Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Archives for August 2013

Test analyzes chemotherapy effectiveness for ovarian cancer
Test analyzes chemotherapy effectiveness for ovarian cancer Pittsburgh Post-Gazette (PA) 08-26-13 Aug. 26--Despite the many chemotherapy drugs for ovarian cancer, none is fully effective, which means the cancer commonly recurs. That poses challenges for physicians, who must use knowledgeable guesswork to figure out a drug…
So many questions
Hello its been awhile since ive had so many questions and concerns. Im currently in treatment again i made it 11 months before having to start over. I started on carboplatanum for 1 treatment then i had severe reaction im currently taking Avastin, ive done 5 rounds of that and at the 4 round my numbers went from 28 to 86.…
STILL STABLE!!!
Hi Ladies. I had ct scans yesterday. Disease remains stable. I've had 8 rounds of Doxil. He said we will continue on this same treatment schedule and scan again after 3 or 4 more treatments. So thankful. Hope all of you have a great day and upcoming holiday weekend!! Carla
STILL STABLE!!!
Hi Ladies. I had ct scans yesterday. Disease remains stable. I've had 8 rounds of Doxil. He said we will continue on this same treatment schedule and scan again after 3 or 4 more treatments. So thankful. Hope all of you have a great day and upcoming holiday weekend!! Carla
Allow me a little closure....Please
I’ve been here a mere three years. Some of you have been here longer than I. Some here are new to me. Some, who were here when I joined, are gone. I deeply miss my dear friend, CarolenK (aka LaudryQueen), who I met here years ago. I still cry when I think of her. She was an amazing, well-read woman. I’ve observed a lot of…
Bummer
My computer won't boot up. I am writing this from my phone, I'm on my third try. I went online on my kindle and found suggestions to check power zource. Had my son check but nothing. He says it"s time for a new one but it's less than five years old. I don't know what to do. The computer is my biggest form of entertainment.…
Just saying------
To all the great members here: I thought I'd like to express to you, How I feel and my point of view, And how fortunate I was to find A Discussion Board of this kind. There's a problem we all share That is why we gather there To talk and question how we can fight This beastly disease with all our might! Now we are a…
New member and looking for new dr/2nd opinion
Hi, I am really afraid I have ovarian cancer. I have a cyst that is 2cm? But I am so bloated and have been for over 6 weeks! And my periods are so heavy and irregular. And I have pain after sex and I have to pee suddenly. my dr thinks I am crazy. I am searching for a new dr. she wouldn't even tell me what kind of cyst and…
God?
Love this post from another site so much I wanted to post it herHop hope istrengthens someone today!
September is Ovarian Cancer Awareness Month
Be ready to don your best teal wardrobe and accessories for North America’s Wear Teal Day on Friday, September 6. Go shopping!!!
Clearity Foundation
Interesting article on the Clearity Foundation. I found it on a former ACOR member's blog, Ovarian Cancer and Us. link to article: http://tinyurl.com/ky6umn2 link to Ovarian Cancer and Us: http://ovariancancerandus.blogspot.com/ Barb P.
ca125 question
Have you felt different physically when you have a high ca125 vs a moderate or low score?
Peripheral neuropathy treatments
I came across this website http://www.peripheralneuropathytreatments.com while researching magnetic bracelets / anklets. They are selling this expensive ($759+) gadget called "The Rebuilder", that claims to cure 95%, reverse or at least reduce pain caused by neuropathy. They are also selling the Magnet Therapy Kit that…
Tumor blueprint done through Clarity Foundation
A good article from UT San-Diego on genetic profiling: something to consider when you are out of options http://www.utsandiego.com/news/2013/Aug/14/clearity-ovarian-cancer/?#article-copy
Today is my birthday
I am a year and a half NED and am turning 47 today! Thank God for prayers answered......I will never, ever complain about growing old again lol
Oncologist/gynecologist Nashville or south
I recently moved and am searching for new doctors. I have in the past gone to an Oncologist and a gynecologist. If I find a gynecology oncologist does this doctor do all of my checkups? Or do I need a separate gynecologist? Also does anyone have a recommendation for a doctor in the Nashville area or south to Pulaski.…
I learned a new word today!
Everything below is kinda embarrassing, so if you have no vagina - stop reading and get out of here. About a month ago I noticed a new curious symptom, like tiny farts or air bubbles coming out of vagina, mostly when I change positions or caugh. It did not bother me until I started researching this phenomena and concluded…
Frustrated, but hopeful
Hi Ladies, I really need some advice/guidance/suggestions... I was diagnosed w/micropapillary serous carcinoma 3C in 9/11, finished chemo just this past February 2013 (I was part of a clinical trial of Avastin, that's the reason it went on for so long) My CA 125 did get down to 9 but started creeping up since past…
New member and searching for answers
I'm new to this site, found it while researching for answers to better understand the tests my dr is ordering and what he is telling me. Basically I am at the point of having a ca125 test done. He says it's just a precaution and that he thinks that the 'complex' cyst I have is probably benign. He said if my numbers come…
Dogs sniff out ovarian cancer
Hello ladies, my friend sent me the interesting article (hopefully you can click through to below or you may need to copy and paste) about dogs being able to sniff out ovarian cancer. No mention of how "soon" they would catch it but wish these dogs were everywhere!…
A better result for me!
I am thrilled to be able to tell you that finally, after 7 consecutive rises in my CA125, I have had a drop!! Just a small one of 28 points but at least it is now heading in the right direction! This week I had my 6th cycle of Topotecan over three days and my 4th infusion of Avastin. I believe the addition of Avastin has…
Olaparib update
Just checking in with 4 month results of being on olaparib. Ca 125 has went from 247 to 16! Never got that low with frontline chemo. I'm thrilled it is working. I will continue to stay on it as long as it is working. Thanks for reading and your support:).
Naturopath Update
For those of you who have seen my posts about my naturopath, the one who is a 22 year survivor of stage IV ovarian cancer, and the one who I credit with keeping me NED for 3 1/2 years, and counting, she will not be taking new patients after November, for an indefinite period of time. So, if you've been thinking…
No bowel obstruction, but miserable
Hello all, This is my first post. My mom was diagnosed in May 2011, and it's been a rough two years. She never achieved a full remission, and her longest stretch off of chemo was 6 months (she's in chemo currently...on her fourth drug, I believe). Good digestion has always been a struggle through the chemo. She would find…
You know you're growing old when...
- Your friends compliment you on your new alligator shoes and you’re barefoot. - Your doctor doesn’t give you x-rays anymore but just holds you up to the light. - A sexy guy catches your eye and your pacemaker opens the garage door nearest you. - You remember when the Dead Sea was only sick. - Your husband says, “Let’s go…
Question
Hi everyone. Hope all is well. I was just curious of how quickly symptoms escalated. The past 3 days I've been feeling worse and worse. Cramps, bloating, backache. I am about to get my period as well, does that make it worse? I typically never have SMS symptoms. I just feel so weak and exhausted that even the act of eating…
New member
Hello, I'm from rural Illinois, straight west of Chicago. I was diagnosed in Jan. 2008, at age 57, with stage IB ovarian cancer. I actually felt my tumor and had surgery only. I'm a retired elementary school librarian, married for 44 years (to a husband who has had 3 different cancers). We have 2 adult sons. One son is…
August roll call
Lynda is here for August and feeling pretty good. How are all of you doing today?
New member
Hi, I'm new to your discussion board, but not new to ovarian cancer. in fact, I'm a 12 year survivor. I used to belong to the ACOR discussion board, but it has closed, and we were sent to a site called SmartPatients. I joined it, but I don't really like the format there. I was dx with stage Ic endometriod orca in 4/01. I…
Kikz (Karen) - how are you?
I hate to bug you if you want to lay low, but I was wondering how you are doing? It's been a while since we've heard from you but I know you have a lot of challenges and a heck of a lot of crap to deal with. Please post when you can. Kelly

Ovarian Cancer

Discussion List