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Ovarian Cancer

Archives for November 2012

Another drop!!!!!!
I posted my last CA-125 that was after surgery but BEFORE chemo and it had gone down from 84 to 11. I had another test done after one cycle of 3 weeks. Carbo on the first week with Taxol and the two following week of taxol and it was 5. I am so happy. 5 after one cycle. The Oncologist Office is pleased too.
Dizziness
Hello everyone, I am 35 years old and stage 4 ovc. Had 6 rounds of Taxol with carb. My ca125 was down to 8. Now in a clinical trial and on 3rd round of lower dose taxol. My ca125 up to 14, but my onc just calls it noise for now. I was wondering if anyone else experiences dizziness. It started during my first chemo and…
How do you know if your platium sensitive (Carbo)
People on this site talk alot about being platium sensitive. What does that mean? Does that mean you have an alergic reaction or does it mean you don't have an allergic reaction but the drug is not working for you?
Mamogram Today
Being that I was told I was BRCA1 positive I was nervous about my mamogram today. Well I was nervous for no reason. All is clear with this one. In June I will have a breast MRI and then my regular mamogram in November. They are watching me close and I am good with that for now. Now for my next follow up and CA 125 check…
New Today..not happy
I had an oncology visit today. There were still some questions I had that were not answered. One of them was my Grade. The doc told me I am grade 3. So I am Stage 3c3. I am freeking out. Is this going to change the outcome for me? Is there anyone out there with Grade 3 that have had a long NED?
zinaida
Yipppppeeeee.... read about your lowering numbers on another post and wanted to say how pleased it made me. ((((HUGS)))) Maria
Thanks to all the wonderful ladies ,I think teal sisters have the biggest hearts..
Well got one under my belt,I was there for 9 hours because they did the normal slow drip.Everything went fine just had a little dull headache and some tummy cramps when i got home.I go back tomorrow for 4 hours just the cis.one i dont know how to spell it but im sure you know.Thanks again you are in my prayers hugs from…
Lousy. Few Weeks
My condition has not babe good Worsened nueropathy in feet and fingertips ,vertigo.fatuige. We were in Orlando, used wheelchair in airports. My mom palaces while donn there and. Yesterday she was laid to rest. Couldn't make my Live strong at the Y and Thusday I will see mu gyn/onc for maybe diffent chemo. I think I am…
I start chemo again in the morning,first reacurrance...help me please under stand this new one to be
Well i have been waiting for little over a month for my new ong.dr. to get me started on chemo ,not looking forward to it just want to get it over.My question is have any of you ladies had carboplatin/taxol/avastin,I have tried to find out as much about the avastin as i could ,i've heard good and bad..not sure the good out…
1 year later
I dont post alot but I do visit every few days. You ladies have been so instrumental in my journey with ovarian cancer. I have drawn so much strength and hope from this place. It has been a year since I was diagnosed. I finished my chemo in March. It has been a roller coaster for me. Very emotional for me as this was my…
Stage IV- my fiancé, 22 yrs old
Dear All, My 22yr old fiancé has stage IV OC and will soon have surgery to remove the cancer in her abdomen area. Due to have in Dec this year (2012) or latest Jan 2013. She is the love of my life and I want to be with her regardless of what happens. Is there anyone who can relate to this or advice us on pre- surgery…
New here
Hi everyone. Ive been looking on the net trying to find a place to chat with others that had ovarian tumors. I couldnt find anything that was not cancer related. I did come across this place and read some stories and posts here. Everyone seems so nice and supportive. My name is Melissa, and im 30 years old. About 6 years…
CA 125 results...not happy.
Had a terrific Thanksgiving and then received my latest results in the mail Friday. I choose not to call in for them because it makes me nervous. For the first time since I started the Tamoxifen in July my count went up. It has gone down steadily each month. Last month it was 24. The current count is 31. Of course I am…
CA 125 elevation and auto immune condition
Hello All I just joined the CSN today. I had chemo with IPT in July and since then my CA 125 has been within the normal range. Until last week that is - it doubled to 55 and I am freaking out that it might be a recurrence of the OC. But my bloodwork also showed that my TSH was elevated at 8 - so I am also hypothyroid now…
I'm so thankful for everyone on this board!
When I was diagnosed in Jan. 2010, finding this board was a Godsend. I felt free to ask questions and I drew hope from the many stories here. After being given the gift of NED after chemo, I wasn't here as often, but I lurked. I cried when I lost friends and mentors, but their stories and their strength inspired me. When I…
Good news?????
Today I found out that my CA-125 that was done on November 5th PRIOR to chemo but after my hyterectomy and dubulking surgery that it is 11. My CA-125 at its highest was 84. I guess this is good right. I am getting another one next week after 3 treatments and hope it is down even more. I guess that is good right? If it is…
HAPPY THANKSGIVING
To all my Teal friends, all caregivers, all survivors, and everyone else, too, have a very Happy Thanksgiving. I am thankful for your friendship and support! (((HUGS))) and Prayers, Monika
Advice please
My last chemo was the last of August but for the last few weeks I have had a bad case of acid reflux. The doctor has prescribed Zantac, Prilosec and Protonex (Pantoprazole) Nothing has worked. What has worked for you? Advice please. Cannot even have a decent taste for THanksgiving..Happy THanksgiving everyone.
Newly diagnosed with ovarian cancer
Hi! I went today to get the results of my uterine cancer /hysterectomy and was informed that not only do I have uterine cancer but they found stage 1a ovarian cancer. I am only 2 weeks out of surgery and I will be going back in two weeks for more and different biopsies. Then another 9 days if waiting.. i cant handle it!!!
Is it normal for a port to hurt still after 4 weeks?
I had my port put in the left side of my chest at the end of October. Sometimes it is uncomfortable when I lay in bed. It feels like it is pinching. Sometimes when I am just sitting watching tv I get a pain in it too. Is this normal? Does anyone else have issues like this?
new here.. Ovarian Cancer
I am currently a little over half way done in my chemo, I have stage 1c Ovarian cancer mine is called GCT or Granulosa Cell Tumor which I understand to be a rare form of Ovarian Cancer. Just thought I would introduce myself here.
How important is Optimal Debulking?
I have a quick question. Someone at my support group asked me this and I did not know how to answer. Here is the question. "If your GYN Oncologist tells you that your ovarian cancer (tumor) was encapsulated and he was able to do Optimal Debulking, how important is that in your survival chances?" Does Optimal debulking…
How do you handle the anxiety
Hello, brave women. :) I was hoping you could offer advice on how to handle the anxiety that comes with this disease. I was not what you'd call an optimistic personality before diagnosis, so getting cancer makes things rather more challenging. It's been about 2.5 years since my diagnosis of 3C, surgery, and chemo, but I…
staples
So staples are out today, that was quite the experience. Feeling better though. Have to go back in 3 weeks to discuss chemo. Also got the pathlogy report today as well it is stage 3c but already knew that but it looks like i will be doing 6 courses of chemo
advance recurrence
Hello everyone. I was on this discussion board a while back. I was diagnosed with stage 3c ovarian cancer. I have Bern going to my oncologist every 3 months for a check up ans ca125 bloodwork done. Well it just so happens that the ca135 was not picking up the recurrence. Now the cancer has spread even further. It came back…
Fever during Chemo . When to worry
I just had my second chemo this last Wednesday. I just took my temp and it is 99.3. At what point should you let the doctor know?
KIKZ
Love the mud run picture.... Looking good
transitions
I am an ovarian cancer survivor!!! That is a great statement to make. I am proud to make such a statement...and I do believe it. However, as life reminds us daily...there is always a "however"....Transitions of cancer is what I think of..... I survived....I'm glad for that, but it took a toll. One that I did not think…
phase 1 and 2 clinical trial patients
Hi, my name is Shannon. I have stage 4 ovc, and just started a clinical trial. It includes recieving a lower dose of taxol once a month for a year to prolong a reocurrance. I was wondering if anyone else has tried a similar trial, and how they are doing?
Has anyone heard from Anne?
I've been wondering how she is doing. Carla

Ovarian Cancer

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