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Chemo Resistant - Help!
I concluded six rounds of chemo three weeks ago and had a CT scan on Tuesday, prior to starting radiation. Today I got some devastating news: the chemo (carboplatin and taxol) didn't work. I had a radical hysterectomy in late November, followed by 6 rounds chemo, for Stage III Grade 3 undifferentited endometrial carcinoma.…
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CA 19-9... UPSC?
My mother has UPSC recurrence metastasized to the lung, bones, adrenal glands and peritoneum. She has been through 5 cycles of platinum (Carbo, Taxol, Avastin). Although her CA-125 marker is now within normal range, but CA19-9 is increasing. To be factual: the CA19-9 increased after the first cycle to peak at 2900,…
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Update - Continued Good News regarding Reoccurrence
Hi Ladies: Just wanted to let all of you Ladies know that my CA 125 level is now down to 26 which is within the "NORMAL" range. I am really very happy about this number as it is Normal finally after several months of the level being elevated. Also, I had an ultrasound done last week and there is a small amount of fluid…
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Waiting and Worried
Yesterday I had an extremely painful saline infused u/s. The gyn found a polyp and took a sample to send out for testing (results take a week to come back). As a breast cancer survivor (celebrated 2 years in January, lumpectomy and 35 treatments of radiation) and someone who has had gynecological issues for at least 6…
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Genomic Testing Results and Treatment for Recurrence
Had my follow up appointment with the GYN Onco yesterday. She also had the results from Foundation One (genomic testing). The testing shows that my tumor has 7 genomic mutations:PIK3CA, NOTCH3, PPP2R1a, SRC, TP53, Microsatellite status, and a low tumor burden. There are 2 therapies are associated with potential (potential…
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UPSC - Avastin for maintenance program despite some CA markers?
Ladies, I hope you're keeping well. Mum (stage iv recurrence of UPSC) will complete her 6th cycle of Taxol, Carboplatin, Avastin soon. Her CA-125 was normal but her last CA19-9 reading was 1700 (having reduced from 2800). She has some neuropathy kicking in, though it improves by third week after chemo. Onco is suggesting…
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Trivial - socks
I know this is a trivial subject - but maybe a small break from the life altering things that we face is OK. Do you wear socks when you go for your internal exam? With all the other parts of me that are "in his face" - I hate to put my feet there too. But is it just as silly to have nothing on but socks? What am I trying…