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Chemo starting this week, suggestions?
I will be starting R-CHOP this week, as soon as port is in place for DLBCL and NLPHL. The typical 6 cycles 21 days apart. I realize that my first treatment will take longer depending on my tolerance of Rituximab et al, was told to expect day to be 5-8 hours in length. What things did you find helpful to have with you to…
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Critter ?
I know someone raised this question a while back, but has anyone heard from Critter Mama ? If someone answered this in the affirmative since that post, I missed it (I don't read every post here). She last logged in on October 27 (2018). I know she had a pending SCT but was also asking about alternatives and that SCT can…
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The latest
I know it has been a long while since i posted last, i found an Onc who i really like, makes me feel comfortable and really listens. I am going to have a pet scan to see how active the cancer is and if it has grown any, the new mass is behind my left kidney, near my spine and it fused 2 lymphnodes together, i know weird…
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Biopsy Question
Hey everyone, I just had a biopsy done for a nasty rash that will not resolve over the last 2 weeks. I've seen 5 doctors and had multiple guesses as to what it is with treatments and no resolution yet. I was diagnosed with Stage 1b grade 2 RCC back in November that they do not believe spread. What I am worried about is if…
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gas and bloating
Hello, I started feeling gassy ever since i drank barium suphate when doing a CT scan for confirming my hodgkin lymphoma. I continue to feel gassy after chemo started. I also get bloating feeling about 10 days after chemo. My question is has anyone had the same experience? How to avoid the gas and bloating? what diet to…
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Finished my R-CHOP 21, now what?
I finished my R-CHOP 21 (6 treatments) for NHL in my sinus this last Thursday. My initial tumor had caused my right nostril to be completely blocked and loss of smell and taste. After first Chemo treatment I could breath, smell, and taste so I'm thinking things are going well. My initial diagnosis was Stage 1A with no…
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Hycela Rituxan
i have had so many Rituxan infusions that I finally lost count. Its somewhere in the mid thirties. One week ago I switched from IV to Hycela Rituxan injection under the skin on my stomach. It was extremely fast, painless and easy. I walked away feeling it was a great change. Now not so much. The injection site is painful…
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No symptoms
Hello, I am newly diagnosed with follicular (65% of sampled cells) and diffuse large b-cell lymphoma (35% of sampled cells). The sample was provided via a fully excisional lymph node. There is also a medistinal mass. Blood work was all normal except for: calcium in plasma at 10.8% in the comprehensive metabolic panel and…
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CAR T-Cell Immunotherapy Information Needed
Hello Everyone, I started a discussion on CAR T-Cell Immunotherapy treatment before the big outage. I need to know if it can be given while you are in remission or only if you have actual active disease? I was diagnosed with Diffuse Large B-Cell Lymphoma, stage 1, localized disease (right inguinal lymph node) in Sept.…
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Anyone Hear From CritterMama Since the Outage?
Hello, I was wondering if anyone has heard from CritterMama since the outage? I want Lori (CritterMama) to know we are still thinking of her and wishing her the best in her treatment. If you see this, Lori, please let us know how you are doing. Take Care.......prayers and hugs are being sent your way. ---Debbie
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I'm dreaming of a white...
...Valentine's day? We had zero snow in 2018. Actually had the blessing of a white Christmas in 2017. But, an hour or so ago, it began snowing here in the pacific northwest. A family friend/former co-worker is scheduled to begina new job tomorrow and it will probably be a snow day! She should go buy a lotto ticket. What…
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Does anyone know anything about this?
it could be the magic bullet for lymphoma. Israelis suffer a much higher rate of b-cell lymphomas than most others so they are motivated to find a cure. I am checking into trials Via friend in Tel Aviv. http://www.israelnationalnews.com/News/News.aspx/149680 http://vxlbio.com/…
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Lymphoma?Next steps?
Hello to all, I am female in my late 20s and I am very worried about my right groin lymph node and lymphoma. About a year and a half ago I started getting random fevers and extreme weight loss, I'm already skinny and eat normally, still have trouble gaining weight. Then, I noticed in my right groin, about a year ago, that…