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I may have a problem
Need some info. Just had my 4 year checkup for UPSC. All seems well, ca125 is 15.8 down 2 points. Had to see an Internal dr. for DEXA scan. Ok, nothing scheduled as of today{I went in May 14}. Reading his report today he wants to order a thyroid ultrasound because of "a rubbery thyroid and a suspicious node on the…
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Marker continues to rise
Went to the doctor this week. My CA 125 went from 905 to 1441. I was hoping for less than 1200. I continue to feel good and have no symptoms. The doctor was not concerned about the number. He said he has seen the number go to 100,000 on some people before they need treatment. He talked about when the number doubles, that…
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Need some advice...UPSC STAGE IIIC
My mother was diagnosed with UPSC stage 3c in august of 2013. She had 6 rounds of chemo and then radiation. By the end of radiation treatments (March 2014) she started to complain of neckaches. She put it off thinking that she would wait until her radiation was over to see a chiropractor. The neckache continued after…
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Need some advice...UPSC STAGE IIIC
My mother was diagnosed with UPSC stage 3c in august of 2013. She had 6 rounds of chemo and then radiation. By the end of radiation treatments (March 2014) she started to complain of neckaches. She put it off thinking that she would wait until her radiation was over to see a chiropractor. The neckache continued after…
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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To my Amazing Sisters on this site!
I received this poem today and had to share it with all of you amazing women. SISTERS Time passes.....Life happens......Distance separates......Children grow up...... Jobs come and go. Love waxes and wanes. Men don"t do what they're supposed to do...... Hearts break. Parents die. Colleagues forget favors. Careers end...…
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CA 125 test
Hi , Ladies, I finished 6 cycles of Taxol/Carboplatin in March, 2014 for stage 3A UPSC and am currently NED. I would like to know how often the ladies diagnosed with stage 3/4 , grade 3 cancer have had the CA 125 test done. If there is one thing I have learned in this cancer journey I never asked to go on is that I must…
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Uterine Carcinosarcoma
Hi - I am new to the boards. My mom was recently diagnosed with Uterine Carcinosarcoma Stage 3. She had a hysterectomy in November 2013 and started carbo/taxol chemo in early 2014. CT scans showed a golf ball size tumor and small nodules on her lungs, so her cancer is considered Platinum resistant and she is now on a…
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Avastin
Anyone have this for recurrence? My good friend with UPSC has a recurrence again and her oncologist is treating her with Avastin this time. If any sign of continued growth, he will refer her to someone in San Francisco (UCSF I think). I'm just curious what you all may know about Avastin for uterine cancer. She said onc…
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JAN I SAW YOUR MESSAGE TO CLAUDIA!!!!!!!!
i THINK OF YOU ALL THE TIME. GLAD YOU ARE ALRIGHT. JUNE
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On the moving walkway...where will this ride go...
I am so thankful for you gals. In the educating myself mode...had a little emergency visit yesterday to my gyn for abnormal bleeding...I'm Almost 58, post menopausal. Had the sono and biopsy...now awaiting. 7 to 10 days! Ohhhh Lordy! And today...hum, have that symptom...that one too....now that I think about it all. When I…
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Immunotherapy
I'm hearing a lot about this for other cancers, and it really sounds impressive. I don't think anyone is developing an immunotherapy for uterince cancer, though. Has anyone heard anything? Frank
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Prayers Answered
Todays' check up marked 4 years after finishing chemotheropy that I am still Ned! A calmness came over me this time that I have NEVER felt. Thanks to ALL of you, for bringing me back from the edge soooo many time, and for helping me to get over the anger, depression, and fear. Just wish I'd found you all in '09 instead of…
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Happy Mother's Day
Happy Mother's Day to all the lovely ladies here who have helped me with this journey. Thanks for being you and I am sorry we met this way but I am so very thankful that something good has come out of this nightmare - all of you!
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Please interped this
The pathology showed UPSC involving the surfice glands and stoma of an endromentrial polp and surrounding endrometrial invading 0.5/5mm of a 5 mm thick myomentrum. Carsonoma did extend to endocervical glands. Biladeral tubes, overies, and omentrum were negitave as was adominal wash. Thought I was sure about this, but…
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Morcellation
I read the FDA is warning not to use Morcellation during a hysterectomy for treatment of fibroid tumors. The reason is it may spread hidden uterine cancer. Very interesting
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Pictures uploaded to my profile from the Buzz Off event
Pictures were uploaded from the Buzz Off event here in Dallas Texas on May 4th 2014.
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New member/ Neuropathy
Hello everyone, I just shared some news regarding Neuropathy & shoes on the Ovarian Board. I have been reading the blogs for 4 years now but have not joined until now. Quick update, April 1, 2010, awoke to bleeding after 10 years menopausal. It was Easter weekend & could not get appointment until following Monday. On Mon.…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…