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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2018

Brand new with Follicular Lymphoma - hello!
Just now I found this discussion board and it seems like a good one for me to get involved with. Just had my first pair of chemo infusions (Rituxan and Bendamustine) on Oct 22-23 (first of six expected). Not terribly eventful, other than severe constipation from the anti-nausea meds included with the "pre" meds that were…
Survivor of rare cancer
Hello everyone, 3 years ago I was diagnosed with advanced HIV and several months later, after many tests and biopsies, I was diagnosed with an extremely rare type of lymphoma called Anaplastic Large Cell Lymphom, ALK negative. The overall prevalence of this cancer is around 3%. The prognosis for the ALK negative sub type…
Port is out
I know I haven't participated much lately. Work has been taking up a lot of my time. Let's just say with some of the tweaking of the visa "rules" our IT staff has lost a number of consultants so their work has to be spread out to the others. Since the group I am senior for is support, we are all affected. I am hands on so…
Diagnosed with B cell non-hodgkins lymphoma
Hi everyone - I am 68 year old male living in Central Texas and this is my first post. I was diagnosed Sept. 21 with NHL. I also was diagnosed with non-muscle invasive bladder cancer about 2 years ago and after a couple of TURBT surgeries have had a total of 18 BCG treatments (Immunotherapy) with no recurrence so far.…
Paul Allen
Has anyone heard more details about Paul Allen's (of Microsoft fame) demise to Non-Hodgkin Lymphoma. Apparently he went very fast after having a recurrance. It has struck home for me as I followed him a bit with his oceanic science projects and his various yachts and research vessels.
Medical Board question
Hi, does anyone know anything about reporting doctors? I know to report a doctor you report him or her to your states medical board, and you can also report them to the better business bureau; but is there anyone else that can hold doctors accountable? Is there no national oversight? I want to report negligence and…
Marijuana use while on OxyCotin and Fentanyl
Hello All, My father has been diagnosed with Non-Hodgkin Lymphoma just before Memorial Day. He had six weeks of chemotherapy and the results were extrememly positive. Unfortunatly four weeks after the final round the results of his final PET scan came back with the worst results possible. All the cancer has returned and is…
Gold nanoparticles
does anyone have knowledge of the use of gold nanoparticles to treat b-cell lymphoma? It was touted as a possible treament about 5 years ago but seems to have gone away. google this for a list of articles “ Golden nanoparticle starves cancer”
Heart Issues with R-CHOP
I was diagnosed with DLBCNHL back in June. Have been through 5 R-CHOP treatments 3 weeks apart and going for # 6 tomorrow. They plan to follow up with 3 weeks radiation after. I've been able to handle the various side effects fairly well from what I see others going through. Neuropathy in hands and feet, loss of hair,…
Keeping PICC line after chemo
I will be finishing up Epoch chemo next week, and I mentioned something to my doctor about removing the PICC line once I was done. I was told to keep it in for a "couple of weeks" in case "it's needed." Then I was told it could be used for a PET scan scheduled for a few weeks from now. Having this PICC line danglinig from…
Hello
Hi, my name's Bobby. I just wanted to say hey for now but; was diagnosed stage 3 Hodgkin's Lymphoma in 2015 and finished chemo October 2016. Am now suffering from swollen lymph nodes in various parts of my body which is what brought me here. I look forward to meeting you all! Bobby
Update on Vasculitis
Hi all, finally got to see a Rheumatologist! Had to wait 3 months to get seen....It appears that my skin is extremely sensitive to the Rituxan Maintenance. While on R-Chop not an issue due to taking the Prednisone which kept Vasculitis at bay so to speak. I Should mention about 12 years ago I was on Prednisone for over 18…

Lymphoma (Hodgkin and Non-Hodgkin)

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