Uterine Cancer
Discussion List
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Relay for Life - Texas
I am doing the Relay for Life again this year. I thought I would add the new names from May 2012 till now on my Lumaniria Bag for the Survivors. I had no idea how many have joined. This is really sad that so many more women have been DX with this disease and still we get no research money. I may do two different bags…
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hysterectomy, pelvic radiation sexual side effects?
Dear all ~ My partner Michelle was diagnosed a month ago with uterine carcinosarcoma/MMMT. It's been a rough journey, and only this week is she slated to begin radiation treatments after a planned surgery was cancelled at the last minute. (The tumor has gotten too big to safely perform a hysterectomy, according to her…
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Test Results...Waiting on a call back
So this is what my Dr. sent me...I am waiting for a phone call from her (we were playing phone tag yesterday)...I recently had an endometrial biopsy which was negative...this is my ultrasound results... Findings: The uterus is normal in size measuring 9.6 x 4.1 x 5.4 cm and the endometrial stripe is uniform in thickness…
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Oncology Doctor
Gosh been awhile since I posted, this has burned me emotionally... Since 2009 I have been battling uterine Cancer. I go into remission then it comes back in one form or another so it seems. On the advice of my present Oncologist she wanted me to get second opinion. I agreed to go to the Nebraska Medical Centre in Omaha ( I…
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Still Going Strong
I haven't posted for too long, so I thought I would update. I was diagnosed with uterian cancer in fall of 2009 and had a da Vinci hysterectomy removing everything in Jan 2010 and the cancer was only in my uterus lining, so no chemo. I didn't have the aggressive kind, just adenocarcenoma, and the lowest stage, etc. They…
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Tamoxifen?
Hi there, any of you fabulous ladies taking tamoxifen at time of diagnosis?
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VERY SCARED
I HAD UTERINE CANCER 3 YEARS AGO. ON 4/1/13 WENT FOR REGULAR MAMMOGRAM FEW DAYS LATER RECEIVED A CALL FROM THE DOCTOR TELLING ME TO GO DO SOME MORE PICS OF MY LEFT BREAST AND SONOGRAM ON BOTH. I HAD BOTH TODAY. I READ MY REPORT FROM 4/1 STATING THAT I HAVE FOCAL NODULAR ASYMMETRY. DOES IT MEAN THAT I HAVE BREAST CANCER…
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Just diagnosed with UPSC-- advice
Hi, I have had tumor removal and and then a hysterectomy 2 days ago. I'm recuperating at home now until my appointment next week to get the pathology results from the surgery. That will determine the type and number of treatments. I just lost my husband yo pancreatic cancer last May, so I know much about the port and…
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Scared and waiting for results...... is it normal to schedule surgery before lab results come back?
I am 45. I went through menopause in my early 30's and have been on hormone replacement therapy ever since. I've also had an ablation, and went through a period of years where I didn't have any periods at all. For the last 3 or 4 years I've been getting estrogen and testosterone via pellets in my hip (while simultaneously…
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Thanks to all Uterine Carcinosarcoma,MMMT people that have posted on here!
Wanted to say thank you to all of you for sharing your experiences about this rare a cancer. I was diagnosed with Mmmt May 2011, after postmenapausal bleeding at 54.I was stage 1A,they did a hysterectomy removing ovaries,tubes,etc.I also had radiation treatment,but was told no chemotherapy needed.At the time I questioned…
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Undifferentiated carcinoma
Hi, My mother (65) was diagnosed on 14/02/13 and the histopathology report states: "I think it is a Undifferentiated carcinoma. The EUA and the imaging suggest that this is a uterine carcinoma". The Oncologist has not given me a grade or stage despite me asking several times (in writting). I can guess from reading the CT…
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Caregiving
I am the caregiver for my developmentally challenged sister. She has been diagnosed with uterine cancer, which spread to lymph nodes ( not sure what stage that is). Treatment is full hysterectomy, low-dose chemotherapy and radiation, for five weeks, with an "option" of high-dose chemo for 6 months. What can she expect in…
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break from chemo?
Had 7 weekly Taxols at 1st was easy, then progressively more fatigue, etc past week bedridden, abdominal bloating and gas, general misery Not doing any more until CT scan May 6 shows if it is working or not my question: If a person is not NED, is it normal to take a break from chemo....a month? 2 months? I want to get some…
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OMG Brain mets!
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OMG Brain mets!
What a crazy day I had, I had brain MRI by 11:30. At 2:30 my nurse calls with bad news that I have multiple brain mets and by 3:15 I had emergency appointment with the radiologist, got fitted with helmet, and I will start whole brain radiation tomorrow! I actually went to work after all this (I have small clinical social…
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did anyone else get this email?
I received this privabe email today, has anyone else? Dear friend, Compliments of the day to you! By this e-mail, I do sincerely apologize for my intrusion of your privacy. However, I have a serious concern with which I believe you might be of help and for this reason, I cannot but reach out to someone. My name is, Mrs…
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Update. Ca125 dropping :)
Hi Friends, my ca125 is down to 374 from nearly 900. I will continue weekly chemo. I've also been referred tests tests to rule out brain & heart problems. I'll get these in next week and keep you posted. I'm still very weak which docs say is from dealing with chemo and problems since Sept. my blood work has been pretty…
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Mom w/ Stage 3C Uterine Serous Carcinoma recently finished treatment.
My incredible mother was diagnosed with Stage 3C Uterine Serous Carcinoma back in September. She underwent a radical hysterectomy, had 3 brachytherapy treatments and 6 rounds of chemotherapy. She was treated at Memorial Sloan-Kettering, which was the right choice for us. I made a video for my mom's birthday...she loved it.…
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Post Menopause Fibroids and Polyp
I went through menopause 4 years ago at age 57. Since then I have had normal pap smears, normal pelvic exams and have never shed a drop of blood. This year at my regular check my doctor said I had a uterine mass and sent me for an abdominal and transvaginal ultrasound. We got the results....fluid and polyp in uterine…
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Question, don't know where to begin....
My sister in law is 46. Two years ago she was diagnosed with stage 2 uterine cancer. I don't have many details as to the type etc. All i kow is they did a hysterectomy and no treatment. She had scans every three months and was all clear. 1 1/2 later she had alot of pain so they did a scan, the prior was four months before…
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Waiting on Results
First, thank you all for sharing on this site as it's aready been so helpful. So far my story sounds very similar to others which is comforting to know what I've been dealing with is pretty 'normal'. I'm almost 45 and starting having irregular periods and chalked it up to peri-menopause. Then about 3 weeks ago I got…
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Endometrial ca with lung mets
Hi My mom had adenocarcinoma of cervix stage 2 in 2008.She was treated with radiation and cisplatin.They also did a total hysterectomy.Took out ovaries and lymph nodes too.2 months ago they found large lesions- 10cm and 8 cm on the right and left lung.No pleural effusion.The biopsy suggests endometrial carcinoma with lung…
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third clear scan in a row!
Dear everyone, On Monday morning I had my 7th CT scan, and I learned late that afternoon that I am still in remission. No sign of disease, and my CA-125 remains stable at about 9.6. Whoo-hoo! I feel very lucky indeed. The most interesting part of the process this time is that when I was in the scanner (with my healing…
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HELP Mom has Uterine Cancer and no insurance
Hello everyone my name is Fred Garcia i am new to this so i hope i do this correctly. Just yesterday my Mother told me and my brother that she has stage 1 uterine cancer. Naturally we were shocked at first but then we started to think how we would beat this. I know that there has to be some kind of help or organizations…
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libia swelling after a radical hysto
i am 6 post op from having a radical hysto, i had ligements and lymphnodes removed as well as all my female organs. now only one side of my major libia is very swollen, I called my doctor and they said i may have fluid collection from the lymphs being removed. Anyone else have something similar and what can I do. I am…
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Da Vinci
Interesting article about DaVinci robotic surgery: http://www.contracostatimes.com/business/ci_22987391/intuitive-surgicals-da-vinci-medical-robot-scrutinized-deaths
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heavy bleeding from vaginal tear
Two years this month since diagnosed with UPSC and I just had a huge scare. After using the dialator I began to bleed terribly. It wouldn't stop and I immediately called the doctor. Long story, but ended up being rushed to the cancer center. I was treated with silver nitrate to stop the bleeding and had to stay there for…
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New Insurance -- Get Ready
I'm on another message board for cancer and a woman who's a health insurance advocate posted what she has learned about this forthcoming insurance craze. No matter whom I speak with, no one truly knows how this will all pan out, plus betting our gov't doesn't quite know. Now doesn't that make any US citizen feel comforted,…
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Stiletto Sprint
The only fund raising event for Ovarian/Uterine cancer in North Carolina. September 21, 2013.
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First scan after carcinoma sarcoma stage 3C
My sister in law Kelly just had her first scan, she had surgery and 6 rounds of carbo/taxol, no radiation. PET scan shows all clear, the doctor will follow her every 3 months with CA-125, no talk of another scan. We praise God that the scan shows no cancer, she is doing very well, she worked out and walked most days thru…