Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Thyroid Cancer

Archives for February 2011

Thyroglobulin level
If your thyroglobulin level is not at zero, doesn't this mean that you still have microscopic cancer cells somewhere in your body? My husband has had 5 re-occurances in the past 13 years, he has never been at zero. Our 16 yr old daughter, also with papillary carcinoma, had TT last June, and I-131 in July 2010. Recently, at…
More than 1 surgery?
Hello I am wondering if anybody has heard of a similar scenario or can comment on the below: basically after undergoing the surgery, the patient has recieved 2 rounds of radioactive iodine treatment, there are still some cells in the neck area, and the doctor has advised that the area where they are located does not…
vent & question about specialists
Hi, all. I don't post often, but I've learned a lot from reading this board. Anyway, I need to communicate with people in the same boat as I am in. I had a total thyroidectomy in November 2010, RAI in December 2010, and yesterday my endo called and said that the last biopsy shows that I have 2 cancerous lymph nodes that…
I-131 A little scared now....
Okay, I've been on the low iodine diet for 2 weeks yesterday (thanks with all the advice on that)and I'm supposed to take the I-131 tomorrow or Friday and now my brain is racing. I'm scared...how will it make me feel? are there bad side affects? will it kill all remaining cancer? how will I know if it doesn't? I have…
Total Thyroidectomy
Hi, I had both of my thyroid removed on Feb 7 and is doing very well. I am back to work and now having this stiffness on my neck and now i am becoming hoarse. Is this common. My job entail lots of speaking. Thanks
Hoarseness of voice
My friend has been diagnosed to have thyroid cancer and histopath findings shows micropapilary cancer with colloid goiter and one node involvement. She's still young with 3 children and is depressed because her voice is very hoarse. The capsule of the cancer has been very adherent to her laryngeal nerves and has to be…
After TT - Symptoms - What did you have?
Hello Y'all. I had my TT on 2/7/11 so it is going on my 3rd week. I am having an issue with swallowing... I find myself at the tail end of swalling food, liquid or just the everyday deal... trying to hard to complete the motion. Even a wide "yawn" hurts. It appears that the I have a permnant "frog" in my throat. This…
Hurthle Cell Thyroid
I have recently been diagnosed with Hurthle Cell thyroid. I have a consultation tomorrow and hope to get some answers to my questions. My doctor told me I could wait to have my surgery until May or after my daughters wedding. Does anyone have any thoughts on this matter as I am concerned about waiting that long?
Thyroid Cancer and Hashimotos
This board is not where I spend my time, so I apologize if this information is common knowledge here. I just learned that EVERYONE who has thyroid cancer has Hashimoto's. There is a very comprehensive book out there about this condition and how to address the autoimmunity instead of just treating the symptoms with thyroid…
Recent TT and Upcoming RA-131 Treatment
I was diagnosed on 12/28/10 with Papillary Carnicoma by my Endocrinologist via an FNA a week before. The nodule/tumor was 1.57 cm in size. He had some referals to Surgeons but they weren't amoung those "in-network" through my healthcare provider. Researching for a Surgeon was tough, but eventually found one. I had a TT on…
WBS- on endos desk now -- OY!
Is the waiting the worst or what. Waiting on WBs following RAI I guess I am lucky- as only waiting about a week to hear- so keep calling the office who finally chceked. On desk- waiting for endo look at then nurse will call me ...
Do you know your lab results
Ok thought I would bring this topic up. I was wondering how many of you have learned to read and understand your lab results myself I have had to go through alot of serches to ensure I understand every line of my lab results and have started to keep a listing of every one cause in my world NORMAL dosen't cut it. there have…
1st post- Hashimotos, TT, RAI and scan ...vent ... fiance' left me and baby ...
Well- 16 yrs ago diagnosed with hashimotos- scan/biopsy- etc. Unfortunatley could not put me on meds- as swing from hypo/hyper- HELL! fast forward- had baby- OB noticed lumps- which knew I had but was told less chance cancer with HASHIMOTOS (not true I now find out)- have U/s and then see endo who sends me to surgeon-…
Good Scan
Had my scan today after my RAI. I took up the RAI and the doctor did not see any signs of metastasis. It was very strange looking at the uptake scan. I was shocked at how much my liver absorbed. Seems that it took the majority of the I-131 along with the Thyroid cells. My throat is killing me however and I feel like I've…
Looking for others that have been diagnosed with two different types of Thyroid Cancer at the same t
I am searching for others that have been diagnosed with two types of Thyroid Cancer at the same time. I have been diagnosed with Hurthle Cell Carcinoma / tumor 4.1 cm 33 grams in one lobe and Papillary Carcinoma / tumor 1.1 cm and 9 grams with vascular and soft tissue invasion in the other. I have had two surgeries now,…
Just starting my journey - and looking for some help!
Thanks in advance for taking a quick 5 mins to help me find some well needed answers. I am a 36 year old male and my recent FNA results showed signs of Hurthle cells. The nodular is less than 1cm. I wanted to see if anyone else has: 1) a Hurthle cell nodular that was benign once removed? 2) a story of a nodular or tumor…
help, going hypothyroid for body scan
Hi, I am going hypothyroid for my whole body scan and having horrible muscle pains. Any suggestions? Julie
Iodine free diet
I'm new to this and have tried to find a list of iodine free foods, so far I have had no luck. I need to do an iodine free diet for two weeks before taking the I-131 RAI treatment. does anyone know where I can go to find a list of what is ok to eat and what to avoid?
44 hrs after RAI and I have a red face
This didn't happen with my 83 mCi's. I feel like a strawberry. Has anyone had this happen to them? It's my face and neck that are bright red. It doesn't burn or anything just really red. Julie
Thyrogen injections vs going hypo
I need help! I'm scheduled to have my second round of RAI treatment in March. My doctor wants me to go off my meds next week. I had my first round in November and only then started on thyroxine. I'm just feeling normal again and am dreading the thought of having to go hypo again. I'm also afraid I won't be able to keep…
178.3 mCi's of I-131 today
Well, it's done. I took my dose about an hour and a half ago. Of course traffic was heavy getting home and I really had to pee. I think just knowing that I couldn't stop to pee made me want to go even more. The good news is that I can eat anything I want in about forty-six and a half hours (but who's counting). Yeah! Julie
OMG NYC 2011 - Cancer Summit
I, along with you, have had to deal with this nasty thing we call thyroid cancer. I found the stupid cancer.com website which lead me to the OMG Cancer Summit. The OMG! Cancer Summit for Young Adults is a major international oncology conference and social networking event for young adults (15-39) affected by all cancers,…

Thyroid Cancer

Discussion List