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Prostate Cancer

Archives for November 2013

Another PSA Question
I do not see my Urologists any more simply because the information given here seems far more accurate and trustworthy. At time of discovery my PSA was 200, and I have very extensive bone mets. Two months after castration my Psa was 9.8, then three months later dropped to 2.3, and now, three months later dropped again to…
IADT question for VascodeGama
Hi Vasco, My husband has been on bicalutamide and degerelix since March. (Dx Feb with extensive bone mets and PSA of 32.) His PSA dropped to a nadir of 0.24, then rose to 0.26 just before we took a trip for three weeks, i.e almost 6 weeks ago. On this trip, we stuck closely to his very strict diet/supplements and meds, but…
PSA doubled in 3 months
I have been off this forum for quite a while because Pca was the least of my worries. I Had a heart attack and almost died of pneumonia. However I have recovered and am very concerned that my PSA has gone from 3.3 to 7.7 in tthe last 3 months. I had IMRT 20 months ago after which my PSA was 0.1. During following 18 months…
New to this forum
Hello, I am new to this forum and am using another username until I can figure out how to register. I have a few questions: i am going to a leading cancer hospital For treatment . They have put me on a strong dose of harmonies , and a new drug called Xtandi, i am concerned because I am so tired all the time and my bones…
can you give me the cold hard truth please? UPDATED!!!!
hi again i posted on here around 2.5 yrs ago, when my FIL was diagnosed with gleason 7, 3+4 and had his prostate removed. it appeared to be contained and didn't appear to breach any margains when they looked at it after the surgery, but he was still registering a low psa score . at the time, i asked why that would be, as…
Do "dead" cancer cells produce PSA?
This might seem like the world's daftest question but could dead PCa cells release PSA? It is a protein, and dead cells are composed of various proteins. The reason I ask is that I just had a dream that someone told me this. (My husband's PSA recently went up from 0.3 to 1.9, and this has been on my mind a lot.) I was…
does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
New member need some input
I am a new member and this is my first post. Last week I had a radical robotic prostatectomy. Everything went well. I think. Today I had my catheter removed (what a relief). Also, today I received a copy of my surgical pathology report indicating, pretty much, what the surgeon had already told me. The cancer was contained…
Watchful Waiting
PSA is 18, (doubling time around 2 yrs) bone scan negative, no symptoms. Diagnosed July 2011, 2 of 10 cores cancerous one 30%, one 40%, Gleason 3+4=7. I'm 57, fit and treating with active surveillance, diet exercise. Vegetarian for over a decade. Father had prostate cancer and lived until 83. Not sure if cancer was a…
Active Surveillance
Please see my previous post under active surveillance where I updated info and ask for your feedback. I did not know how to update my previous post under need help and advice. Thanks all Builder23
Small cell prostatic cancer
After experiencing perineal pain in August 2012 and being treated eight months chiefly with antibiotics for prostatitis, I was finally biopsied March 2013 with both adeno (Gleason 9) and much rarer (<200 cases/year in the US) small cell prostatic cancers. I have subsequently undergone traditional cisplatin/etoposide…
ObamaCare and Us
I was over in the anal cancer board seeing what was being discussed there. One of the topics being discussed is the impact of Obamacare on current coverage plans. That topic hasn't come to our boards yet, but here it is now. Have new insurance regulations mandated by ObamaCare impacted your coverage yet? Are you concerned…
Digital check after prostate surgery??
After radiation at Loma Linda U in CA I was told we (group finishing radiation in the next week or so- about 20 of us) still needed to have our prostate checked even if we don't have one. That was about 4 yrs ago and I have yet to have a doctor indicate I need to do a digital exam on me. Has anyone had a digital exam since…
Answers - well sort of
In follow-up to my earlier posts, we finally met with a radiation oncologist today. We both really liked the man and his CV is pretty impressive. He answered all of our questions. In particular, we told him how confused we were over the relatively low Gleason score (6) vs. the pretty high PSA (40) and the positive cores on…
Swami's Supplements
I was asked on a different thread to list my supplements, so here it is. Now, I have no idea if anything on this list will help, hinder, or do nothing. I am not recommending anything to anyone. This is just what I doing. HERBS AND SUCH Daily 3x Ampalaya Capsicum Malunggay Mangosteen Tumeric Milk Thistle 1x I get the…
Scam Message
I just received an e-mail notifying me of a private message on CSN. When I opened the message, it was one of those "Nigerian scam" offers of money ($8.3 million!) from a "helen14" in Cape Verde. Disappointed to see the CSN infected.
MRI vs. Bone Scan
Coming up now on 4 years since my Radical Prostatectomy (12/14/09) I continue with an undetectable PSA (<0.1) which is typically a good sign. What has bothered me over the past 4 years is that upon diagnosis of my Prostate Cancer my PSA was only 2.2, which is the highest that it has ever gotten. My history is: Radical…
Almost one year since RP
I am very happy to report that after almost a year (Tuesday after Thanksgiving) 2012 My latest Blood work came back today, my PSA remains at <0.03 the lowest number the lab can assign has stayed the same ever since being post op. needless to say but I really have special meaning to my anniversary falling at the…
BLEEDING FROM PENIS
THIS PAST FRIDAY I PASSED A BLOOD CLOT & THEN LOTS OF BLOOD, THE BLOOD KEPT coming out of the penis---went to eMERGENCY ROOM AT HOSPITAL--THE UROLOGIST ON DUTY PERFORMED A CYSTOSCOPE PROCEDURE TO CAUTERIZE A BLEEDING BLOOD VESSEL IN THE BLADDER. I'M BACK HOME NOW BUT FEEL LIKE YOU KNOW WHAT. PASSING THIS ON AS INFO--ANY…
Any Experiences with Focal Cryotherapy
I began my journey with PC being diagnosed in Feb/2008 with GL (4+5), psa 34, T3a with bulging of the left seminal vesicles observable. Radiation was completed in Aug/2008 (73.8 gy) and luprone shots completed in April, 2011. The psa slowly rose from a low of 0.21 with a DT finally reaching 6-7 months. After CT/MR fear…
Experience with surgeon in NY
Does any one had experience with Dr David Samadi in NY. I was told that my case was going to be difficult and need the most experience surgeon. Gleason 8 and 7[ 4+3 ] and perineural invasion in 2 of the cores. Thanks for your help
Advice For change in pathology
Initial diagnosis Gleason 8, age 60 years Pathology reviewed by Maimi VA and revised to Gleason 9, 4 cores I am not fond of the idea of of EBRT and Adnrogen Supression therapy. I also understand that the chance of getting clear margins in the face of Gleason 9 are slim/\
My dads diagnosis Gleason 8, PSA 10
mt father was just diagnosed with prostate cancer. We know very little of this disease. I read the pathology report but if course don't really understand. Total involvement is 22.5 percent. There is less than five percent involvement on the right side in one section. Each of the four sections on the left side has 30-50…
Injured during DaVinci- I'mm Baaack
It's been a long time since I have made a post on CSN. As many of you know who are regulars to this site and can remeber that I had PR almost 4 1/2 years ago. I would still like to hear from members who have been down the same road I have. There has to be plenty of people out there because of all the adds I see from…
Feel cold even in normal room temperature. Why? Prostate cancer for four years.
See above subject
Contemplating dual surgery of sling and penile prosthesis
Been 3 years since robotic removal of my extremely large cancerous prostate (large grapefruit sized). Still leaking but only a pad a day -- sex is another story!! Tried the needle route but wife seems turned off by same. Going to see my Doc on Tuesday to discuss dual surgery of sling and implant. would love to hear from…
Xofigo
My husband was diagnosed with stage 4 Metastatic prostate cancer in June 2011. He has gone thru several radiation treatments to different parts of his body, as well as different chemo treatments. Nothing has worked. He is now basically confined to his bed, in pain constantly, and as of today it will be a week since he's…

Prostate Cancer

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