Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Thyroid Cancer

Archives for January 2012

What Can I expect with Radioactive Iodine Treatment? Actual procedure & Recovery
I recently had a total thyroidectomy and got the news that it was cancer. My doctor told me that I should consider the Radioactive Iodine Treatment. I sad yes, I would like to be aggressive in the treatment. Then he gave me the good news that I need to go to the hospital for the treatment. I could barely handle staying the…
Hospital Admittance for RAI
When admitted to the hospital for RAI can anyone tell me what essentials I need to bring? I haven't recieved anything from the doctors office and would like to begin preparing. I should be admitted Mon or Tue next week. My emotions are so up and down at this point, excited to begin this phase of treatment, but scared of…
Thyroglobulin level after iodine 131
Hi everyone. Took a vacation from the Internet and computers. It's been about 120 days since my thyroid glad was attacked by iodine 131. A week ago my thyroglobulin level was "0.8". What are your thoughts about this ? Did it get checked too early ? Is 0.8 considered high at this point in time ? lab slip shows less than 0.5…
birth control
Did anyone have issues with birth control and synthroid? I tried it for one month and immediately had a reaction including extremely dry eyes (painfully dry), alternating with anxiety. It is so strange, and has never happened to me before - but it definitely began when I started the BC; I have since discontinued it, but…
Aches and Pains. . .
Hi All - I am 4 months (9/9/11) post-op total thyridectomy for papillary carcinoma. I had my Thyrogen and RAI body scan October 2011 and was told all it good. Now, for the past 3 weeks or so I am so tired, every muscle and joint hurts. I take my calcium 3 times a day and my Synthroid (150 mcg) daily. I am not due to go…
anyone being treated at HUP?
Hello, After a battle with UPSC (uterine Papillary Serous Carcinoma) I find I also have papillary thyroid cancer and after much testing will undergo surgery soon. I have been reading the posts here, and wonder, is anyone being treated in Philadelphia at HUP? MinnieJan
Wondering if it's normal to be exhausted after a total thyroidectomy
Hi, I hope someone can shed some light who's at the end of their therapy on my topic and give me a bit of hope. I'm 34, married to a Naval Officer and I have 2 small kids. I found out my nodule was suspicious of papillary carcinoma right after Thanksgiving of last year. Had my first surgery on the 13th of December when the…
Hurthle Cell Back Again
My original diagnosis of hurthle cell carcinoma was in Sept. '06. I had a TT. My TG levels have never gone up. I had 3 tumors in my neck that were removed in 2010. RAI was not affective and I had 6 weeks of EBR. Now I have another recurrance under my clavical/sternum and a 2cm mass in my lungs. I am currently being treated…
Need Help CALCIUM
Hey Everyone First of all I apologise for the erratic post your about to read. I had my Thyroidectomy Jan.10th. Surgeon said all went well. Parathyroids not damaged be out of hospital the next day. Well its now the 13th and i'm still not home they can't get my calcium levels to say up.They've had to switch the iv site…
Anxiety with synthroid
Has anyone experienced high anxiety with synthroid? What did you experience, and at what point were you able to change your dose? My doc wants to keep me hyper 'for as long as [I] can stand it', but I swear that the anxiety just is so weird.
Anyone has experience with thyroid cancer treatment at UCSF?
My wife was just diagnosed with thyroid cancer over the holidays. We'd like to see a doctor at UCSF since we live in the Bay Area and have heard good things about its capability in cancer/endocrinology. One thing we're concerned about is the wait time to get an appointment there. Does anyone have experience with UCSF…
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
Tenderness/pain in thyroid bed way past TT-this happen to anyone else?
Hi, I had two surgeries in Nov 2010 to complete TT. I was diagnosed with papillary carcinoma-follicular variant. Cancer was encapsulated and very small. No lymph node involvement. In March 2011 I elected to do an ablation dose of radioactive iodine. Whole body scan was clear and thyroglobulin was very low. Saw the doctor…
diagnosed in 2007 and still not in remission
having such a hard time with this one.. cause I have a very complicated medical history... have thyroid cancer stage 3 papillary which made my total thyroidrectomy almost in possible to do cause the cancer was wrapped around my vocal cords and esophagus... now after 5 years, my vocal cords are paralyzed... swallowing is a…
Papillary?
So I had my biopsy slides reviewed by UCSD Cancer Center for a 2nd opinion... This is what the report said. Thyroid, left superior, fine needle aspiration, outside slide review - Atypical follicular lesion consistent with follicular variant of papillary carcinoma. Does that mean I have papillary or follicular? I need to…
I am curious about a few things
Does everyone have to get a Pet scan after the RAI? And if you do, can someone please tell me that their results were ok. I know everyone is different, but I am really getting myself sick over this. Not sure if the Dr, is going to call tomorrow or wednesday, When I got the original diagnosis of thyroid cancer last year, I…
Throid cancer and dental x rays?
My mom randomly asked me if I thought my thyroid cancer could be linked to dental x rays, and I looked it up - some conflicting info online, but some does support a link. Has anyone heard about this? I have had many dental x rays due to routine checkups/changing dentists and having braces multiple times. Any other cancers…
Waiting for the results of the PET scan
I had it done Friday. We are going on vacation Saturday and I am trying to be positive, but fear of the unknown is the worst. I am so sick of people saying the same thing about Thyroid cancer being the "good one", but this not knowing is very stressful. Reading some of the other posts about where it spread is very scary.

Thyroid Cancer

Discussion List