Prostate Cancer
Discussion List
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COLOPLAST VIRTUE SLING / Continuous pain and suffering one year later.
It has now been one year and two weeks since a Coloplast Virtue sling was implanted in my body without my consent. I had consented to simple and well proven AdVance or AdVance type sling, not a 4-armed contraption (Virtue Quadratic Sling) undergoing clinical trials. I feel like I am a victim of “bait and switch”. The…
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Recommendations for VEDs
I am wondering if anyone would have any thoughts they would care to share on their experiences with VEDs. I am 50 yrs old. Diagnosed with Prostate CA in April 2010. Da Vinci prostatectomy June 8, 2010. Everything was within the margins. I am almost totally dry so am very happy about that. Now I am concentrating on the ED.…
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The value of PSA and a second opinion
Early this year I noticed my doctor hadn't given me a PSA test in 3 years. Being a transplant patient, I am supposed to get them yearly, so I told him to do one. It came back 21. Biopsy came back a Gleason 9 even though nothing was detectable in a DRE. I got several opinions. 3 of the most highly rated robotic surgeons in…
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Successful prostatectomy on transplant recipient with negative margins - radiation?
I'm 58 and had a kidney transplant 5 years ago that is still working well. Early this year, I was diagnosed with Gleason 9 prostate cancer. One doctor told me I had to quit my drugs, reject my kidney, and go on dialysis so my body's full immune system could fight the cancer. Another one disagreed completely. I did a lot of…
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I am still in the Zero Club
Dear PCa friends, I just got the result of my PSA, the second after the surgery. I got my surgery on March 15, 2010. I am glad to report that I am still a member of the Zero club. I thank God for His Grace. Victor
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Second Guessing
These types of reports always make me pause and wonder whether the early treatment actions that so many of us have taken--either RP, proton, radiation, HIFU, or some other therapy--were all unnecessary. All cancers aren't equal but sometimes we tend to view them that way. Good news is that all this treatment of low risk…
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Safeway Prostate Cancer Campaign Nets $11.6 Million for Research
Thank you to my friends at Safeway... Safeway Prostate Cancer Campaign Nets $11.6 Million for Research Company's June Tradition Credited with Saving Lives PLEASANTON, Calif., Jul 21, 2010 (BUSINESS WIRE) -- Safeway Inc. concluded its annual prostate cancer campaign and continued to transform how the public treats and views…
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Elevated PSA
My husband just received the results of his recent PSA test. It is elevated again. 18 months ago it was elevated to <0.3 then a year ago it was .3 and then 6 months it was just under .3 and now it is 0.64. He had a bone scan last week and is scheduled for a Prostacint this week. The initial visit to get the injection is…
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Stairs After Surgery
I am a couple week until surgery on 8/11/10 and I was wondering if I will be able to climb stairs when I get home from surgery or will there be any restrictions regarding the stairs. My favorite recliner is in the mancave and I am thinking it might be a comfortable place to be for a couple of days after surgery. I guess if…
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Hello and Update from Sonny
My Fellow PCa Brothers and Sisters, It has been far too long since I have been here, and for that I apologize. There hasn't been much to update or report and Lynn and I have been traveling quite a bit in the new RV. In fact we just got back from a 4 week trip. Lynn really enjoyed the traveling by RV and it kept her away…
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Update
Been 4 years now since divinci. Rarely use pads unless doing something like golf. Still impotent but not much of a concern anymore. It really isn't necessary for live just fun and I can still have fun other ways like golf, fly fishing etc. My psa is less than .1, according to the docs. that's normal because labs don't want…
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Infected incision ports//any advise?
2 of my incision ports are infected. One got infected 10 days ago and with washing with hydrogen peroxide and antibiotic ointment is getting better but is still sore and not healed. The one for drainage got infected today and has pus spots around and painful. Any advise? The medical system is geared around this becoming an…
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Latest Monthly newsletter From LLU proton Center
Really good stuff in this month's newsletter: http://www.protonbob.com/newsltr.asp Enjoy!!
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I Upset the Wife Today
I"m sorry I said it, but I did. I said, if my PSA starts to go back up, I don't want any more hormone shots. I'm done with them. I should not have said it. It was insensitive to her feelings and fears about this PC thingie. I resolve to be more careful about how I speak of my treatment to her in the future. And perhaps…
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confunsed about supplements
How dangerous is taking supplements (especially soy and green tea) during radiation treatment for Pca? Can these supplements be giving me hormonal therapy that would interfere with the cancer-killing ability of radiation? I am scheduled to undergo treatments in a few weeks and have been trying to decide if taking…
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My wife is Dissapointed
My wife is an RN and has been working in Labor And Delivery for the past 15 years and assisting with surgical scrub for any C-Sections, tubals, etc that might be done in labor and delivery along with delivery the babies. Earlier this year she started her training on being what is called a first assist. This allows her to…
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second opinion hospital Fox chase vs Hopkins
Just wondering about people's experience with these two hospitals I am leaning towards fox chase based on location. Background...it is for my Father I live out of the country but will be in town to help him through the initial process, and depending on procedure & timing would be able to fly back to assist him. The…
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Celebrate Life
When we enter this site, we see in large print , CELEBRATE LIFE, so we can feel better about ourselves, please , as you do something nice to celebrate life please post at this thread........no negatives...only positive experiences, etc allowed. Just post from time to time as you do something nice.....I believe that this…
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Just scheduled my surgery
Tuesday, 9/14. Now the countdown begins...
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Dad doesn't know what procedure is best
After posting on another thread I thought it might be best to start a new thread...as each case is really individual. Just looked through my father's paper work again... Earlier this year PSA dropped to 5.9 from 6.6. It was 5.2 at the time of his biopsy. Now he has a PSA of 8 and a Gleason of 8...Although it states in the…
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For those that still have a prostate gland and are worried about their PSA
I don't post often but thought it would be of benefit to do so for those that elected to have brachytherapy or radiation treatment rather than removal and still have a PSA reading which concerns them. I had brachytherapy in January 2008 (age 66 at the time) and have tracked my PSA on a fairly regular basis since then. My…
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Any one else? Residual pain 2 1/2 months after surgery
Seems odd but I sometimes get some minor abdominal pain and occasional moderate pain in area where prostate used to be.. Usually more pronounced when "squeezing area".. Surgery was 2 1/2 months ago..I feel great and PSA was less than one so I am not worried..just seems odd that this pain is there.. not all the time but…
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Dennis Hopper
Most of us know Dennis Hopper passed recently due to prostate cancer. I read he was diagnosed in 2002. Does anyone know what treatment he received?
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Androgens and rad therapy post daVinci
Back again with another question. Prior to my daVinci surgery in June 2009, I was lead to believe that the "gold standard" was surgery plus radiation (the rationale being best chance for total removal in mind and body of CA). I was unable to follow with the radiation immediately after surgery due to incontince. Did…
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Mayo Clinic Study Shows Advanced Prostate Cancer Previously Considered Inoperable May Be Operable, C
An interesting read for anyone who has had surgery or considering with Gleason 7... ScienceDaily (Apr. 12, 2005) — ROCHESTER, Minn. -- New findings from Mayo Clinic indicate that cT3 prostate cancer, a disease in which the cancer has spread locally from inside the prostate to immediately outside it, is operable and has…
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Post PC...... what other CAs to look for?
Age 59 Diagnosed in Aug 2009, Radical removal in Oct 2009. Gleason was a 7 Post Op PSAs (3) have been zero What are the odds of CA popping anywhere else........and where to check.... to make sure.
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new patient needs advice
After a routine physical exam in South Carolina turned up loss of kidney function, I was diagnosed with Gleason 9 prostate cancer with some bladder infiltration during TURP surgery in Dec. 2009. I am 60 years old and my PSA had been 1.4 and holding the last four years or so. CT, bone and Prostascent scans show no bone or…
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New to the group
In January 2010 my PSA was 978 and in early February I had a biopsy and bone scan done. Biopsy was positive with a gleason of 3+3 and bone scan also came back with mets to pelvis, femur and spine. February 22 I underwent orchiectomy surgery and started daily casodex treatment. As of June 1st my PSA went to 0.1 and I am…
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People Don't Know What to Say
A lot of these posts have talked about finding humor where you can in this mess. I thought I'd share something that has become a punchline among ny cadre of PCa survivors. I mentioned before that my younger brother was diagnosed 7 months before I was. When my nephew was telling his girlfriend of his father's diagnosis, of…
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77 year old wants surgery
Dad received diagnosis of Gleason 7, Stage II Prostate Cancer and is set to see a urologist in another city to discuss treatment options. The biopsies were positive "throughout" the prostate. The wait is very difficult and he's reading up on this. Would really like to have the surgery, but wondering if most surgeons truly…