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Ovarian Cancer

Archives for January 2014

Any of you ladies on facebook
Just wondering if any of you ladies are on facebook
hello...
I want to thank the ladies that have welcome me to this site. Some asked how did I hear about the site, I found it searching the Internet. I was suppose to get my scan today, but it was cancel due to bad weather here today. It was reschedule for tomorrow.
Any survivors out there of nonsmall neuroendocrine ovarian cancer with mets to brain?
First grandma had been diagnosed with ovarian cancer 2006, passed away from it 2010 (I think it spread to intestine, no where else). Then my mom got it, but a different cell type-nonsmall cell neuroendocrine ovarian cancer, Jan.2013, had hysterectomy, finished Etoposide and IP Cisplatin July 2013. Everything "fine" for 2…
does it deem like carbo/taxil side effects worsen after a long time on it?
I started tx in May '13 & felt I had very few real problems Recently had a tx last week & feeel aches & titredness might be more intense--also I am post debulking - from Oct. have any of you thought this thanks for your time Susan P from Alberta Canada
frozen section vs full pathology
I had a large mass removed from my right ovary. (size of a softball) CA 125 was high at 120 frozen section came back neg while I was in surgery has anyone had that happen but then had the full pathology came back positive for cancer? I don't want to put my guard down just yet. 7-10 days to hear the full news. Please let me…
hello...I am newbie here
I was diagnosed with an rare ovarian tumor back in October 2013. I had to do 20 rounds of chrmo therapy 5 days straight and 2 weeks off. I did my last round the January 6-10. I get my ct scan this Tuesday. I have been keeping a positive attitude since all of this has occurred. I hope this forum is as supportive as I was…
HELLO, LADIES!
I haven't forgotten about any of you. I've had trouble getting onto the website. Had it set as a 'favorite', but after I googled ACS I noticed the address had changed. Anyway, tried to do a little catching up today. Some of you may not know me, but I've been around here for a long time (dx in 2000, recurrance in 2006, and…
G'day, dear Aussies!
To all our beautiful Sheilas Down Under - Happy Australia Day!!!
scan of the liver was clear...
Everything looked fine except for some 'nodularity' on the omentum (which I thought was removed). I'm taking it as all good. So grateful! Susan
My day
I made it another year! Today is my birthday....not long ago I didn't think I would. I don't mind getting older..I am alive and living my life! I will eat good stuff today and celebrate more birthdays. Have a great day everyone and stay strong.....Val. :)
Alexandra.....
I love your hair. Is it your own or one of your wigs? You look fantastic....
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Emotional Roller Coaster
I don't know where to start but I guess with alittle history - I was 38 years old when I was diagnosed with Ovarian Cancer in stage 3b. I found out December 23, 2008 and I had surgery December 28, 2008. It took forever to get diagnosed because of the insurance company. By the grace of God, my doctors kept pushing for the…
Lasting Effects from Chemo being brushed aside by my oncologists.
Hi, this is my first time posting here. I was diagnosed with Ovarian cancer 5 1/2 years ago and recieved chemo (Bleomycin, Cisplatin, and Etoposide) for 4 months then cancer free! Yay!!! However during the treatment i kept asking my oncologist about the increasing numbness in my feet. Each time I asked this question it was…
Crap, it's back...
Just read an e-mail from my Cousin in Michigan... her CA126 has been going up big time.. and a scan told the tale... the Crap Cancer is back.. Neck, Liver and Lymph Nodes near the Vena Cava... Boooo........ I sent her an e-mail with some info... thanks to you ladies... and of course I told her she can call me 24/7. No, I…
CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
How to survive cancer?
Hi I am new here. I feel terrible because my best friend has ovarian cancer, she is only 26 years old. She undergoes surgery and a lot of medications. She is in deep pain and I feel that I can't do anything to make her feel alright. I searched every information I can find to know how to survive cancer, but I know your…
Leesag, how are you doing?
I have thought about you often. I know you have been a great strength of source for myself and others on this board. Carla
Went in for what I thought would be a routine onco visit and pow!
had my every 3 month blood work done for my medical oncologist visit today (breast cancer) and was ok with a slight rise in my ca125. It's the 4th rise in a row....4, 5.1,8,14, and now 17. The onc told me that my liver enzymes have been rising and he is concerned that with the rising ca125 that there might be mets to the…
Sad news
Hello Ladies, Just received some very sad news. My sister in law just had surgery and has ovarian cancer. They have said it is either stage 2 or 3. I have been praying that she would be fine. Her CA 125 was very low and within normal range. But she has had many other symptoms and issues that we all know so well. I just…
Struggling and losing hope
I could really use some help. My mom was diagnosed with Stage IIIB ovarian cancer in September. Total shock. She is in her early 70s, has led a clean, active life. She had debulking surgery in early October. That surgery included a colon resection (doc says he cut some cancer off the outside wall of the colon - whatever…
Repeating drugs? How many different drugs are there for OVCA?
Hi Ladies. I posted that my latest scans were not good, as lymph nodes in the abdominal increased not only in size, but now there are numerous more, including a mantle of them. I was stable for about ten months with Doxil. I am now on topotecan, 3 weeks on, one week off. I have had 3, and resume this upcoming Friday. Dr.…
Who diagnosed your ovarian cancer? I am so frustrated! Please help
I posted recently in this forum about some issues i have had recently, and i was waiting on results from my well woman exam, and then i was going to discuss the issues i have been having with my OBGYN. I sent the doctors office a message online, seems you can send it directly to your doctors office (their phone system…
Did anyone else have similar symptoms?
Around mid November i had extreme bloating. It was really bad and came on randomly. I have had this once before back in May, accompanied by lower abdominal pains due to being constipated. One visit to the doctor, and he prescribed me something that helps with constipation/bloating/constipation pain, and within 5 days all…
Looking for answers
In short. Mom 81 recurrent ovarian cancer on 4 th recurrence only in lymphnodes behind stomach small spot on lung that has been there for ever and same with thyroid lite up during scan . She doesn't want anymore treatments. How slow growing is this monster. Also began suffering from delirium. Trying to keep her at home…
Trans-America Road trip
I've done a lot of overnight travel for work, but it was always on a tight schedule with no time left to stop and smell the roses. Places I mostly covered were: MI, OH, IN, KY, SC, TN, MS, AL and Mexico. I always wanted to travel across America. Just me and my GPS, with no planning, no hotel reservations, to drive, to stop…
Genomic testing
Im kind of at a crossroad with treatment I started back in May of 2013 This is the short version of where im at now . In May did a couple rounds of carbo had reaction and had to stop that treatment Ca125 went from 151 to 51, continued on and used Avastin that maintained it for short time numbers went to 99 did 3 rounds of…
2 Years ago today
It was two years ago today that I had my debulking surgery..... I am very thankful for all of you for your support and love. You truly are a great bunch of people. I am feeling great and my last ca 125 was 5.8... Love you all.
Poor and sick.
Im 27. For the last month I've had multiple symptoms including bloating, cramping, lower back pain, dull achey lower back, my right side has a dull pain as well, constant urge to go, weird bowel changes, shortness of breath. I'm not sure if I have an apetite or not but I've never had much of one. For the last year or so…
Second opinion? How do you know when you should seek one?
Got the results from my latest CT scan last week. Long story short, it shows “something” on my spleen. My gyn/onc surgeon thinks it may be a recurrence of my primary peritoneal cancer (which is treated exactly the same as ovarian cancer). My CA-125 number has been slowly rising since summer & is now 44. The surgeon…

Ovarian Cancer

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