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Prostate Cancer

Archives for September 2012

Diagnosed Again
Hello, I was originally diagnosed in 1999 with PC. At that time to cancer was so small a Gleason Score could not be determined. I opted for Watchful Waiting (now called Active Surveillance). My oncologist has followed me via DREs and PSA test. I had several biopsies that were all negative which got me wondering if I really…
Salvestrol Platinum
After looking into Salvestrol Platinum, is this the drug to replace drugs like Zytiga? Can not find a list of side effect, but all reports say its the next fight against advanced metastatic castrate resistant prostate cancer!!! Does anybody know about this drug? I think my days with Zytiga are at the in of it days. Maybe…
advice on which way to go - oncologist or urologist? HT length?
I posted earlier this month about my friend. He is 81 years old and has stage 4 prostate cancer, gleason score 8 and many, many bone mets. We actually found the cancer due to his collapse from renal failure - the prostate has blocked his urethea tubes and he had to have bilateral nephrostomy tubes inserted. He was in the…
New member, husband diagnosed
Two weeks ago we thought my husband was perfectly healthy. He woke up with a groin pain and we went to the ER, where they found swollen lymph nodes. He has prostate cancer that's spread to nearby lymph nodes and to the hip. Just a small spot on the hip but that's bone. What a shock at 48. No symptoms at all. He had his…
Has anybody heard of this?
I had an RP almost 2 years ago and everthing is going good. I am still doing zero's. In a totally unrelated issue I recently had an ultrasound of my kidneys which also included an ultrasound of the bladder. When I picked up the report there is an item that says they found "debris within the bladder". What does this mean?…
Pain
Not sure if the HT treatments, or just a fluke , but my back is gone. All I did was turn, and it was gone. Tomorrow will be worse. Not sure if HT caused this but I really feel like it did. Percocet does not even touch this. Not sure what is causing this but the pain is insane. Had back surgery years ago, and been dealing…
TURP and IMRT
I recently posted how my oncologist did not answer any of my questions but simply "brushed me off" So I am posting them here. Why did I not receive a higher dose of radiation i.e 84 gy instead of 69gy when the higher dose is supposed to produce better long term results. I had the latest Novalis shaped beam IMRT which can…
All
Over the last months I have enjoyed and learned from this site. The inputs from the active members have been great and have helped a lot in my journey. Prostate Cancer is a Mans illiness and we as Men need to addresse and take care of it. Mike, Ralph, Kongo and the other's thank you for information. This has helped me a…
Getting Ready for 'post surgery'
My husband will have his Da Vinci surgery in 2 weeks. I know I should have incontience pads (or diposable underwear- he's still deciding) on hand. Other things I've read suggest having alcohol swabs, good hand wipes and loose fitting pants for him. Are there other things I should 'stock up' on?
PSA 3.6 gleason score 5
My husband has had a prostatectomy his original PSA was only 3.4 it rose to 3.6 due to his age his GP suggested he have a physical with a urologist,he had 24 biopsies and all had huge amounts of cells in every one. He had a total prostatectomy almost 3 years ago, he was asked to join a salvage group on a clinical trial…
36 months of hormone treatments
I was diagnosed with a Gleason 9 stage T3b in December of 2009 and had the Davinci Surgery followed up with 45 Radiation treatments. Last month (August) I was given my last three month hormone shot which will bring me to a total of 36 months on hormones. I also have been taking Biclutimide every day for the past year at…
New trials
Not sure if anyone saw the article from two researchers in CA. They are working with a part of marijuana, will not get you high, that they have proved to kill cancer cells in petri dishes and animals. According ro their results this portion of marijuana killed the cancer and the cell returned to normal. Might be amazing.…
new member, dad just diagnosed
Hi. My dad was just diagnosed with advanced metasticized prostate cancer. He had an MRI for disc issues and they found "spots" on his spine, which turned out to be cancer. Followed by a CT Scan, a PET scan, and a PSA test. The scans and tests confirmed prostate cancer that had spread to one lymph node and his spine, hip…
Incontinence Questions
I am 4 weeks past robotic radical prostatectomy and 2.5 weeks after catheter removal. I do not have any urge to urinate. The only urine stream I get is after lying down and then the stream is only 1-2 seconds in duration. However, I have constant leakage throughout the day/night and must change pads every 30-45 minutes.…
Watchful Waiting/Active Sur. Article
A link to an article on WW/AS. The article did not add a lot of new information on the subject; however, I did find the discussions that followed very interesting. http://well.blogs.nytimes.com/2012/07/23/choosing-watchful-waiting-for-prostate-cancer/
Gleason 4+4 and Loma Linda
Hello: I'm new to this site. Had a second opinion on my biopsy of 4+4=8 and it was confirmed. I have been scheduled for proton consultation at Loma Linda in a week and was told that I would likely be advised to be on hormone therapy for 2 months PRIOR to proton treatment and for a time following treatment. I had 12 cores…
Bad News :-(
Well, I just got my latest PSA score and it went up again to 2.12. Not good. That's 3 increases in a row 1.55, 1.69 and 2.12 between March and Sept 2012, which is an indicator of treatment failure or cancer recurrence by at least one standard (1997 ASTRO). The lowest score I've ever gotten following treatment in Sept 2010…
Second opinion
Listen up guys, My PSA doubled twice over 3 years to a high of 4.2 that triggered a biopsy with a Gleason OF 6. Kongo, Hopeful and Opt told me to get a second opinion. Well, John Hopkins came back with, prostatic intraepithelial neoplasia (abbreviated as PIN)and they considered it to be a pre-malignancy, or carcinoma in…
1 year ago today
! year ago today I went to the doctor because of a jump in PSA and yesterday I went back for a check up. PSA undetectable and DRE clean said come back in 6 months. Feeling good and glad to be alive.
Proton PSA Question
A good friend of mine has completed Proton Therapy at Loma Linda. I do not know his 'stats' but his wife shared on facebook that at 6 months post treatment his PSA was 1. I know that different treatment options have different results. Does anyone know if 1 is a good indication following Proton? Of course there is the…
Dr. Strum answers to some PCa questions
The following link was posted on another site. I thought that Dr. Strum's answers may be of interest to guys who use this site. https://www.dropbox.com/sh/mai9nr8w62zwaeu/xiHO-btSTR/DB02013
Prostate Cancer Pony Express - Rally in DC on 9/9/12
We rode to DC and got the American Flag raised over the Captital in honor of Prostate Cancer survivors and in memory of its victims. Then rode over to the White House for a quick photo in front. (Just uploaded the one phot so far) http://2012pcpe.shutterfly.com/
PSA , HT and Testosterone concern
IMRT + HT Jan 2012 I managed to find a lab that could measure my testosterone as Kongo suggested and it was 198 ng/dl. The lab also measured my PSA and it was 0.564 up from 0.2, 2 1/2 months ago. It is nearly 9 months since I had my first (and last) HT three month injection. I would guess that this Testosterone level…
Please help me to get Xtandi (MDV3100)
This new hormonal medicine had been approved by the FDA on the 31 of August 2012. The Medivation (company that developed it) offers financial assistance for Xtandi to American residents. I am not an American and don't have the right to this assistance. May be some American patient would help me buy it? Name: Felix Shmidel…
Saw Urologist. Got results. Changed mind about treatment choice.
What a journey- and we've only begun! We saw the urologist today to get the results of the ct and bone scan. He opened by giving me copies of the biopsy report and the scans (brownie points to the doc). One piece of great news--- the scans were negative for any detectable cancer!!! Yeah!!! (does short 'Snoopy' dance) And…
RADIATION AND HORMONE THERAPY POST PROSTATECTOMY ARE NECESSARY??
DEAR FRIENDS, I APPRECIATE ALL YOUR ADVISE AND SUPPORT, TODAY I HAVE HAD GOOD NEWS AND I AM VERY HAPPY, MY CT ABDOMINAL AND BONE SCAN DOES NOT SHOW ANY TUMORS OR METASTASIS IN THE BONES. MY QUESTION IS IF I STILL NEED RADIATION (AND WHAT TYPE OF RADIATION) AND HORMONE THERAPY THAT SCARES ME BECAUSE OF THE BONE DENSITY AND…
Gleason score 8 - side effects for hormonal therapy
Hi all - I posted the other day about my friend who has been diagnosed with stage 4 prostate cancer. After inserting the naphrostomy tubes into his kidneys, the kidney function has stablized. We have officially been given his gleason score of 8 and he has bone mets on his foot, leg, hip, pelvis, rib and skull. His bladder…
Biopsy Slides
I have an appointment with an Oncologist for a second opinion on my diagnosis. He wants' to review my biopsy slides. I am picking them up from my urologist this week for my appointment next week. Does anyone know how I will be receiving these slides? Do I have to keep them refrigerated? My Oncologist is at the Cancer…
Biopsy back- positive. Scans scheduled- urgent question about dye
Hubby's biopsy came back today. 8 cores- all positive. Gleason 4+5=9. Bone scan and CT to be scheduled for either tomorrow or Thurday. Meet with urologist again Friday. Hubby's main concern--- he is deathly afraid of needles (had one broken off in arm as a child) and his blood vessels are very small and roll and colapse…
HAS anyone experience with PROLIA?
ALL HAS anyone taken PROLIA for the bones? Please inform all of us your experiences. Does this drug just keep the bones in the condition they are wjile on hormone treatment, or does it build bone strenghth, especially in the long bones of the arms & legs? PLEASE REPLY WITH YOUR PERSONAL EXPERIENCES. (I don't like what I…

Prostate Cancer

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