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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2017

Waiting And draining
I had my core needle and fine needle biopsy on my right inguial nodes done on Monday and recieved a call Tuesday afternoon from the general surgeon that they did not get enough tissue to test. The fine needle showed some lymphocytes but more blood than anything. So, I go back to the hospital Wednesday to repeat the core…
Medical Reports
Has anyone heard of this? Looking for feedback before considering. http://www.bloodjournal.org/content/105/3/1214.long?sso-checked=true and this is interesing too. http://constancetherapeutics.com/knowledge-center/cannabis-oil-and-leukemia.html
Rash started getting better, now might be getting worse before second treatment...
Hello, Hoping someone has some experience with this and can help answer my question. My wife was recently diagnosed with ALCL ALK-Positive (anaplastic large cell lymphoma). She started her chemotherapy treatements recently, her first being on May 8th, and scheduled to run every three weeks for six times. Her next treatment…
Prednisone with R chop
Has anyone ever lowered their dose of the prednisone while doing r chop for NHL
Undiagnosed and nervous
Im looking for some outside opinions on what I'm dealing with. I feel like something is not right, I know my body. In October (about 7 months ago) I started seeing a new primary because I just didn't feel good. I lost about 15lbs pretty rapidly, no appetite, and I was so tired I could barely function. She ran some blood…
Body Ache experiment
I was wondering if anyone is currently experiencing body aches from Neupagen or Neulasta and would drink iced tea & see if it lessens or stops the aches? I recently received high doses of Neupagen for stem cell collection. I received two shots every day for 7 days. I was warned that I would have painful body aches from it,…
Neulasta reimbursement after 72 hrs (Medicare)?
Currently on Round 6 of R-EPOCH for DLBCL. I have mostly gotten my prior Neulasta injections within 72 hrs of finishing chemo. Because of the holiday Monday, I have to have it early (24 hrs) or late (>72 hours). However, I've been cautioned by my "team" that Medicare is unlikely to reimburse if given >72 hrs after…
mcl shingles question
My mother who has mantle cell with so far no treatment(watch and wait) has been suffering with a bad case of shingles since the first part of April. She was at the doctor today and they prescribed her another round of anti-biotics but the are also sending her for a bone scan which I dont understand. My question is could…
Stem cell transplant
Has anyone completed a stem cell transplant recently? I tried searching the board, but am getting old posts. I have Double Hit Large B Cell Lymphoma and just finished with what I hope is my last round of Hyper-CVAD (3 rounds of cycles A & B) . I am scheduled for a PET scan & BMB in a few weeks. If everything's good I will…
Late treatment problems years on
Long term chemotherapy and radiation problems over twenty years please let me here your problems if any one has had .bad chest.. Joint pain...bad tummy...general pains due to nerve damage....muscle pain
Chemo Brain
I first saw this news story on my flipboard this morning. https://www.washingtonpost.com/national/health-science/when-scientists-saw-the-mouse-heads-glowing-they-knew-the-discovery-was-big/2017/05/19/f33cc574-246a-11e7-a1b3-faff0034e2de_story.html?utm_term=.cc5d0a6ab2a9 I talks about how centuries it was accept that the…
At 18 months
This last Monday I had my "18 month" CT scan and it came back clear. Of course there is a little more to the story. We had gone on vacation for a week to DC. Did a lot of walking to see the various memorials and museums. We returned on a Thur. Sat I got up and my stomach felt a little odd. Did a few things and then ate…
bone marrow biopsy after pain
Can anyone share experiences with bone marrow biopsy and pain for days after? in my husband's case, his bones were so hard the doctor had to stand on a chair and literally broke a sweat getting it done. Lots of back pain 2 days after - is this normal? DX at this point is low grade Extranodal Marginal Lymphoma - a MALT.…
I hate this
Hi all, I have been vacillating about telling you guys, I don't know why, but I just figured out I have to write. About 3 weeks ago, we found out that Bill has relapsed. It's not too bad, in his last CT scan they found a few very small nodes where his esopagus meets his stomach. He had been having some bad side effects…
Radiation effects
Hi, HL patient just finished ABVD chemo about a month ago and just 2 days ago completed 10 radiation sessions. I know am experiencing what feels like a lump in my throat making it difficult to swallow, even water. Radiologist gave me the mouthwash but doesn't seem to be helping very much. Any recommendations, or idea how…
San Francisco T-Cell Lymphoma patient education seminar
The T-Cell Leukemia/Lymphoma Foundation will be conducting a patient education seminar Saturday, June 3rd, from 8:30 AM to 2:30 PM at the Hotel Nikko in downtown San Francisco, California. The main presenter will be Dr. Andrei Shustov of Fred Hutchinson/Seattle Cancer Care Alliance. He is an internationally known…
2nd Opinion for PTCL NOS
My husband was diagnosed 2 weeks ago with PTCL NOS Stage 2a. We feel we have a competent physician but want a 2nd opinion on biopsy and diagnosis. Looking for what the best cancer centers specialize in T-cell lymphoma. He has already done 1 CHOEP chemo treatment. Is this still the beginning standard of care for PTCL NOS?
Undiagnosed, scared mom.
Hello. I'm here to get some advice. The night of the 25th of April prior to going to bed I noticed swollen lymph nodes in my groin. I reached out to my doctor and she felt them and thought because I have HSV1 and get outbreaks on my back that I was possibly going to have an outbrewk and started me on the medication. It did…
NLPHl and T Cell rich NHL Lymphoma
Well I have been stalking this forum and decided to join in case I have an experience that might help others. I am 53 year old male with NHPHL and T cell rich NHL Lymphoma. I have completed 3 RCHOP treatments and 2 intrathecal (spinal infusion) treatments. If all goes well I am halfway through both types of treatments. I…
Elevated Igm Kappa Levels
Hello Everyone, In Feb I was sent to Hemo/Onc for DVT, bone pain. I do have swollen lymph nodes in my neck, i do spit out blood at times dont why this happens either and Onc cannot grasp around it yet or is he knows doesnt want totell me till we have the right diagnosis. Onc ran several tests and Igm was elevated at 298…

Lymphoma (Hodgkin and Non-Hodgkin)

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