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Thyroid Cancer

Archives for August 2010

Newbie
I just found this website because I'm dealing with breast cancer BUT 5 years ago I had a total thyroidectomy for papillary cancer. It went well and I had the RAI treatment w/ iodine free diet. I remember telling the doctor, " I don't eat iodine" and he said, "Oh yes you do!" Anyway, one of the most interesting things about…
4 mo. after Thyroid Surgery
Hi all, Well it's been 4 mo. since my TT and 2 mo. since the RAI. I'm not sleeping 16hrs a day anymore but I'm still tired. I have to pace myself and even light housework can wear me out. I have been having joint and muscle pain. I think my synthroid dose is too low but not sure if thats the cause. Doc has me on 100mg. I…
recurrance
Hi, Just a quick question. I have a recurrance of my ca. This is the third time round for me. It was discovered by my elevated TG. I cannot have a WBS until mid Nov. so Now I just have to wait. I am finding it hard to wait and not know where in my body the ca had returned to. Anybody have a long wait to find a recurrance…
Hurthle carcinoma (folliculur)
I am so new in this. I had my thyroid removed because of a malignant tumor(nodule)on it. Now several months later, my endo doctor tells me that it was very unusual, rare,) and aggressive. She called it Hurthle. I am just now taking step 1 for second opinion, even though I have read about it on the computer. That one reason…
SCAN
WHAT IS THE SCAN LIKE AFTER THE RAI
how long did you choke, cough,etc after rai
THEY SHRUNK MY THYROID WITH RAI. THEY COULD NOT GET THE TUMOR THO. I HAVE TO GO FOR OUTWARD RADIATION AND CHEMO TO GET THAT--SURGERY FAILED TOO BECUZ OF THE POSITION. THEY WANTED TO EXPERIMENT AND SEE IF THE IODINE WOULD TAKE AWAY THE HUGE TUMOR ON THE LEFT SIDE TOO. IT WOULDN'T. I CUDN'T EAT FOR SEVERAL DAYS. I CHOKE AND…
Gluten Free and Low Iodine Diet
Hello I have my I 131 scheduled for the end of September. My diagnosis was confirmed when I had a total thyroid removal on Jul 15. I have celiac and am a bit concerned about the low iodine diet combined with gluten free - anyone else out there in the same boat? I am having thyrogen shots so I don't have to go off my meds…
radioactive iodine treatment--how soon could u eat anything but liquids afterwards
I had iodine treatment two days ago and they gave me a sheet saying I could eat a regular meal two p.m. today. I can barely swallow liquids. What was your experience? Is something wrong with me thanks and good luck. Incidentally my tumor was inoperable==so they tried to shrink the whole thing but couldn't so my last option…
Excuse me Doc!
I am so darn confused. let me tell my story. Oct 7, 2009 diagnosed with metastatic pappillary carincoma. I had my total thyroid removed and a 5cm tumor that was attached to my caratiod artery, neck desstion. I had 131 rai-200 on nov. 17, 2007. it showed cancer in my left lypmph nodes too. I had my 6 month follow up in June…
thyrogen bloodwork...cancer or "good" thyroid tissue
When taking thyrogen injection before body scan and they take your bloodwork, if it comes back high does that mean that the mass (even though small) they saw in a sonogram is 100% cancerous or could it still be "good" thyroid tissue? What thyrogen number is considered OK and what is considered high?
would u go to a hotel or home after rai
I can get my den spotless with a separate bath and hole up in there and not see anyone and have my meals left at the door. i dont have a shower tho--i wud have to sponge bath or i cud go to a hotel where we have adjoining rooms-- which do u think is best--i dont want to get my husband sick
Thyrogen v. going off meds
I am due for blood work in September and my endo wants to raise the TSH level for the test. The thyrogen injections are very expensive, so I'm thinking about going off my meds to raise the TSH. Does anyone have any experience with this? Is it better to do the thyrogen injections? What was it like being off your meds? After…
Had to get off of the Nexavar.
I started Nexavar on the 28th of July. At first, I was fine and I wasn't experiencing any side effects. So I thought. But I noticed I was breaking out with a rash. I started taking Benadril, but it made me worst. My feet started hurting so bad, I could hardly walk. Then my shoulder began hurting. Finally, my ear lobes…
RAI on the 25th and nerves galore
Hi all! I have been reading the posts here for a bit, and decided to finally sign up and ask some questions and get some support from people who know what I am going through. Just reading your posts have helped a lot. A little of my story: I was scheduled to have a partial thyroidectomy July 14th, due to a multinodular…
Tg Results
I had my check up with my Endocrinologist and got my lab results. My TSH level is .02 and my Free T4 level is 1.95 which my doctor says it is ok. My TG level was 1.4, if I am not mistaken that level should also be undetectable, but according to my doctor not to worry, because it is not above 2. Can anyone give me any…
what is rai like
I GOT THE HEAD OF NUCLEAR MED AT A GOOD HOSPITAL TO DO RAI ON MY TUMOR--AFTER BEING TURNED DOWN BY ANOTHER DOC. I GO TOMORROW FOR AN INJECTION AND THEN FIVE MORE INJECTIONS. IS THAT THYROGEN--DOES ANYONE KNOW THEN I HAVE A DAY OFF AND TWO MORE DAYS OF INJECTIONS AND THEN RAI--COULD YOU TELL ME HOW CAREFUL YOU HAD TO BE…
legal help
I am a 46 yr old mother of a 5 yr old lil girl. I had my thyroid removed in Dec 2009 was not told that I had cancer until mid January 2010. I left my husband in November ARGH!!!! Now my parents and husband are tyring to take my baby from me. I have been on the LID diet for a couple weeks and scheduled for RAI on Aug 11th.…
I 131 Questions
Hi I am new to all of this! I am a 34 mother of two - 10 months and 3 1/2 years old. My surgery was 3 weeks ago. They found a very small nodule on the right side of my thyroid during a physical in May and that was ruled very suspicous at biopsy and then ruled papillary cancer during my surgery. I am working on scheduling…
Surgery coming up on 26th all advice and experience appreciated.
August 26th will be my surgery. I will have the total thyroidectomy a well as a modified neck dissection on the left side for I have some spread to lymph nodes. I am scared to death. I have NEVER even had any kind of surgery none the less something like this. Please can any/all who read this share their experience with me…
was anybody's RAI like thisI
I HAVE AN INOPERABLE THYROID TUMOR--THO THEY TRIED FOR HRS TO REMOVE IT IN APRIL. MY ENDIN. SENT ME TO THE HEAD OF NUCLEAR MED FOR RAI--AFTER I STAYED ON THE LOW IODINE DIET FOR TWO WEEKS==THIS WAS JUST ABOUT SIX WEEKS AGO. FOR MONTHS THE DRS. COULDN'T MAKE UP THEIR MINDS WHAT TO DO WITH ME. WHEN I ARRIVED FOR THE RAI THE…
has anyone chosen not to undergo the "year after" RAI treatment?
I'm approaching my first year of diagnosis/surgery/RAI and would like to know if anyone chose not to undergo the routine "first year after" RAI treatment"? My bloodwork levels are in the area that my endo wants them to be and he also told me that if they keep up those numbers, next year I would just have to do ultrasounds.…
Hashimoto's & thyroid cancer followup testing
I have Hashimoto's (autoimmune thyroiditis) and was just recently diagnosed with papillary thyroid cancer. I am going to have a thyroidectomy very soon, and I'm concerned about the followup testing that is necessary to check for recurrence. I know that testing thyroglobulin is kind of the primary marker for recurrence, but…
has anyone had their husband desert them after cancer
My husband deserted me he was cheating during my treatment, he then moved us and 12 days later left me. I don't want to go on, what is the point, I mean really, and 32 years we were a couple.

Thyroid Cancer

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