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pancreatic cancer: how do you....
how do you go on day to day when you have pancreatic cancer. I have stage 2b and recently started chemo for three times then 5.5 weeks of chemo/rad followed by nine rounds of chemo. I am 9 weeks post whipple today. The fatique is what is getting me down usually occuring on the second day after chemo and lasts for two days.…
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Gallbladder Cancer - 2011
Hello Everybody! Happy New Year! I know I’m a little late but better late than never. I have started this new discussion thread because over the last year of posting we have ended up with many different threads going on at the same time. It was hard to keep up with them all. I had many people tell me that they couldn’t…
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Cutaneous T Cell Lymphoma Awareness
I am 14 years old. My mother is dying of a rare cancer. Please help me spread awareness of this deadly disease so my mom and others will get the right treatment.…
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having cancer three times
Hello my name is Kathleen and I have had cancer twice before, I now have breast cancer, so that is three times. Why? I don't know, it seems to come back every seven years. The first time Ihad cancer, it was a carcinoma on my appendix in the 1990's, very rare, then again in 2003, I had small bowel cancer, also very rare,…
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small intestine cancer...headed to clinical trials
I am creating this page for my husband, Tony. In March of 2010 he was diagnosed with stage IV cancer of the small intestine during a hernia operation (which turned out to be cancer causing the hernia). We chose Vanderbilt as our hospital. At that point, the CT/PET showed tumors on the small intestine, colon, liver,…
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Chemo scares
I just found out Monday that I will be having a 6 month treatment of chemo and radiation.I will get a port put in on Monday and treatments will start at the end of February in order to allow my body to heal from my recent surgery. I have a rare cancer I am told, it originated in my appendix and after two years has come…
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myelofibrosis
I was diagnosed with polycythemia vera 4/12 years ago..my white blood count kept going up (its now at 65,000) I had a bone marrow bioposy and was Dx with myelofibrosis 1 month ago..I just turned 61..my spleen is slightly enlarged..for the most part I feel good..will be starting hydroxyurea in a couple weeks..
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MY RARE CANCER recently diagnosed Sinonasal melanoma stage TIVa
My cancer considered less than .4% of all cancers. Not many statistics on survival but looks pretty bleak even without metastasis. Surgeon says 1 1/2 to 5 years. Surgeon says think can cure in sinus but will come back elsewhere. Will have face radiation after surgery. seems side effects of salivary gland and no taste which…
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Primary Central Nervous System Lymphoma
My son is 10 years old and he has Primary CNS Lymphoma he was diagnosed in April of 2010. I would love to talk to anyone who's child has the same type. There is very little info availible on children that were in perfect health prior to getting sick. He has finished his protocal and we are getting ready to do our second…
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Bile Duct Cancer ... feeling DOWN
I am 34 years old. the week of my 33rd birthday I began having different symptoms I didn' tknow were related and/or serious... at first I was told it was a bladder infection... then hepatitis, but when those tests came back negative, a scan revealed an obstruction in my bile duct. They told me at my age with my health and…
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PNET Cander
Hi This is a very very rare cancer, anyone, do you or a loved one suffer from the same? One of my friends resently found out that she has PNet. she is starting her 5day Chemotherapy in RSA. Please help and give us some hope! regards lizzy
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Extragonadal Germ Cell Tumor - Chest
HELP NEED INFO I am caring for my fiance that was diagonsed with extragonadal germ cell tumor in his chest originally in Feb 2009. He went through 6 months of chemo and then a major surgery that affected his lungs and had to be partially removed. The surgery was im September 2009. By his first check up that following…
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metastatic melanoma stage IV
I was diagnosed in November 2010 and now have had my second round of chemo. I am waiting for approval for use of "ipi" the new drug not yet approved. I have to fail the recommended chemo treatment before they will give it to me. So last (3rd) round will be given on 1/17, wait 3 weeks, have PETscan and then find out if…
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Chemo Drug Everolimus
Is there anyone out there that is on or has been on Everolimus? It is a chemo pill taken once a day? My dad has Mesothelioma. This is the next course of treatment that his oncologist is advising him to proceed with. He had chemo (2 rounds) and stopped because it was not working - tumor progressed. Then went in for surgery…
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my mom
my mom just recently passed away from pancreatic cancer. she lived 45 days after she was diagnosed. she was 84 and a wonderful mother. i took care of her during her illness and watched her each day slip more and more into sickness. she died early in the morning and i was with her when she passed. this is a very aggressive…
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Post Whipple and lots of pain
My husband had the Whipple 3 years ago. To this day he still has bad pain. The doctors say the majority of his pain is from the surgery. (the cancer is back but when he was in remission he still had pain) If he bends, twists, stretches, the pain is really bad-like it is taking his breath away. .he even says it hurts to…
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Adrenal Cancer
My husband has been diagnosed with stage IV adrenal cancer. He has a tumor that is 14.5 x 10.1 x 10.1 cm on the left adrenal gland. They may have to remove the left kidney and the spleen. Has anyone else had adrenal cancer? Any information you can provide me will be so much appreciated. debbie