-
Clinical trial/Phase 1 and problems
Hi- I'm participating in a Phase 1 clinical trial at University of Chicago. My cancer returned May/09. The combination of the two drugs has left me with horrible neuropathy and spasms and restless leg syyndrome. I am walking approx. 3-4 hours at night because my legs will not stop moving. I had this after my first surgery…
-
To Hana7475...I know where your at
Hey Nancy! This is certainly a scary trip...no doubt about that. I found this site a few days after my first treatment & I come every day. They are pretty awesome in here! I was so apprehensive before my first treatment, but it wasn't as bad as I thought.(But then..whom of us envisioned putting toxins in our body anyway??)…
-
NEW CHEMO/DOXIL
Hi I wrote in about 3 months ago asking if anyone had been on the chemo Doxil. I got some good responsives. I started DOXIL in June. I have had 3 treatments and have had very bad side effects. Everything from a bad rash, neasua, muscle spasms and depression. To name a few. Had a CT scan July 29th and the DOXIL did not even…
-
My CA125 test makes me really nervous...
i got my CA125 number today, this is the first since I started chemo, and it went way up-like from 488 to 1000. everyone keeps telling me things are going well, and my oncology nurse said the DR is not concerned at this juncture, But Hell...I AM!!! when he did the hysterectomy and took out the masses in my peritoneal…
-
Mom's CA125 and a question
My mom is on coumadin, a blood thinner for her blood clots. She called me while I was at work, because she has been having bad gas. She called the Cancer Care Alliance and they said she has a lot of gas. While she was in the hospital at the end of July, the nurse there said she has a lot of backed up gas from the partial…
-
Whew, finally got my Gyno/Onc. referral and other tests being requisitioned
Update on my quest for getting this cyst and node biopsied. My doc came back from holidays today and she agreed to get me a referral to a Gyno/Onc instead of just a Gyno - apparently it was quicker to get me to a Gyno than the Gyno/Onc she felt here, sigh. We will see. I also requested another pelvic ultrasound for…
-
Doxil
I will start Doxil on Thursday. Looks like every four weeks. No cisplatin with it. I asked about that and my oncologist says it causes so much nausea that he wants to try Doxil alone to start with. May add it later. My colon is involved and I have to really work to keep it working so I will have a double time of keeping…
-
My Mother's Cancer is Everywhere...I think I am heart broken
We met my mother's surgeon today, and although I liked him personally, I hated his news. Apparently they like to "debulk" first and then do chemo. The reason they are doing chemo on my mother first is that the cancer is everywhere in her abdomen and around the small intestine; and he doesn't think he could get it all at…
-
possible oc?
hi a little history about me. I had stage 0 bc in 95', this year had microscopic blood in my urine i pushed for more testing they found a forond had surgery to remove 6/09 ended up being a papilloma (not cancer)but before surgery had a ct scan with out contrast and they said was most likely a cyst based on my age 39 but…
-
Ct scan results
Hi Ladies, My oncologist just called with good news, my CT scan didn't show any sign of my cancer, so I won't have to restart chemo this month. He said with my CA rising steadily, there is definitely something going on, but we'll keep checking it monthly, and we'll need to restart treatments at some point. He said that at…
-
Colace, Biotene, Extra Strength Tylenol, what am I missing for my Mom's Chemo care package?
She starts her chemo Thursday and is very apprehensive. I filled her car with gas today and brought her the colace, tylenol, and mouthwash. What else will she need in the house? Are there any hints I can pass on? I want her to have everything here so she can just get it. We pick up her prescription meds tomorrow and meet…
-
PRIMARY PERITONEAL CANCER
Hi, I am 33 years old and was recently diagnosed with stage 4 primary peritoneal cancer. I am looking for others who are in the same boat. I am BRCA1+. I do not mind talking to women who have or had ovarian cancer, however, there is a difference between the 2. It is discouraging to come on this website and not even see a…
-
Probly a stupid question....!
I am just wondering about the hair loss thing. I started my chemo on 7/8 and have had 2 treatments-the first was the Taxol/Carboplatin, then I just had the Taxol IV/Cisplatin IP last week- with the Taxol IP coming up on Tues. I started losing hair pretty good this past week, but in the last day or 2 it has been minimal. Am…
-
Feeling Guilty for Being Optimistic - I think I'm crazy and it' only been a week.
Ok, I think I am crazy. What a week. First, I am terrified my mother is going to die; and now I am feeling totally optimistic. I read someone's post about abraxene (paxitacil) and that's what my mother is going to get. The oncologist said we were going for a cure. So I sit here tonight and think, "no problem". I'm out of…
-
My Mother is a 3-C, what does this mean?
It's been one week now and she starts chemo Thursday, She sees the surgeon Monday. They are waiting to do surgery until the chemo has been tried and they are hoping it will help to shrink the main tumor and some of the "stragglers" as I call them. The oncologist was wonderful. The nurse was great. I feel very good leaving…