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How is everyone?
I decided to log on tonight to search (a symptom of course) and somehow lost my link and thought this forum was gone! I had a few moments of panic until I found it, then of course had to reset password. I can't tell you how relieved I am to see this discussion board is still here. I'm sure I mentioned before what a…
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C B D Oil May Help You
There has been much hype going on about the benefits of CBD Oil and after considerabe research on my part I deceided to give it a go. I have no pain with my cancer and started taking the oil for insomnia. I take a dropper full sublingually in the morning and at bed time. My results have been good after two months and I…
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Partial Remission
I'm not cured of my Waldenstrom's or in Full Remission but I am OK with the Partial Remission and feeling pretty good. The Imbruvica that I take daily seems to improve and stabalize my labs. I began this journey in 2007 when dx'd with IGM of 3,500 and started initial treatment with Rituxan. Ihave Peripheral Neuropathy in…
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CT scan
just a quick question for all you experts! I am in for my 6 month CT. I've had a lot of them! I've always had to drink the 2 bottles of water with contrast, and also had IV contrast. This time I'm drinking 2 bottles of plain water and having IV contrast. I questioned them and they said the radiologist decides and no longer…
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Any alternatives to PET scan?
Hello, hope everyone doing well and healthy, I just have a question to the group about the PET scan, and how many of them been used for a check-up. I had NLPHL back in early 2013 and had 5 PET scans during the treatment to check the progress of the treatment. Then had just blood work and 2 CT scans until 2018, when one of…
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Neuropathy Flareup
Can neuropathy flare up? Mine, in my feet, has been very slowly disappearing but recently my right foot has increased. I don't take anything for it.
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Diffused Large B-cell Lymphoma Returning?
Has anyone who had Diffused Large B-cell (non-germinal) Lymphoma had it return? I had just finished up 2 R-chop treatments in March and currently in remission. I have another CT Scan scheduled for late August. I had Lymphoma of the right lung and it spread over to my Spleen. At first, I had been diagnosed as having Lung…
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Fever of Unknown Origin
Hi everyone, I have had a fever since the end of May, as far as I know. I remember one evening getting fever and chills, which is what prompted me to take my temperature with an ear thermometer. I wouldn't know if my fever had started even earlier. My temperature was around 101 - 102 degrees at any point in time over the…
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osteoblastic lesion
Has anyone had a osteoblastic lesion in their shoulder? Thank you
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Primary Breast Lymphoma
Hello, I am 63 and in April found an astonishing large lump in my Breast which was biopsied within 3 days. I had passed a full physical only weeks before and there were no lumps at all, so the thing was fast growing and aggresive. It turned out to be DLBCL, and the PET scan showed several lumps in the breast, no other…
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Autologous stem cell and dropping WBC
So I had my Autologous Stem cell transplant after BEAM and I am still here. My WBC counts were very slowly improving and today the test showed they dropped from 2.9 to 1.7. I am 10 weeks out from the transplant. From 6 weeks to 8 weeks they were unchanged at 2.9 and I mentioned to my Doctor that I was bothered they had not…
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Emotional support group recommendations
I am a Hepatosplenic T-cell NHL survivor of 6 years. It was a very hard journey and I'm still feel like I'm struggling. I have started to have a fear of relapse and I'm not sure why. I need to find a good support group where I can vent my fears to those who understand. My family is supportive but I don't think that they…