant bladder. I have constant leakage After seeing my urogynocologist recommended Botox injections to my bladder and collagen injections to my urethra which would mean catheterizeing 5/6 times a day The…
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Anyone who had chemo AND external beam? Long term side effects?
I'm having trouble making a decision between vag brachy and external beam to pelvis. I have UPSC/clear cell, which was in the upper end of the uterus and isolated cells found in one of two sentinel nodes. Wash and omental biopsy negative, no gross evidence of disease, no other nodes sampled. I was originally read as a Ia,…
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Making decisions
If you are reading this, you have all had to make decisions about your doctors, your treatments, etc. I have made a decision and if any of you want to chime in, you are welcome - good or bad. As many of you know, I am 79 years old(April), have had BC in 1997; uterine, 2017: recurrance,2018. Because of the recurrance I had…
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What was your Ca-125 by the end of chemo?
I'm about to have round 6 of carbo/taxol/herceptin next week. My Ca-125 was I think in the single digits a few years ago, was about 35 at the time of diagnosis with UPSC/clear cell stage Ia with isolated cells in a sentinel node, or a IIIc1 if they read that node as positive. It went up further after surgery in early…
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Foods to eat during chemo
Staring chemo soon and was wonderful about others experience with foods that can be tolerated. I know we are all different but need some suggestions .
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New to the sisterhood
Hello to all you brave women. I was diagnosed in December 2019 with endometrial cancer . Had my surgery on January 16th had a robotic complete hysterectomy. Cancer confined to uterus and slightly into cervix. All lympnodes tested were negative. Pelvic wash negative. Stage 2 Serous carcinomais the reason…
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feeling hopeful
Sharing a hopeful thing. I finished my last round of chemo this past Friday. Still recovering from that, but this time I can keep on recovering, my treatments were 3 weeks apart. Funny that the thing I am most excited about right now is that I do not have to go for weekly blood tests anymore! WooHoo! I have a check up in 3…
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DFCI Newsletter
Just thought I'd share some interesting articles from Dana Farber's newletter I found interesting. https://blog.dana-farber.org/insight/2019/02/can-immunotherapy-be-combined-with-chemotherapy-to-fight-cancer/?utm_source=newsletter&utm_medium=email&utm_content=Can immunotherapy be combined with chemotherapy to fight…
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I was approved for disability on the first try.
I cannot find the old thread, but I was approved for disability. My old profile was deleted in the recent website crash, and I cannot figure out how to load a new one. I have UPSC/clear cell, initially staged as Ia, but I also had isolated tumor cells in one of the two sentinel nodes that they sampled, and was restaged as…
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Having a bad day
So I haven't posted in a while. Honestly, Im having a pity party and have no one to attend it with me today. I actually feel a little guilty. So many of you have been through so much with the disease and side effects of treatment. Unitl now honestly, I felt like I was pretty much skating through. Radiation I had a little…
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Benefits of lemon and lemon oil for cancer
I decided to post a new thread after reading some of the older comments on lemons as well as some of the new ones. Let me say congratulations to bea-mil on your nine year anniversary. I am very happy for your success. For those that know my story, I was healed from metastatic cancer using integrative oncology, a…
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Oncologist offering reduce dose of Taxol for 6th round because of neuropathy foot
I posted about this earlier, that I had developed a little bit of neuropathy in my left foot after 5th round of carbo/taxol/herceptin. I have some numbness on the bottom of the ball of my foot, and one night had 3 sharp stabbing sensations in my big toe over about a ten minute period of time, none since. My oncologist is…
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9 years
Hi every one, just “stopping by“ to say hello and let you know that I’m doing fine. It’s going to be 9 years since my surgery. Cancer is still in my mind but hopefully it’s gone from my body forever. Wishing you all the best.
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Sort of good news
Ok so the PET scan report was released to my patient portal and the little beasts are responding to the everolimus. Still have some active disease in the lungs but the other lesions in my bones, lymph nodes have less FDG SUV uptake thingy!! There was no discussion of activity in my ribs and some other bone areas so I take…
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My Recurrence Story
Although I still visit this site, I haven't posted much because I didn't feel that I had a lot to add since my Gyne-Oncologist said that my "garden variety" cancer was caught early and I wouldn't need to have further treatment other than surgery. That was October 2014. Today, I met with my new Gyne-Oncologist (this was…
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Integrative Cancer Doctor in Los Angeles area?
Hello everyone. Does anyone know of a good integrative cancer doctor in the LA or surrounding area? My mother is currently in remission and want to keep her immune system strong as well as help her recover from the chemo and radiation she had last year. Thank you for any recommendations!
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Waiting biopsy results
I am 9 days post hysteroscopy and I am waiting for my biopsy results. It's the start of a 3-day weekend which means I probably won't learn anything until Tuesday at the earliest. I have researched that based on my symptoms I probably have a 10 to 15% chance of being diagnosed with endometrial cancer. I also know that that…
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Happy Galentines Day!
Sending a lot of love to the group of gals who understand me better than anyone in my life. I can't thank you enough for all the support, information and friendship. I'm really scattered right now and haven't been able to keep up with the board for weeks, but I think of all of you daily and I'll be back as soon as I catch…
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Interesting article on immunotherapy side effects
https://blog.aacr.org/what-are-the-side-effects-of-immunotherapies-and-how-do-they-arise/?utm_source=social&utm_medium=linkedin&utm_campaign=blog&utm_content=Immunotherapies&sf98732065=1
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Lymphedema
This probably is a stupid question, but how do I know if I have Lymphedema ? I have gained a little weight lately and now my legs are feeling weird and I feel they are getting larger especially the thighs . My legs just don’t feel right. It almost feels like my neuropathy is moving up my legs. I’m out of town for two weeks…
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Second opinion
I went ahead and had a second opinion yesterday with a medical gyn onc at the other major medical center in town. Before the visit, she reviewed all my records and also went over my scans with the radiologist at her institution. She felt that it would be reasonable to do a post treatment CT sacan, and then scans every 6…
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What would you do?
Thank you I realise this is not the place to post this.
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What does neuropathy feel like? Could this be it?
Zsazsa the Ice Queen needs to know if this could be the beginnings of neuropathy. I had treatment 5 of Carbo/Taxol/Herceptin a little over a week ago. About 16 yrs ago, I had a nerve taken out of my left foot, between the 3rd and 4th toes, because I had a chronically inflamed neuroma from compression. After the 4th…
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CT done today
I've been having problems since December. I had diarrhea a number of times. I ended up in the ER one night a few days before Christmas. I had several bouts of diarrhea and my heart started beating fast and my BP went up. The ER gave me fluids and I felt a little better, but the diarrhea came back a week or two later. I…
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Restoration of Lost Posts
I've restored as much of the content from the posts that were lost during the CSN data outage from 10/29/18 to 1/30/19 as I was able to find online in cached web pages. In some instances, I added the content to topics that existed before the data loss, but in most cases I created new discussion threads. I included the user…