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Uterine Cancer

Archives for February 2014

Just one more chemo cycle to go!
I am so glad that I joined the cancer survivor network as the members have been informative, caring, and supportive. Thank you Hybridspirits, Dee5678, Kaleena (Kathy) and Ro10 for you responses to my very first post this week. I finished chemo #5 and have only one more to go in three weeks. Hurray! As you can imagine, I…
Clear cell endometrial cancer found during hysterectomy
Hi everyone. So glad to have found this forum. I just turned 46 and had a complete abdominal hysterectomy two week ago today, to remove a large benign tumor and a fibroid. Unfortunately, some very rare clear cell endometrial cancer was found. The surgeon explained that she removed everything that she saw, and did some…
Looking for info
Hi all, My wife was diagnosed with Stage 4 uterine cancer in 2008. She had a hysterectomy and chemo and was cancer free up until last August, where the last scan the onc planned on giving her showed that the cancer had spread to her stomach. There was also a spot on her liver and fluid around the lung. The onc saw estrogen…
UPSC Diagnosis
I have been reading the postings here for the last couple of months and have found the information very useful. Thank you! It has helped me cope with a terrible diagnosis. I was diagnosed in November, 2013, with UPSC, Stage 3A following a hysterectomy and removal of my fallopian tubes, ovaries and lympth nodes. UPSC is a…
UPSC uterine cancer and my mom. Her story.
Hi everyone I hope this finds everyone in good health and spirits. I am writing with the hopes that the experience that my mom and I have gone through with this cancer and its therapies can help others in some way. My moms experience may be able to help others make decicions regarding treatment or to serve as a case study…
Type 1 AND Type 2
Hi. I had a D&C in Dec 2013 because of heavy bleeding and pain and the pathology report showed both Type 1 and Type 2 (UPSC) uterine cancer. I had a radical hysterectomy in January which staged my cancer as Stage 1B. The tumor was grade 1 endemetroid (sp?) embedded deep into the uterine wall but the hysterectomy also…
Someone needs to slap me!
This is just stupid! With all the pain and suffering in this world, the injustice,sickness, the dying and here I sit at almost two in the morning bawling like a baby, great hiccuping sobs because my dog got hit and killed by a car! What in the world is wrong with me when there are CHILDREN dying of everything and I crying…
Any docs or cancer centers that specialize in rare Uterine cancers e.g. USPC, clear cell, MMMT
Hello everyone. I haven't started treatment yet for Uterine Serous Papillary Carcinoma but am thinking ahead. I wonder if any doctors or cancer centers have a niche in this? Does anyone know if there are USPC specialists out there? I know the generally accepted advice is to seek a second opinion from an NCI-designated…
Just Curious ...... Were you diagnosed while on tomoxafen
I'm just curious as to how many of you have been diagnosed with uterine cancer while taking the drug tomoxafen. If you were ...... did you have any of the symptoms such as bleeding, pain in the pelvic region, etc. I'm scheduled for my third D&C within two years and am on the drug. Apparently this time is thicker than…
Completed sandwich therapy
I have completed my chemo,28 external radiation treatments,3 internal radiation treatments and second round of chemo,CT scan 3 weeks after last chemo treatment showed new lymphnode involvement in the pelvis,a troubling area in the pelvis that looks different that 1st CT scan (which was negative) and fluid in the…
NED after 3 month check up!
Hi everyone - I hope you are all having a good weekend. Just thought I would share that my mom had her first 3 month check up and she is still NED! Her CA-125 went down a little and is still well within the normal range. All her test results were good and her treatment team was really happy with how everything looked. We…
Hi All, polyp, horrible symptoms surgery in March
I have been reading some of your posts and I think you are all very strong. I haven't been diagnosed yet so I wasn't going to post but I need someone to talk to. Three years ago, I was told I had a fibroid, the only symptom was heavy bleeding. The bleeding got worse and pain accompanied it. I let it go for three years…
New - just getting started here & with Cancer
Hi I have been lurking for a few days. Scared and not really sure what to ask. There is so much I don't know and some I don't want to know. I was diagnosed w Uterine cander thru a biopsy on 1/24. CT scan before surgery showed no evidence of cancer outside the uterus. Gyn/onc even drew :-)) a smile on the e-mail he sent. I…
Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
Help confused and scared. With complicated case, massive pain and no answers.
.I have had a light dull lower back ache for about 4 months now that increased in pain a bit toward the end of december. A month ago I wound up in the ER, treated for what they said they didnt think was but had no other explaination for a UTI, The next night back to the Er the pain so bad I could not stand and a CT Scan…
New Here -Just Diagnosed
Hello! I am 46 and have been post menopausal for about 2 years. 3 weeks ago I was diagnosed with uterine cancer from a endometrial biopsy. I have had off and on spotting for a little over a year, whichi I wrote off to part of menopause, and then my primary doctor wrote it off as "probably a small fibroid or something".…
dr visit 2 1/2years Ned
Just came from my Dr appt. I was told that all test show NED. It has been 2 1/2 years since last chemo treatment so dr said shw would see me ::) n six m ok nths. Yeah! No more every 3months. Just need to get the hernia fixed. Working on that. I have been waiting for this day. Trish
newly dignosed mixed endometrioid and mucinous types g1
Hi, I was newly diagnosed in January. I will see the oncologist Friday. I have had spotting and discharge for months. But I didn't do anything because I thought it was due to my perimenopause. How were you staged, after the surgery or through CT or MRI? What tests or procedures you anticipate I am going to have? After the…
49, no symptoms, abnormal pap, D&C polyp result positive - what should I ask my gyn oncologist at vi
Hello everyone. So happy to have found this forum. I know you be such a valuable resource and support for me. My main reason for posting is that I want to know what to ask my gyn onc when I see him this week, pre hysterectomy. What would be helpful for me to know at this early stage? I know he did blood work when I went in…
Has this happened to anyone with UPSC
Hi Ladies, I have USPC. I had surgery and treatment in 2011 and have been NED since then. I have not posted in while. My husband recently passed away from melanoma and I have been having a rough time of things. I went to my GYN for a pap a week ago. I had a message on my answering machine tonight to call his office. I knew…

Uterine Cancer

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