Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Archives for August 2011

hope for the newbies: re-reading the original surgery report. boy have I come a long way!
today, almost 8 months since I saw my gyn oncologist for the first time, I re-read my surgery report, paying attention to all the details. I feel, boy, have I come a long way! I know my cancer was extensively metastatic at the time of DX, but re-reading this report, it almost sends chills down my spine. Something to the…
UPSC question...........risk factors?
I'm still trying to come to grips with my diagnosis of UPSC. Does anyone know if there is a genetic predisposition to this type of cancer? I can find very little information online. It also looks as if there may be a tendency for women with UPSC to develop breast cancer. I'm having a hard time figuring out how I developed…
Newbie here...Chemo Question
Hi Everyone… On July 2nd, after a biopsy of a large tumor (11x8x7.5 cm) in my uterus I was wrongly diagnosed with Leiomyosarcomas. Four days later I had surgery removing my uterus, ovaries and cervix. No lymph nodes were removed because my doctor did not think it was necessary at the time and I had the impression that it…
waiting for biopsy results
I am touched by each of your posts. I am almost 2 yrs postmen w/ abdominal pain, uterine abnormal growth thought to be fibroid but until recent 2nd episode of postmen bleeding not further investigated. Basically I am traumatized from an unreal biopsy experiance and scared to death waiting for results. My gyn normally no…
anyone have any ideas about how to reverse residual neuropathy?
sisters, i have some neuropathy in my finger tips, toes and balls of my feet. any one have any kind of suggestions that could reverse these? suggestions do not have to be scientifically based, can be anecdotal. thanx, and sisterhood, maggie
Financial setback after cancer treatment
I'm not sure if this is the place to get started on this topic, but you all have become my friends; and I'd rather have your support than the support of strangers. When I was diagnosed with UPSC in March 2008, I stopped working. I am a freelance writer/editor, which for me is very intense work that requires total…
BOOKS AND SUCH
Someone was asking about good books. Could you all (y'all), put your suggestions here so newcomers and those of us on the board for awhile could have suggestions? Thanks Book My first suggestion if you could only read one, would be Foods to Fight Cancer. It is an easy read and explains cancer, all areas of it from…
url for a nice video interview with our Dr. David
http://www.facebook.com/#!/#!/photo.php?fbid=10150252753646044&set=a.10150252753276044.330527.659326043&type=1&theater
Is there such thing as too much non refined/ processed sugar? (sugar from fruits)
I am trying to gain some weight, at the same time I am trying to completely eliminate processed food, sugar, meat, and lactose from my diet. I know almost everything, if not everything, has natural sugar. My concern is the fact that sugar feeds cancer cell, and I also know it is mainly referring to processed sugar, but how…
Endometrial Carcinoma Vs Endometrial Adenocarcinoma
Hello Ladies, What is the difference between these two cancers? Also, I have Endometrial Cancer and if anybody could suggest a few books on Endometrial cancer and also a few books on nutrition that you would highly recommend. I have been checking books on line and there is quite a price range on books both dealing with…
linda, just reqd on ovarian cancer site that high dose vitamin c iv resensitizes cancer to chemo
linda, i thought i'd mention this to you. i think it was tethys who wrote that she spoke to a very well-informed nurse, who participated in a study resensitizing women who have become resistant to chemo. the first line of defense was the high dose vit c! thought i'd let you know. how are you doing now? i know it's been a…
1st chemo ended up in hospital
Is there anyone out there who also has heart problems? On 7/28 went for my 1st (of 6 every 3weeks carbo/taxol) treatment. That was on a Fhursday and it went great. I felt ok and ok Friday until Saturday afternoon then...I know that the worst if side effects comes between 24-72 hrs after chemo day. I takes meds for control…
Estrogen receptor
I talked to my onco last week and asked him the type of cancer cells I had in regard to estrogen reception. I am so concerned about eating soy, since almost everything has it. He said mine was mildly and that I can eat soy but not make it the center of my diet. What do your doctors say?
Biopsy
I've read that when you have a uterine biopsy you will bleed some afterwards and you need a pad. Is this true if you have gone through menopause? Thanks for the help.
CT Scans
USPC-hysterectomy next week. My mom had a CT scan which showed no apparent masses outside of the uterus, which was music to my ears. Her chest x=ray showed a shadow that her doctor thinks may be pneumonia. She had a cough and sore throat a week ago. They are now ordering a CT Scan of her chest to rule this out prior to…
new here UPSC stage 1 or 2 (no lymph node testing)
Hi ladies, I'm new here and been reading about this very scary diagnosis. I was diagnosed with UPSC after a hysterectomy in June. My gyn/onc didn't expect cancer..and my lymph nodes weren't checked. She did do a pelvic wash which was negative, and the tumor invaded less than half of the myometrium. But from what I've been…
Expiration Date
On Tuesday my oncologist told me I will die from my endometrial cancer and it won't be years but months. I'm still trying to process this. I was doing fairly well in February with one slow growing tumor and told I could live with this cancer as a chronic disease for some time. Now my status has changed so dramatically and…
Dairy products or calcium supplements?
I've spent days researching the pros and cons of calcium supplements (specifically, Solgar's calcium citrate with added D3) and calcium from dairy. Neither source seems appealing, particularly to cancer patients; but I nevertheless need to get close to 1500 mg. in my diet. My doctor does not want me to take supplements,…
UPSC Journey Begins
Just curious if anyone was given a prognosis as far as life expectancy based on Grade and Stage?
Megace side effects
Hi, is anyone experiencing bothersome side-effects from Megace? I took it 11 years ago with no problems, but this time (I had a recurrence) I am suffering from shortness of breath, weakness and digestive issues. They did a CT Scan to check for pulmonary embolism, and it was clear. Anyone taking Megace alternative such as…
When do I say something? Any advise?
On Monday I am having a biopsy. It will take 7/10 days for results. Have enlarged uterus, a thick lining, spotting after menopause. Don't know if he thinks I have cancer or just wants to rule it out. My sister died from uterine cancer. My son and husband are cancer survivors. Last year we had to tell him that his dad had…
Less-invasive cancer screenings
I recognize that this report deals with screenings for colon cancer, but I thought it would be of interest to some of you: Study Finds Convenient Fecal Blood Test a Suitable Screen for Colorectal Cancer: http://www.cancernetwork.com/colorectal-cancer/content//10165/1919400
For Upsofloating from Songflower Regarding Gemzar
am taking Gemzar and doing very well on it. I don't know if it's working yet. I read you didn't have premeds. Does that mean you didn't have steroids? What drives me crazy is the steroids and hamster nights and then the crash down. It's hard to do weekly. I'd love to try it without the dexamethasone. Diane
Drinking Red Wine
I just finished chemo and I was wondering about how long I should wait to drink some red wine. I forgot to ask my doctor. I know the liver is overworked during chemo because f the chemicals, so I am concerned about my liver still being pushed by alcohol. Any thoughts?
Too Little Treatment?
I worry I am not getting enough pro-active treatment? I had grade 1, stage 1b (39% invasive) uterine cancer removed via a davinci complete hysterectomy, 16 lymph nodes - negative, pelvic wash was neg as well. No add'l treatment beyond surgery was needed. I know, all pretty good news. However, I am so worried about a…
New to UPSC and Thank God alive
Ladies, I started briefly looking at this site awhile ago, I'm at the end of my treatment. I'm greatfull for the most beautifull, reliable, current, positive, loving, ladies. Thank-you. I'd gone to have a yrly physical in "09" the outcome was anemia which was a first for me, the symptoms of vague bloating, lots of hard to…
Hair regrowth
Hi, I was wondering how many times you probably cut your hair before letting it grow. Mine is growing, but it is very thin. It looks like chick's feathers. I have shaved my head twice, since my hair started to regrow, and I am just about to do it again. What have you guys done in regard to this?
Uterine Clear Cell Adenocarcinoma
I just had an appointment with my onco, last Friday, since I just finished chemo. I forgot to ask him the difference between Uterine Clear Cell Adenocarcinoma and USPC. Does anyone knows? Thank you!
Papillary Serous
My mom's CA125 was 88. I was told 40% of cases of elevated CA125 have metastasized. She is having a hysterectomy next Tuesday. Says she feels very bloated?
what my doctor said re: having one less chemo than recommended protocal
sisters: saw my doctor this morning and asked if my ca 125 were sufficiently low, say below 35, could i, if i wanted, stop at 5 chemos rather than have the entire 6. if it were she, she said she'd have the 6, but she didn't think it was absolutely necessary. she agreed that if there were some migrant cells, or as she said,…

Uterine/Endometrial Cancer

Discussion List