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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for April 2017

Dental Problems and Persistent Lymph Nodes
Hey all, I'm glad I found a site where I can ask people who know what they are talking about. Anyways, I just turned 26 years old and I have had a few broken teeth (wisdom and molars) for a number of years. This may be unrelated, but I've had a blocked ear for about 7 months... sometimes it unpops for a few minutes but…
Helping a Lymphoma Survivor with Guilt
Hi. So I know this discussion forum is mostly for survivors themselves but to be honest I'm quite desperate. My boyfriend is a non hodgkins survivor. He's now 22 and has been in remission for almost 2 years. I didn't know him when he was going through all of this which makes it even more difficult for me to know how to…
New NLPHL Diagnosis
Hello, Glad I have found this forum, I have been reading posts on here for a while as I waited for my biopsy results. I have had two mesentric lymph node biopies and the 2nd one has come with a diagnosis of NLPHL. The larger mass was found by accident on an ultrasound in Feb and since then I have had a CT scan and two…
One way to survive three cancers
I posted this at ACS sister site WhatNext?, so I might as well re-post it here for the purpose of encouraging those who are struggling with a new or existing diagnosis. Bear in mind that I am not Superman - I have received tons of help thouroughout this journey. For those who are facing a seeming uphill battle, you are…
April 24, 2014
I just arrived home from the funeral when I heard the dreaded three words, "you have cancer". I learned that anniversaries and scans cause a bit of anxiety. Three years ago I was diagnosed. Three weeks later I found out that my father also had cancer. I pretended not to have cancer went through the treatment alone, then…
Chemo Regimen R-ICE
how long did it take for your platelets to start holding on their own? And how long did it take for your white count to get to normal range after your first cycle of R-ICE?
In limbo *long
I'm New to this forum and scared. I am 36 female, married with 2 little ones. Doctors thought I had MS for months and put me on pain pills. Well now I have swollen lymph nodes in my neck (right side) and behind my ear. Within a couple of months I went from being able to clean house everyday to extreme fatigue that will not…
Long term effects of ABVD-MOPP
Hi I have read these boards before a few years ago. Wasn't able to participate at the time. I am a HL survivor. I Was first diagnosed in 1995 (tumor in neck). Did rads then in 1997 itrecurred, did chemo (MOPP-ABVD) this time around. I finished my last chemo meds on 6/30/98 and haven't had any recurrence, but this Feb. 2017…
Biopsy tomorrow
Sunday April 9, 2017; noticed my right groin was sore and then Monday and Tuesday I had really bad pain spreading down my mid inner thigh and Thursday morning I noticed a very large lump on my groin. It was hard did not move and was sore all around. I also had a very difficult time the night before when my husband and I…
refractory DLBCL involving liver
Anyone here had refractory DLBCL invoking the liver With liver lesions? What treatment and outcome?
My NLPHL diagnosis
Hello! Since I was already commenting another post I wanted to introduce myself officially on this board :-) My name is Stephan, 34 yo and from Frankfurt/Germany and I was diagnosed with NLPHL on 24.03.2017 (details on my page) The stage is still unclear but most likely IA-II when they won't find anything in the bone…
CNS Lymphoma
My father diagnosed with CNS Lymphoma ... would like to know more on this
waiting for dx T Cells on tonsil (and rash)
My husband had a swollen right tonsil that was affecting his sleep and swallowing. 2 ENTs examined him, and said probably cancer. He had the tonsillectomy a week ago, and the pathology is not done, althought flow cytometry (?) shows T cells. He has no other symptoms except a rash on his back and a little on inner elbows…
Recurrence of small cell follicular non-Hodgkin lymphoma
I just had core needle biopsy of abdominal lymph node indicating presence of PAX-5, BCL-2, BCL-6, and CD-10, no CD 20. I've been on Rituxan which is ok for CD-20, but not for above targets. What drugs would work...Obinutumumab is for CD20. Ive had NHL since 2000.
shingles with mantle cell
Just wondering if anyone has developed Shingles with Mantle cell. My mother was diagnosed over a year ago now with MCL she is currently on watch and wait (no treatment yet). Over the weekend she developed what the doctors say is shingles and put her on anti-biotics. I was curious if this is common or if there are any…
New Member - Suspected Hodgkin's Lymphoma *long*
Hello, new here...and very worried. I suspect I have Hodgkin's Lymphoma due to my symptoms. I am 36 years old and female. My symptoms include: night sweats, itchiness, swollen achy lymph nodes in armpits post alcohol consumption, constant achy cervical neck lymph nodes, intermittent swollen lymph nodes in groin, chest pain…
Mantle Cell and Liver Tumor
Hello. my mother was diagnosed this last August with Mantle Cell Lymphoma. She did six rounds of chemo and did fabulously! However, when they did the post chemo PET scan, they found a spot on her liver. We did the biopsy today and it will be 3-5 days before the results but I guess I'm just asking if anyone has seen this…
Refractory NON-HODGKINS DLBCL
Has anyone on here had refractory DLBCL? My husband was orginally diagnosed in August 2016 with Non- Hodgkins Stage 4 DLBCL. He was treated with R-EPOCH for 8 cycles and it stopped working sometime in the middle of treatment. Just did biopsy Thursday to see if it is refractory. He is starting to hurt again in his spleen…
Shout-out for massages
I did 6 rounds of R-Chop starting Jan 2015. August 2015 I started the first of 3 cycles of RICE. Through all of it I managed to work most of the time at a job where I sit a lot. At home I napped and sat. I didn't realize how weak I was until December when I tried to do some Christmas shopping. Feb-Mar 2016 was prep for…
Tonsillectomy and lymphoma
My husband had a tonsillectomy today (right only) by ENT surgeon due to swollen tonsil and sleep apnea. She is leaning toward lymphoma since it was smooth, non ulcerative and soft. I am a breast cancer survivor, and very freaked out about this type of cancer. Helps to know this group has survivors. He is 62 and had…
A little panic mode here..
Feeling so exhausted the Dr. did a CT scan yesterday...Message on my phone she wants to see me on Thursday. You are all such Warriors! nancy
Lymph nodes in ankles
has anyone ever had a swollen lymph node in an ankle? I have a round nodule about halfway between my ankle joint and heel on my right foot. first noticed it 2 days and it has since doubled in size To about the size of a small marble. It is painless. As usual, the internet says either 1). There are no lymph nodes in the…
Angioimmunoblastic T-cell Lymphoma Stage IV
This is the lymphoma my husband was diagnosed with last May. Anybody have any experience with treatment options. We have completed CHOP and before they could start Stem Cell Transplant, it was back in his bone marrow. Not a candiate for SCT. He is now on Gemzar for 8 treatments. He has had 2 treatments delay due to low…
Any help for a caregiver for a newly diagnosed Stage IV NH Follicular Lymphoma husband?
My husband was diagnosed with Non-Hodgkins Stage IV E Follicular Lymphoma Grade 3A almost a month ago. He had his first chemo treatment of R-CHOP on Friday, March 24th & has not been showing any signs of side effects. We were both freaked out when his infectious disease dr told us one of the pathology reports came back as…

Lymphoma (Hodgkin and Non-Hodgkin)

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