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Rare and Other Cancers

Archives for August 2004

Nothing you haven't heard/read already
I signed up with CSN not quite a year ago. I have read many posts but this is my first actual posting. My girlfriend was diagnosed with pancreatic cancer in Nov 2003. The doctors were hopeful since they caught it soon and the spot was small. She has been on chemo until last month. her liver was beginning to fail so they…
Apocrine (sweat gland) cancer
My mom has been diagnosed Stage IV-Apocrine Carcinoma. It is metastatic (brain, kidneys, lungs,spine). She has has 10 brain radiation treatments and 1 course of chemotherapy (Vincristine, Adriamycin, Cytoxin) which has done little. This is a very rare cancer. I would appreciate any suggestions, insight, anything...
Anyone out there with cancer of the ampula?
I had a cancer lumped in with pancreatic cancer by docs because it is so rare. It is cancer of the ampulla of vader (I think of it as Darth Vader and just want to blurt out "I had Darth Vader". The treatment was just the same as for adenocarcinoma of the pancreas. I had the Whipple Proceedure followed by 4 mos. of chemo…
Help! Treatment Options
My 55 year old father has just been diagnosed with Stage IV of pancreatic cancer that has metastisis to the liver. He has a 5.2 cm tumor on the lower end of the pancreas which is causing him great pain but the doctors say is inoperable. Any advice on doctors and treatments? We just found out this past Tuesday, so there has…
Sloan kettering NYC
I would so appreciate anyfamily or patient who was treated or in a trial conducted by Dr. Gary Schwartz to please contact me.For my brother who passed away. Thank you.
ppl with malignant fibrous histiocytma (MFH)
my husband and i whould like to talk to ppl with this diease and see what they are going through and we will share what he is but we whould like to know that there are ppl out there and that he is not the only one or that he feels that he is not the only one out there with this diease THANKS
want to talk to ppl with ......
please respond if there are ppl out there with maligant fibrous histiocytoma my husband had it twice and he whould like to talk to more ppl with it and see if they are having the same thing that is happening to him . He had it in the leg and was also wondering if they are having the same reaction as he did with the surgry…
brother died of pancreatic cancer
I need to talk so very much about the neglect of his care.
Mucoepidermal Cancer of the Salivary gland
Not sure which board to post this on so I'm trying a couple. My mother was diagnosed with low grade stage 2 mucoepidermal cancer of her left salivary gland about 1 1/2 years ago. She underwent surgery and radiation therapy. She was just diagnosed with the same type of cancer on the same side but it is just behind her last…
triplet sister has cancer/need advice
I just found out that my triplet sister has pancreatic cancer one month ago. It is in her pancreas, liver and some part of her lungs. Stage 4. She is a fighter and is on gemstar and oxiplatin. She had a hard time keeping food down and had to wait an extra week for chemo. We remain hopefull that chemo will help her for a…
sister with pancreatic cancer
my sister is 45 yrs. old and was diagnosed with pancreatic cancer in november. she had the wipple procedure, 6 wks of radiation and chemo and 4 mos.of gemcitibine. This has been the most frightening time of my life. I DESPERATELY need some POSITIVE RENFORCEMENT. She has one more infusion and the active treatment will be…

Rare and Other Cancers

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