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ROLL CALL - borrowing from our Ovarian sisters!
Fellow warriors! Let's check-in on eachother! Give us a brief "hello" and how are you doing for all newbies and long-time (I know you ladies are out there) warriors. I'll start: DX: April 2012 - UPSC, Stage 1A Finsished Chemo/radiation/chemo treatment December 19 2012 Doing and feeling great. Thank you all for your support.
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As my cancer journey unfolds.....
Few weeks back a lymph node was found on my neck, and gave it a few days to see if it would change...got a bit smaller, but still uncomfortable to the touch. Called GYN oncologist whom suggested I see my PCP, whom didn't think it was thyroid. From there I was directed to another specialist, ENT (ear, nose & throat) doc…
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Anyone with UPSC Stage 1A who chose not to have Chemo?
Hi! I was recently diagnosed with UPSC and am 4 weeks post radical hysterectomy. My pre-op CTs were negative as we're all the lymph nodes, and other biopsies done at surgery. I had had a D&C and polyp removal 1 month prior to hysterectomy which established the diagnosis. Originally my surgeon interpreted the research for…
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Anyone with UPSC Stage 1A who chose not to have Chemo?
Hi! I was recently diagnosed with UPSC and am 4 weeks post radical hysterectomy. My pre-op CTs were negative as we're all the lymph nodes, and other biopsies done at surgery. I had had a D&C and polyp removal 1 month prior to hysterectomy which established the diagnosis. Originally my surgeon interpreted the research for…
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probably over-reacting
I had hysterectomy in October 2010. have had spotting every couple of months since May 2011.also lower back pain - just like I used to get during my period. I eat an Advil just about every day for this. MRI and ultrasound and colposcopy say no cancer, but a hernia. I feel like my abdomen is getting bigger and buigger and I…
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Mom with Stage IV Endometrial Cancer... lost.. help
My name is Brandon. We were just told by my Mom's doctor yesterday that after stanford had examined her lab work, she has stage IV Endometrial cancer. A very large tumor that is in her abdomen. She had to have stints in her kidneys and a colostomy bad set up. She is at home now. The doctor was very negative and said she…
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Blood work
I am about to have some blood work, but I would like to ask my doctor to add some extra ones. Does anyone have any advice as to what type of blood work I should get done besides CMP, CBC, CA125, anf Glucoses? I want to have my cholesterol checked as well, lipid panel. Last time, my glucoses were with range but on the high…
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Dr Appt privacy
My UPSC post-surgery & treatment discussion is in a few days. I have wonderful friends who insist on one of them going with me. I know they mean well, but I really want to do this by myself. I want time to digest the info & make m own decisions. I think I'm being calm and rational about all this, and plan to ask a lot of…
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My mom got very good news
Hi everyone - just thought I would share my mom's recent good news with you. She went for her 4th chemo treatment on Wednesday and got her latest CA-125 results and it was 16! We know this is just a step forward in her battle but she was diagnosed in April and after her surgery the pathology results showed stage 4b grade 4…
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Just diagnosed and have the blues?
Just diagnosed with A1 typical complex - uterus and cervix coming out next week. But why am I all of the sudden in tears and extremely sad. This is not like me at all. I can take anyhting that comes my way. I am the rock of the family and community. Never felt this before. A severe cloud gloomy hovering - heavy on the…
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My mom
So we had our first onc apt yesterday to plan out the chemo and go over histopath.. So the justo path revealed all serous tumor however on the original biopsy they saw sarcoma cells, so they are calling it a carcinosarcoma although the histopath from surgery revealed all serous. They want to do 6 rounds of iphos + taxol.…
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Two year anniversary, so doing the happy dance with NED!
Today is the two year mark from the last chemo treatment and still NED. Doing a Happy Dance all day! I cannot keep from smiling, it will make people wonder what I am up too! Have a great day everyone and know that I am praying for everyone on this site along with their families and friends. Trish
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Brain Mets for my mom. Help
Hi all. I hope each and every one of you are doing great. Me? Not so much. My mom was diagnosed with stage 3C uterine UPSC about a year ago. She has undergone a radical hysterectomy as well as aggressive chemo and radiation. All was okay and she seemed to be doing great until today. She went to the emergency room because…
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para-aortic lymph node on ct question?
I was just looking back at my last ct scan, and see that the radiologist noted scattered para-aortic or it might have been peri-aortic lymph nodes. Would that note suggest anything, there is no size given, just saids scattered? Thanks for any insight!!
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gyn/onc and what to do...help please
Hi everyone, this is my first post to CSN In April 2010, at 39, i had a hysterectomy done by my gyn, not a gyn/onc. The endometrial tumor was rather large at 10x5 cm, and was a grade 2, with a nuclear cell of 2-3. I not only had no lymph nodes taken but also had no "experienced eyes". The gyn/onc i was referred to, i…
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codes
Would anyone know the medical code numbers for the BRCA 1 and BRCA 2 genetic testing and if Medicare will pay for the tests? Thanks, Debra
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Uterus Cancer
I went to a fertility doctor to see why I was not getting pregnant. It turned out that I had fibroids in my uterus that didn't provide enough space for a baby to grow. I had two surgeries last year and the first biopsy came back with pre cancer cells which were treated with a hormone steroid. Second surgery showed no sign…
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stent question
My mother had surgery for USPC 2 weeks ago (clear PET scan; after surgery doc said stage 1, then said, "Well, technically stage 2 since pathologist saw microscopic cells in cervix"...all else was "clear"...nothing in lymph, abdomen, omentum, and so on). She is preparing for sandwich therapy, and the home health nurse…
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My mom -uterine serous
My mom had surgery today, she has uterine serous with omental and umbilical spread. He was able to get diseased tissue out, ofcourse this ups her stage to 4. Has anyone seen a good outcome with this type of scenario, chemo starts in 2 wks..
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MMMT Recurrence
My 77 yr old mother felt a mass in her abdomen in 2011 and was told after gyn exams by gyn and gyn onc that it was likely cancer. After surgery in June 2011, dx was MMMT. Taxol/carbo was started in Aug 2011, but had to be changed to doxci/carbo due to poor tolerance/ bad rxn to taxol after the 1st round. Mama had a total…
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CT Results
After the rise in my CA125, so very little, and the ground glass haze on my lung, we did a chest CT. Spoke with docs RN today and she told me the ground glass is still there, with NO change....yahoo! Do find a "few" PULMONARY NODULES" very small in size. The radiologist report shows notes -- "appears to be scarring or…