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New to this site - for a friend
Hi everyone, I've been reading through the messages, and first I want to say thank you for all the wonderful encouragement, the honesty and the community that I've found here. I have been reading the statistics, the medical abstracts etc etc. And when I stumbled on this forum, I was relieved to find you all. I'm sorry for…
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Topotecan question for first remission
Hi all, I couldn't believe I got a call from the clinic on Friday and they needed another ca125 in a week for me to be in the study so they postponed my chemo. Without asking me! I said take me out of the study. I told her the fluid in my abdomen is now pushing on my ribs and I am not waiting another week. I get the exact…
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Dr appt
Goodmorning, it is now 3am. I have been up forever! Too many thoughts going through my head. I start chemo on Monday, get my port put in tuesday. I will be getting topotecan, on 1 week off 2 for a series of 8 treatments. Then we'll take a look and see if I can take another break or if we should continue getting treatments.…
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After Chemotherapy questions
Hello everyone, This site has been so much help to me over the past few months, God Bless all that have posted. Now to my question. I finished my six chemos carb/taxol in Apr, still have variety of chemo related pains, lingering neuropathy, fatigue, "joint pain", ect. I try to walk at lease 2 miles a day and keep active,…
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NOCC in Michigan
Hi everyone- It's official.. We're up and running in Michigan! Dear Family, Friends and Future NOCC Members: I am writing you to announce the formation of the Eastern Michigan Division of the National Ovarian Cancer Coalition (NOCC). It is my goal as the Eastern Michigan Division President to to raise awareness among women…
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vaginal discharge
Hi, I've posted a few questions before and have a new puzzlement. I was dx with Stage IC OVCA in January, just finished my sixth round of Taxol/Carboplatin June 1st. I've had a persistant vaginal discharge since about 6 weeks after surgery (complete hyterectomy), and it continues to grow in volume. My oncologist knows…
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Food
Does anyone have any great suggestions for me in dealing with taste of food - or should I say non taste? I have had 9 of my 18 chemo sessions and it is getting worse. Thank you
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Carcinomatous Meningitis (Ovarian)
Leptomeningeal Carcinomatous (Carcinomatous Meningitis) Ovarian cancer does not commonly involve the nervous system. Brain metastasis is a rare complication of ovarian cancer with only 67 well documented cases in the literature until 1994. A multi-institutional study of 4027 ovarian cancer patients over 30 years identified…
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Lymphocele?
My recent CT scan results mentioned that I have a 2cm lymphocele, 'as seen before'. My doctor did not mention this to me before, and doesn't seem concerned at this point. He said if need be, it could be aspirated. Anyone have info on this? My research turned up nothing conclusive. I had a total hysterectomy, some lymph…
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Drs Visit & Thank you
Thank you all for your support. We saw the Dr and will start Topotecan in a couple weeks. I also wanted to share a short story and I think it applies to all of us, but it's especially for you Mopar - it goes with your favorite verse. If you are of a different faith put the word that fits in place of the word God. For we…