Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Rare and Other Cancers

Archives for March 2013

Neuroendocrine carcinoma: liver, maybe pancreas, one of my lower vertebrae
I was diagnosed with neuroendocrine carcinoma last August (2012) when a scan revealed a large mass in one side of my liver. The first recommended treatment was to insert radioactive isotopes into this mass to try and shrink it, which we did, in preparation for a later surgery to remove it. Surgery was scheduled, but three…
myxopapillary ependymoma
I am 18 years old and have myxopapillary ependymoma its a mouth full trust me I know. I was origanally diagnosed when I was 12 years old and had surgery to remove the majority of tumor after I had surgery then I had Proton beam radiation. The tumors in my lower spine where I had the majority of the radiation have not…
pancreatic cancer
Hi.. My dad had a whipple surgery for pancreatic ca .It was in the head of the pancreas... this was in July of 2012.. He is doing ok now..He is back working.. He just turned 75 years old.. He just cant seem to gain any weight.. Anyone else with the same situation? Thanks
SEEKING INFORMATION FROM AN ELDERLY PERSON WITH A RARE TYPE OF PALATAL CANCER
My mom is a healthy,active and strong woman of 80 years old,who never used alcohol or tabacco.She was recently diagnosed with Squamous Cell Carcinoma involving the upper ALVEOLAR RIDGE (upper gum) and her two front teeth are loose due to the carcinoma which is invading the bone and ANTERIOR PALATE. A CAT Scan measured the…
mediastinal Germ Cell Tumors
hi everyone..i'm a ewbee here and also a cancer survivor of 20 some years.. now our oldest son has mediastinal Germ Cell Tumors, a rare version of cancer and he has it in the chest cavity as well as in his lymph glands..he is in a cancer treatment centre ..he had devoloped some fluid around his heart .they think that it(…
Lower extremity edema with duodenal cancer?
My hubby has a diagnosis thus far of duodenal cancer. He has lower leg edema that has been getting worse. He hasn't had any treatment thus far for his cancer. Anyone else know anything about this? I would appreciate any information. Seems odd that he has this when his labs are so low, ie, sodium, potassium, calcium, iron…
Anybody out there choose no treatment?
My husband has been recently diagnosed with duodenal cancer with liver mets. In short, the surgeries, chemos and radiations prescribed seem to offer a 4 to 36 month survival rate. We are seriously considering doing nothing more than a blood transfusion and taking our chances with mother nature. He feels fine right now and…
any body out there choosing no treatment for their cancer?
My husband was recently diagnosed with duodenal cancer with probable liver mets. We have researched many of the procedures and treatments that may be available. My husband having watched his mother go through pancreatic cancer with all of the treatment was thinking, are you better off just not doing anything. Treatments of…
looking for anyone surviving Mucinus Adenocarcinoma with unknown Primaries.
Was diagnose in 2010. Went with Duke, had total hysterectomy with a 2lb. mass on ovary, tumor markers shown unkown primaries..via mosty CEA's. Did 6 treatments with Taxol/Carbo. finished in April 2011. It really has taken me this long to really over the chemo., It took it's toll on my body, mind and soul. I had to step…

Rare and Other Cancers

Discussion List