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seromucinous carcinoma
Does anyone know anything about seromucinous (carcinoma?) ovarian cancer? I just found out that is they type of ovca I have...
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calling all prayer warriors please
CALLING ALL PRAYER WARRIORS I AM ASKING YOU ALL TO PRAY THAT THE BLOOD WORK I HAD DRAWN TODAY WILL BE NORMAL. I HAD BLOOD DRAWN IN JUNE AND IT CAMEBACK POSITIVE, WE REAPEATED THE TEST TODAY AND IF IT COMES BACK POSITIVE FOR THE T CELL GENE REARANGEMENT, THEN I WILL HAVE TO GO GET A BONE MARROW BIOPSY. I KNOW GOD HEARS OUR…
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Anne, how are you?
Hi Anne, Was just thinking about you, wondering how you were doing? Are you out of the hospital? Virtual hugs are being sent to you. You're also on my prayer list. Carla
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Connection w colon CA?
I have read some stuff indicating that women w ovarian CA are more likely to also be positive for colorectal. Now I have myself all paranoid since I have lower pelvic pain, rectal pain, intermittent problems w hemorrhoids, rectal bleeding, etc. I will talk w my oncologist about these symptoms, but does anyone have any info…
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New.
Good morning everyone. I'm new here so I'm not sure where to start. I guess when it all started. When I was 23, in 2010, I was pregnant with my 3rd child. I had a pap. My paps had been abnormal for a while, but this time it was different. A colposcopy and biopsy confirmed carcinoma in situ. I was told not to worry and my…
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Clinical Trials
Is anyone currently in a clinical trial or thinking about volunteering for a trial? If so what phase, where, and please describe your experience as much as you are allowed and comfortable with. I am considering a phase 1.
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CA 125 elevated due to endometriosis? - how much?
Hi, This is my first post and I’d like to say that I am so sorry about all the heart-wrenching stories I read on these boards. My heart goes out for everyone who needs to be here. I am an extremely concerned husband of the love of my life, and I am scared beyond words about her. Our story briefly is that she has been…
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Question for Leesag-Brain Mets
Leesag, I remember seeing that you had treatment for brain mets last year. I have a recurrence to the brain (nowhere else)in 3 spots that my team wants to treat with gamma-knife and then possibly WBRT (whole brain rads). Did you have this type of treatment and what can you tell me about it re: side-effects (cognitive…
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KimmyAnne question for you
Kimmyannne- I saw in another post you were diagnosed in January/ So was I. I was told at my hysterectomy follow up appointment on January 2oth. It was quite a shock to all of us inclding my doctor who thought I dodged a bullet. Because of that I had to go back in for another surgery to have the ip port put in.
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Dave, How is Tina?
Has she been able to have surgery yet? You both are in my prayers!! Carla
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Hello, my loves
I'm stopping in this AM to check in with everyone and let you know why I haven't been posting and greeting newcomers recently. My brother's pancreatic cancer returned with a vengenance. He had been clear for 2 1/2 years after suffering through the Whipple procedure. We are a small family group and I can't begin to express…
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hmm.. am I in this ballgame?
Hi all, I am a breast cancer survivor. Yay! (about the survivor part). I finished my treatment in early May, which consisted of surgery, chemo and radiation. So, for the past two months, maybe a little longer, I have been experiencing some symptoms that are scary close to symptoms of Ovarian Cancer. Had an ultrasound last…
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new member!
Hello! I'm a new member and extremely happy that I found this site and was able to create an account! I'm glad to be able to be in contact with people who are going through or along the same process as I am. My family and friends are a great support system, but sometimes it is hard to express how I feel to them because…
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This really sucks
Well it looks like Ill be taking a long break from chemo. Maybe 3 months the dr hasnt really decided what to do yet. The nupegen shots made me very sick and I ended up in the hospital again. 3 shots a day in my stomach for 12 days in a row all for nothing. They did a stem cell collection on me and it didnt go well. On…
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Vent time! Dr. appointment times changing on a fairly regular basis.
Hi Ladies, My dr. comes to our area once a week, USUALLY on Tuesdays. Anyway, I was scheduled to see him at 9:15 tomorrow morning (lab at 9:00). They called a little while ago and he won't even be there until at least 10:00. It's not unusual for him to arrive an hour or more late. He's at a different location every day,…
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Linda 1120
Hi Linda - I saw your response in my neuropathy post. You were diagnosed III C in 1998 and have been cqncer free for 14 years since. That is wonderful. I was diagnosed 111C in January and NED since the end of June. I am curious - did you do anything special to remain cancer free for so long? Any advice for us doing it…
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Neulasta
I was not able to get my chemo last week due to low platlet and WBC counts. We are rechecking the labwork on Monday and if all is well I will get it on Tuesday. I am feeling better with the extra week of "no chemo" but I know I really need it so I hope I get it this week. The doctor said he will lower my dose and give me…
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I walked 5k today
Today was the day I did the ovarian cancer 5k walk. All my family and friends participated in it. It was very moving. They made a short for me that said survivor and my name. They all wore shirts that said "I walk for Joyce Pratt" and a real ribbon in the middle. It was very moving. I want you to know I thought of you all…
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Hair growth
I have had 6 months of chemo dense (chemo every week) therapy. The first 9 weeks I missed 1-3 sessions due to blood counts. However the last nine weeks I have at least 6 sessions missed due to low blood or platelet counts. I have missed recently two weeks of chemo due to needing blood and low counts. I have noticed hair…
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I Pass The Purple Hat Onto All Of You
I got this in an email yesterday from one of my best buddies. It tells you at the end to send it on to 5 people so I copy and pasted and I am PASSING THE PURPLE HAT ONTO ALL OF YOU. It had a couple pictures in it but they would not paste. Passing the Purple Hat to You IN honour of women's history month and in memory of…
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Third hosptial stay in three weeks with a total of five stays in a month and a half
There has been too many stays with each one leaving me worst off than when I went in. this last visit my left leg has swelled up so bad I can hardly walk on it. I came home yesterday and today they delivered my wheel chair it was bitter sweet, I don't like the ideal of being in a wheel chair for when me when I use to walk…
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Mom's Birthday
Today my Mom would have turned 69, so happy birthday mom wherever you are. I hope you know I think about you each and everyday. I hope you are proud of me. I love you oodles and miss you tons. Kelly
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Latest CA 125
My count went down again...it's 29, down from 67 last month. OMG I'm actually in range, even though my nadir is single digit. I am so happy. I can breath for another month. I am so thankful to everyone who prays for me. Prayer and the medication are a pretty strong opponent for the wicked monster. Karen
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Anyone know anything about garden gal
Kathy? I haven't seen a post from her in a while. She was having a hard time the last time she posted. I wish her well. Karen
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In restrospect
In retrospect how long do you think you had symptoms before your diagnosis?
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Back Pain/ Weather Changes
This is my first fall after treatments and I am experiencing back pain when the weather changes. Is this something others have experienced as a side effect of chemo?
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Back Cramps
Has anyone doing IP chemo experienced weird back cramps? It has happened before but much worse this time....cumulative effect and all that I'm sure. Just wondering. Thanks, Amanda
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Alexandra....
I see you are home from the hospital. You can't jst sneak in and respond to posts and not let us know how your surgery went...LOL.. I have been thinking about you and wondering how you are feeling. When you feel up to it update us on how the surgery went and how you are doing.... Hope all is well and you are not having too…
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looking for anyone who had normal ca 125
Hi for maybe 13 weeks not i have had intense pain in my lower stomach and back . have gained 20 kgs in around 8 months have the size if a 5 month pregnant stomach ,chronic fatigue used to spend every day with my darling grand children but sleep most of the time my hair is nearly grey because i dont have any energy not a…
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Neuropathy Relief
My onc doc suggested i go to my regular doc to get something to relieve the neuropathy pain I have in my feet. I am going friday morning. Does anybody have any recommendations of what relief works for you. Quite a few have recommended lyrica and now cymbalta. Has anyone used either of these for relief? Tonight it is bad.…