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New here, just introducing myself
Hi everyone, This looks like it's still an active board, so I thought I would join and "meet" a few friends in similar circumstances. I haven't had any luck finding a local face-to-face group yet. I was diagnosed with grade 1 endometrial cancer on Monday of this week, spent Tuesday in our big teaching hospital's…
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Coping with no expectation of NED
I can use any feedback on this expectation. brief history typical to many of your-surgery 12/08 followed by 6 carboplatin/taxol and external radiation 6 weeks and 3 treatments of brachytherapy, all jan-july 2009. First recurrence in para-aortic lymphn nodes 5 months after this treatment ended. CT/PET in July 2010 clear…
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CA 125 going up
CA 125 going up Well, My CA 125 has been slowly going up and I am scheduled for PET scan. I was just enjoying being off chemo so much and I've got plans for the wedding going great guns. I planted my flowers for two weekends and felt so good to finally get in the dirt. I reveled in spring and feeling well. I found out…
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Florescent bony mass found during D&C....could it be cancer?
Hi everyone, I've tried to find some information about this on a few different sites, and I'm hoping someone might have some encouragement or some advice or information. My mother, who is 64, had been experiencing some light postmenapausal bleeding in late February, that was the only time this happened. She immediately…
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Chemo number 4 (10) -----Day 1
Today I got the Taxol. Another long day. Lab at 7:45. MY port would not not flush so I had to get a chest x-ray to make sure the port was still okay. It was fine so the put activase in it to open it up. It worked fine for chemo. I had to have a stick in the arm for lab, but she was very good and I did not even feel it. Met…
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Ask for CT scan for 3 month follow up?
Hi everyone, Just quickly as an update mum is just starting radiation treatment, with cispl each week. After 4 taxol/carbo her ca125 has now dropped to 27 so we are all happy that it is within normal range! We asked about what happens after treatment and they said they just do a ca125 test and physical examination every 3…
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Uterine Serous Papillary - Scared!
Last year at this time, I was 61 and diagnoised wth Uterine Serous Papillary Carcinoma - Grade III which was found during a D&C. I had a CT scan (PET scan not approved by Aetna for Uterine Cancer) but nothing showed up except the tumor in the Uterus (Lymph nodes appeared clear). I had a hysterectomy & they took everything…
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How did you decide which chemo to take??
I'm on this board for my sister, DD. She has had a round of radiation and then Chemo. The newest PET scan shows that the lymphnode that was enlarged is now back again and the doctor said it is from her uterine cancer. She is totally boggled at what to do. Even though I am a retired nurse, I did not work with the cancer…
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CT/PET scan results & the beginnings of a new plan: radioembolism
Well, I had one of those long deep heart-to-heart meetings with my chemo oncologist yesterday to review Monday's CT/PET scan results and try and come up with a new strategy. The GOOD news of the scan is that the cancer hasn't invaded any new organs. The bad news is that my liver mets have really taken off in the last 2…
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PARP Inhibitors for Uterine Cancers
Some cell-based assay labs have explored the biology of PARP inhibitors, alone and in combination, in actual human tumor primary culture microspeheroids (microclusters), in breast, ovarian and other cancers. In these investigations, the lab applies the functional profiling platform to understand how PARP inhibitors enhance…
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First chemo session
Hello all, I had my first session today. My Doc was in the infusion room and knowing how apprehensive I've been he said "You're going to be surprised at how well this is going to go." He was right, It did go well. The nurses were absolutely great. The only glitch was that by the time we got home, even with taking the…
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a little hopeful news in the midst of the abyss
sisterhood
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a little hopeful news in the midst of the abysss
sisters: as many of you know, i had one round of carbo/gemzar, then got the blockage, then surgery, now recovering. i had a ca 125 a few days ago, and it is down from 397 to 143, which is good considering i just had the one round, and speaks to the efficacy of this combination. now i only hope i can tolerate it, but i…
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Plan is to pick up where I left off
Had a lengthy discussion with gyn-onc regarding new issues (spike in ca125 and positive PET/CT). Bottom line is I will restart Gemzar at previous dose/schedule. It worked before so we try that route first to see response. He considers me to have tried many chemo agents as he actually counts my '93 breast cancer chemo drugs…
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doctor's visit today
sisters: saw the doctor today and all she sees is a 6 week set back of rest and recovery from surgery, then back to the trenches. she doubts seriously that there should be anymore bowel obstruction given the removal of the adhesions and the tape put down to discourage its growth. she's still quite confident in…
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First chemo session on Wednesday
Hello all, I take my next steps down this scary journey on Wednesday. First session of chemo, start with a full dose of carboplatin, reduced strength taxol, then go back the next 2 weeks for more taxol, take one week off, then start again... wish me luck. Been trying to get my ducks in a row, I got a hat to wear outside,…
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Creams/Lotions/ Underwear/Wardrobe for Pelvic Radiation?
Due to start external pelvic radiation this week, I was advised by an integrative doctor that calendula cream, applied after each session and before bedtime, would help to diminish radiation burns. So I am off to find it. Online I see others extolling different products that soothed their burning skin. Yet the radiation…
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Linda do you have a new battle plan yet
Linda have been wondering how you are doing. Have you had your CT/PET yet? Do you have a new battle plan yet. Hope you continue to feel good and continue to enjoy each day. You remain in my thoughts and prayers. In peace and caring.
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Is there anyone out there with a recurrance AFTER 2.5 years cancer free
Hello, I was wondering if anyone has had a recurrance of stage 3 uterine cancer AFTER 2 and half years post treatment being clean? I guess I want to hear that we are passed the point that it would most likely come back. The doctor said usually it is in the first 2 years after treatment but I wanted to see what "real…
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Awareness or lack thereof
Were you aware of signs/symptoms of endometrial cancer? I don't know why or how, but I always knew that post menopausal bleeding was a symptom and should be reported, but I don't think anyone with a white coat ever told me anything - ever. Today I was at a meeting and chatting with a woman about my health challenges this…
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Vacation's over *sigh*
It was fun while it lasted but my chemo 'vacation' is about over. Yesterday's ca125 was 599 up from a pretty little 12 at the beginning of January. Haven't seen PET/CT report (squeaky clean in January)but briefly reviewed on phone w/NP, multiple foci in L subclavicular lymph node, plus some questionable areas in abdomen. I…
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CA 125 level of 208 2 weeks post surgery (one week before due to start chemo)
Hi all, I had my pre chemo blood tests and all came back great except for 1 high CA 125 level. For some reason, there wasn't a level taken in the hospital prior to surgery. I was a little shook up to see the CA 125 was 208. The nurse manager at my Doc's office said that it was possible that pre surgery it could have been…
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Maggie, how are you doing?
Maggie, It's been a while since you've posted. How are you? Is the gemzar working or is it too soon to tell? Have your leg pains decreased at all? I miss seeing you here. bots
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pathology report
Hello all, Got my pathology report on 4-7. Stage 3, one tumor in the uterus and one in the right ovary. Both were said to be "superficial". Negative lymph gland involvement and pelvic washings were negative. I get a chemo port put in the l4th and start chemo on the 20th. One week, I get both carbo and taxol, weeks 2 and 3…
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Hysterectomy recovery and energy levels
my mother will be having her hysterectomy on Good Friday and will be in the hospital through Easter. I was looking for some feedback on energy levels just after the procedure while still in the hospital. will she likely want and need to rest most of the time, or is it a boring waiting time that you want family there? I…
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When discouraged, .....
Hi Ladies, As we deal with all that is sent our way, it's hard not to panic sometimes and think all is lost. I just received this email from a good friend. It resonates with me and I couldn't resist sharing. I've been there and it give some good food for thought". Blessings to all who are depressed that their hut has…
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CA 125 levels w/in normal range being studied for predicitng recurrence
A few articles are out there for UPSC uterine & ovarian @ different stages discussing CA 125 rising in a certain manner for demonstrating recurrence. Question: Some doctors using 3 or more progressively rising CA-125 values doubling from a nadir (certin comparison starting CA 125) as a precautioner for cancer returning…
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Does anyone know what the long term effect of radiation is on teeth?
I was just wondering if anyone knew or experienced problems with their teeth that may have been caused by effects from radiation. Recently, I just had a root canal. Now, several teeth have lost their fillings. I know in the past that during pregnancy I had teeth problems, but I didn't know if radiation could be effecting…
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Recurrences for those that have Endometrial Adenocarcinoma
Hello Everyone. I was wondering for those of you with Endometrial Adenocarcinoma, how many of you have had recurrences? My mom was diagnosed with this in Nov. 2010. It was staged 3c grade 2. She just finished 6 cycles of Taxol/Carboplatin. It was recommended for her to receive 25 radiation treatments. At this point, I…
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CA125 is 2099! Time for a new CT/PET and a change in chemo drugs. :(
There's nothing I can even ask the Board here; it is what it is. But I wanted to share my news anyway, since my CA125 number will surely make the rest of you at least feel better about YOUR number if it's up there at all. My CA125 went up from a scary 1600 from my labs 2 weeks ago, to an even scarier 2099 on Tuesday's…