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Out of Surgery
First thanks for all of your wishes as I went into surgery on Monday. I thought I would share some of my experience throughout the last three days (before I forget or need to rest again). I started a full liquid diet two days before surgery and went from hungry to not so hungry. I kept myself real busy on Saturday and…
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Cat scan and nuclear bone scan
Hi I am a fairly newly diagnosed prostate cancer patient and this Friday I go for a cat scan and a nuclear bone scan. It is to see if my cancer left the prostate and if not I am going to go for the Davinci so my fingers and toes (yes both) will be crossed until then. I seem to be edging closer to a conclusion and am…
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Proton Beam therapy
I have a web acquaintence that I have spoken with on the phone recently who underwent Proton Beam therapy at Loma Linda last summer. He is in his early fifties and has done real well following the therapy. I don't seem to find much information on this forum about Proton Beam therapy, and haven't seen many posts here from…
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Tomorrow is the big day
Hello all, Tomorrow is my robotic prostatectomy. It seems like a long time since I was diagnosed in late May but I am ready for surgery and beyond. This forum has been ever so helpful in getting me to this point. Thanks to all of you and good luck on your decision making and/or healing. Bill
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I hope someone can help me!!!
My cousin who has prostate cancer and is 46 years old is so embarrassed about having radiation on his penis. Is this normal?? I don't want him dieing with being so embarrased about this situation. I have volunteered for the American Cancer Soc. for years and would love to beable to help people out more! I have told him…
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hope??
Hi all I have been here before and theres 1 question I must ask. Is there anyone here who has had davinci and not had incontience issues? I hate the idea of a diaper (sorry no offense meant) and I have to work a heavy lifting job and from what I read here and elsewhere i have to deal with this issue. i know this sounds…
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Leaning Now towards External Beam Radiation
Today I saw my Urologist and he confirmed that the cancer looks to be contained within the prostate. I was leaning towards traditional surgery, but since I have a weak heart due to Congestive Heart Failure and a gaft implanted in my left leg due to Vascular Disease the Urologist said there may be complications and high…
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10 days after surgery - margins involved by tumor
I had laparoscopic sugery for pc 10 days ago and was hoping to come away with a clean final pathology report. I'm 56 years old and frightened for my future. I've been healthy my entire life with the only surgery being at age 18 for an appendectomy. About 6 months ago, during a routine blood test, my PSA was 4.2. My family…
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can't sleep
I can not sleep, getting 3 maybe4 hours a night .Have had rad prostatectomy in Nov. 2009, followed by lupron had a 4 month shot and a 3 month shot the last one ends Aug.13. Also completed 45 radiation treatments. Still have some cancer cells. PSA 3. considering not having 3rd shot in Aug want to wait 3months see what…
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Husband's PSA is now .18 post RP 8.5 years ago
My husband Paul is now 71.5 years old and had a regular RP 8.5 years ago and the doctor said the pathology reports said the cancer had penetrated his urethra, but that is was possible since it was on the border all it may have been cut out due to where he had to cut. For the past 8.5 years, Paul's PSA tests have come back…
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Support groups in Philadelphia, PA area
Does anyone know of any support groups local to me here in Philadelphia, PA?
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ELEVATED PSA
I HAVE AN ELEVATED PSA AFTER RADIATION OF THE PROSTATE. IT HAS NEVER GONE DOWN. THE FIRST WARNING WAS 14 AND ELECTED TO HAVE TOMOTHERAPHY (41 TREATMENTS). SINCE THEN THE PSA HAS NOT BEEN BELOW THAT AND IS NOW AT 56. I HAVE HAD BONE SCANS AND MORE BIOPSIES THAT ALL ARE REPORTED AS CLEAR OF CANCER. DOES ANYONE HAVE SIMILAR…
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diagnosed today
Hi everyone, Just diagnosed today with PC. Stats are: 10 cores taken Number of samples affected 2 5% and 50% Gleason 3 + 3 T stage T1 PSA 5.5 I'm seeing the surgeon and oncologist in 2 weeks but I'm edging towards the robotics. Obviously a bit shocked at the moment but most people on here seem very positive so any advice…
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Is Hormone Treatment after Radiation What Most Get?
Currently, I am at the end of the staging phase. And about to pick a treatment. I am 54 years old, have a PSA of 6.4 and Gleason Score of 7 (3+4). I am leaning towards surgery. But still open. Talking to the Radiation Oncologist he says with the External Beam Radiation hormone treatment is generally required afterwards.…
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radiation and colon damage
I was diagnosed with prostate cancer in January 08. I had 40 radiation treatments in Feb. and March of 08. Before the treatments were over, I was bleeding from the rectum. My doctor said not to worry. But I have gotten worse. I had surgery in April 09 to burn the bleeding points. It has not helped. I am looking for…
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Pain when urinating and in the rectal/perineal area. Your experience please.
Hello all. I don't know is this has been made into a subject, so here goes. This was one thing I did not read about pre-surgery. I am 1 day shy of 5 weeks post surgery. Went in last Thursday for my first PSA blood draw. I talked to the Doctor about it and he said it was just part of healing. I have read on the healingwell…
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Advance Sling Recipients
To All: Anyone who has had the Advance Sling in the last 18 months---please respond to this post with your experiences, results, and quality of Life. The time is approaching for me soon and this is the direction I am headed. Appreciate all your comments. I know since this is a new procedure unlike the Invance Sling--I MAY…
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Read replys and ????
Hi and good luck to all those patients who have made a decision either way. I havent got that far down the road yet and am sorting through this mountain of information both here and elsewhere. I had some bad side effects with my prostate biopsy and am therefore more scared than I should be. Seeds or surgery? I only want 1…
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PSA rise after DaVinci
After a 0.3, 1 month post-op, I just got a 0.4 at 2 months post-op. Just got the news and have not talked with my Dr yet...but think it might be necessary for a MRI or CT scan & possible radiation. Anyone else have experience with PSA rising after surgery???What action did you take? George
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How to pick a doctor
Hi i live in northeastern Pennsylvania and have a problem, it seems I cant figure out a way to find an experienced doctor in my blue shield network. They wont recommend a doctor and the specialist I have I really dont trust. He seems to want to rush me and never told me the doctors name that he wants me to see. If any of…
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What is perineural invasion Posted by NM
I have this phrase throughout my cancer report and am confused as to its meaning. Any help would be appreciated. Also my dad had PC and choose radiation, And his cancer went to the bone i believe 7 years later. Is this normal for radiation? Right now i am leaning to removal of mine but am as yet undecided. I would like to…
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Just getting started
Hi I am new to all this as having been just diagnosed and seem to be rushed into a quick decision by my urologist (he wants robotic surgery for me) My gleason scores all seem to be 3+4=7 and some segments say positive for perineural invasion. I am trying to research all this and am now completely lost. Any advice from…
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Research Update Dr.s Menon and Tewari from JUST DIAGNOSED WHW
Thanks to all you guys and your valuable info I have been conducting additional research as to what to do and where to do it. For Quality of Life issues it seems the best route for me is surgery. Everything I have read points to Dr. Menon with the Vattikuti Instiute of the Henry Ford Medical Center as one of the best. He…
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Just Starting Lupron
My 48yr old Husband started Lupron Shot 6/26 after radical prosectomy 5/14/09. path stage T3c N1 MX..Post Operation PSA 1.0. Radiation is sheduled Late Aug/ Early Sept.. So far no real side effects.. Also using Trimix with some success - a little leaking with that otherwise, completely dry even with heavy lifting and…
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Veil of Aphrodite Nerve Sparing
Is anyone familiar with the Henry Ford, Vattikuti Urology Institute and their "Veil of Aphrodite" Nerve Sparing surgery? I am still doing all the research I can in preparation for my decision on what's the best way to attack the PC for me. Also, has anyone actually had their surgery done at the Vattikuti Institute.…
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PostOP RP
Hello ALL, I have been reading this group for a few weeks now since I discovered it. I was diagnosed with prostate cancer about 6 weeks ago. All of your discussions have been very helpful to me and I appreciate the CSN for this opportunity to network with others having similar circumstances. I have returned from the…
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Treatment Decided And Date Set
I have decided to proceed with robotic radical prostatectomy and will have surgery on July 27. Although I am sometimes anxious about the recovery period in the first few weeks following the surgery (and beyond), I'm ready to move on with this next phase. My wife and I had a nice vacation planned to Maine and the…
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Newly diagnosed - Need Second Opinion
I found out about 1 1/2 months ago that I have Prostate Cancer. Just had a consultation session last week with the Radiation Oncologist and he gave me the results of my bone scan and CAT Scan. The bone scan showed a couple of things which I was x-rayed for. I will get the results this week. The Oncologist did not think…
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Just found out Wed
Was just told Wed. that I have prostate cancer. Not really feeling anything at this moment. My wife asks on daily basis how I am doing and I tell her fine. My dr want to see me on the 30th, to sort of decied what way to go, either radiation or surgery. I've decided on surgery. Not sure on the date yet, that will be…
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Open vs DaVinci RP ?? / also question about Loyola University Medical Center in Chicago
Hello, I am newly diagnosed with a Gleason score of 6. I am considering RP and need to choose between open or DaVinci. I live in the Chicago area and will be seeing Dr. Robert Flannigan at Loyola University Medical Center. I am interested in evaluation between the 2 methods, as well as hearing from those with experience at…