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Ovarian Cancer

Archives for May 2013

dysgerminoma?
I had a concerning ultra sound. I am due to have a total hysterectomy at the end of July for adenomyosis and pcos so my Ob/Gyn decided to do a ultrasound. My right ovary was normal but my left ovary was significantly bigger. No one wants to hear a ob/gyn say "What is that? I wonder what that is? I've never seen this…
2nd chemo down and onc gave me good news!
I was a few hours into my 2nd infusion when my onc appeared. She was beaming and asked if I had seen my numbers. I said no, what is it? 25 she said. I said, 25! You mean down from 171. She said no the result before my first chemo was 191. I guess I didn't get that result. I asked jokingly, can we stop with this chemo? She…
how long for hair to grow back
how long after your chemo does hair grow back i was doing bep for one week switch over to carbo and etopiside?
Ovarian Cancer Patient Education Day in Toronto
Today I attended Ovarian Cancer seminar organized by Ovarian Cancer Canada and Sunnybrook Odette Cancer Center in Toronto. About 100 patients and caregivers came to this event. Agenda was quite intense and plenty of time was allowed for questions: - Ovarian Cancer and You - by gyno-oncologist with emphasis on hereditary…
Primary ovarian leiomyosarkoma or ULMS? Which is worse????
I am waiting for the answer and don't know what to wish for!!! I searched for information and was severely depressed ...please help! Is it so fatal as they say? Are there any survivors among you ? How difficult was it? Who was your doctor ? Is anyone from Greece with the same diagnosis? I would appreciate any answer !!!
I hope I am not counting my chickens...
but ever since yesterday I feel like my heart is back to normal. I just feet like myself. Today when I showered I did not get totally fatigued like I have been. I would get out of the shower, wrap myself in a towel and lay on my bed. Today I got dressed, picked up around the house and did some dishes. I told my son and he…
Bald is beautiful, part II
Well ladies, my hairdresser is coming to my house tomorrow to give me a buzz cut. Thirteen days from my first chemo infusion, like clockwork my hair is falling out. Exact number of days as 2010. My scalp started hurting over the weekend so I knew what was coming. There is no hair on my pillow but today I pulled on my hair…
How effective is post surgery chemo?
Hi In jan 2013 my wife was diagonized with overian cancer. She had a surgery that removed the tumour. Biopsy revealed that she has borderline low grade serous carcinoma. Being borderline and the fact that she is in her thirties, the doctors have not recommend any chemo. Only periodic check ups. I was wondering if anyone…
Where is Wholfmeister?
I have missed her positive comments and great insight for several weeks. Hope all is well.
Girlfriend passed on 5/5/2013
My girlfriend passed away after a long battle of Ovarian Cancer a few weeks ago on May 5th she was at home with Hospice Im holding a online fund raiser to sell things to pay for her services E.T.C. Im not asking for donations just selling our things to get funds If anyone knows of other sites were I can post it would be…
Seriously...?
I went into chemo determined to have an easier go than three years ago. I was proactively trying to drink enough fluids (ugh!) eat well and rest. I was doing great. Had chemo on May 7th and began to feel sick on Thursday. I continued eating, I had an appetite and the smell of food didn't bother me. I felt like eating…
Finally able to resume Doxil treatment today after a five week delay.
Hi Ladies. My platelet count went from 63 last week to 110 today! Yeah! It was scary having a delay, as I'm sure all of you understand. Dr. reduced the dosage by 20%. This was number six. He wants me to have 8, then scan again. Hope all of you are doing well!! Carla
Chemo over ...... at least for now!
Thought I was having the rest of round 5 of the IP chemo this week but my oncologist said I should quit for a while, maybe for good. I felt like hell, and was experiencing some potentially irreversible side effects. He didn't want to exacerbate them. So he will monitor me weekly and make a final decision in a month. CA125…
Kudos to Angelina Jolie
Kudos to Angela Jolie for going public about her BRCA status and the difficult decisions to be made around it. As a BRCA 2 survivor of both Ovarian and Breast cancer, I only wish I had known about genetic testing after my mother died of BCA in 1996. This gene mutation has been around since the early 1990's but never a word…
Think I have ovarian cancer
I'm 62, had symtoms of ovarian cancer for 6 months, been to see my Dr but he dismissed it as age related, well now I'm so sick my tummys bloated, feeling full, sick, pain in pelvic area and in my legs and back. After reading online about the symtoms of ovarian cancer I asked my Dr for tests, I've had blood tests going for…
How many sessions of chemo therapy are enough / appropriate--?
Hi, I have gone through 7 sessions of chemo therapy but my doctor wants me to have 8 sessions. I am scared that it will cause more damge to me because I did not hear anybody having more than 7 sessions---! I need help here please-
Happy Mother's Day
Hello Dear Ladies Wishing all the mothers, grandmothers and greatgrandmothers a very Happy Mother's Day. May your day be filled with peace and happiness and love.... Great big hugs to all Lisha
Cost for Chemo Therapy
Hello All I am still recovering from the shock that my sister has been diagnosed with stage 1C ovarian cancer a week back. She noticed abdominal bloating and post CT scan was operated for the same. The onco surgeon found a 7 kg tumour on her left overy. There was a small rupture and the fluid inside it was flowing out so…
Happy Mother's Day to All
Ovarian Walk- FYI
www.ovariancanertogether.org has a walk in Richland, WA May 25.
Its been a while.....
I just wanted to stop by, check on everyone. I often think of this board, of the love and hope all of you gave me while my mother was fighting. Your kindness when she suddenly passed in September 2011 was wonderful. Its amazing how things have settled, how the pain while always with me, has become something Im learning to…
One down, five to go.
First I was pleasantly surprised to find out I am having 6 infusions. Since my onc had said it was six months, I counted 8 or 9 at three-week intervals. Of course the six have to do the trick. It went pretty well. The first IV placed under my left index finger began to hurt after a couple of hours so she started another on…
Today is World Ovarian Cancer Day
Get out and spread the word...little symptoms ,awareness ,just talk about to your friends and family......and wear you teal. Stay strong.....Val
HUGS TO YOU ALL!
Hello, Ladies: Haven't been here in quite a while. Life has been throwing us a few curve balls, and there have been many challenges since just before the new year began. But I wanted you all to know I think of you often and pray for you always. I see many new 'faces' here, and it saddens me that so many women continue to…
Port a Cath
Hello Everyone, Am new here and I'll be brief. I woke up from surgery and already had a Port a Cath inserted into my lower abdomen. Not happy that I did not have a choice in that. Dr. keeps saying it's "nothing" and minimizing the idea of an alien form in my body. He is resistent to removing it. I have questions about…
Smart Patients
There is a new web-site for cancer patients and caregivers called www.smartpatients.com. It is migrating users from ACOR.org - Association of Online Cancer Resources and so far is mostly populated with kidney cancer patients and parents of children with pediatric cancers. However site owners have larger plans for ACOR Jr…
Alexandri
How is work going? Do you jazz it up by wearing a different wig everyday? You do have one for every day of the week. LOL . I know you had said once that you were really tired... Is it getting better?
Trial: anti-PD1 and anti-KIR combined
IS ANYONE PARTICIPATING IN THIS TRIAL? This trial sounds very promising. It combines two experimental drugs, the much-sought-after PD-1 drug BMS-936558 (nivolumab) and an anti-KIR drug BMS-986015. This trial is available to qualified patients with colorectal cancer, kidney cancer, melanoma, NSCLC (non-small cell lung…
chicago area NOCC walk
We did our walk today!! It was a run/walk. Half of my team ran and the other half walked. We were at cellular field in Chicago. It was great. My team was able to get 27 members and $1,670. 00. We are proud and glad to have been a part of making awareness for ovarian cancer. I hope our money contributes to research to get…
We Moved.
We are moved and setteling in... After a very emotional night last Friday we are here safe and sound. A bunch of our friends and neighbors came to help us pack the truck.n All was fine and dandy untill we had to start saying our good byes. The boys grew up with my best friend's girls. When they moved into our neighborhood…

Ovarian Cancer

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