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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for March 2017

Radiotherapy- Hodgkin's lymphoma
Hi, I May get a 15 day radiotherapy after 4 ABVD chemo cycles. My affected areas are multiple cervicular lymphatic nodes in the neck and lymph nodes in the mediastinal region(in the chest). Considering the affected areas, where I would be given the radiotherapy, Can I please get an idea about the side effects it May cause?…
Immune system
What precautions did you guys take to prevent infection or illness? we are doing the usual... hand washing, instant hand sanitizers, washing fruits/vegetables, a clean house. we live in nyc, so germs are everywhere the second my husband steps out the house. Should he not go places Outside the apartment? can he go to the…
lyphoma???
I have been dealing with this for 3 years now. It started when i had an ultrasound to check the thyroid bed. I had thyriod cancer in 2008. My thyroid was removed and so far so good. So on the ultrasound they seen some enlarged lymph nodes. We watched them then in 6 month one had incressed in size sent me for a FNB. They…
Low Platelets
My husband has Stage 4 DLBCL because it was in his bone marrow. So far he has had 8 cycle of R-EPOCH and the bone marrow was clean but the last PET scan is now showing the lymphnodes in his abdomen is becoming enlarged again. He is having another biospy on tomorrow to see if it is refractory. But on March 17 his platelet…
Treatments for DLBCL - UPDATE
Hi there - I'm inquiring about this for a my best friend, who was just recently diagnosed w/ Stage 3 DLBCL. She is 33 years old and is a mom to 3 young children, so it's imperative she kicks this things @$$!! Yesterday she had a bone marrow biopsy. I've been doing a ton of research on this and I know that this is all part…
Pericardial Effusion
I'm a T-cell non-hodgkins lymphoma patient who is about to wrap up maintenance chemotherapy. After my diagnosis two years ago, an echo was performed to rule out heart involvement. At the time, a pericardial effusion was present, but it was essentially ignored due to the chemptherapy and what not. In February after this…
Is Hodgkin's genetic? Husband had classical HL, daughter just diagnosed with NLPHL
Hi, I'm new to this site. It's my first post and I'm wondering if anyone else has had more than one person in their family with Hodgkin's Lymphoma? My husband was diagnosed with stage 2a classical HL in 2009 and had 12 rounds of AVBD. He has been cured ever since. My 19 year old daughter was just diagnosed with stage 2A…
Stage IV classical hodgkins
Are there any survivors? my husband is 34 and is just starting ABVD. We would like to hear some stories that inspire hope.
Elevated ALT
hi all, I'm currently in maintenance treatment for t-cell lymphoblastic lymphoma and I'll wrap up in May. Today when I went to clinic for chemotherapy and bloood counts, my ALT was very elevated. My doctors did not even mention it, but I'm concerned because I've read it's elevated in people with blood cancers when the…
Survivor of lymphoma
I am a survivor of lymphoma. I am now in my 30's and I am into a pretty severe depression and anxiety due to the disease. I have had great difficulty coping with the long term effects of the disease and it’s side effects. How can I take control of my health as a lymphoma survivor? It is exhausting. I am thinking to visit a…
Newbie
Hello everyone, My names Calvin, I'm 23 years old, and I was diagnosed with Classical Hodgkins Lymphoma two weeks ago. I've never posted on a forum before but I thought I might need some advice for the coming months. In terms of staging, the PET Scan showed an enlarged node in my neck, chest (this is the largest at 3cm)…
More enlarged Lympnodes
My husband is fighting non hodgkins DLBCL stage 4 since August 2016. He has had 8 cycles of R-EPOCH (Every 21 days for 5 days). After the first 6 cycles of chemo, the first PET scan showed that the chemo was working. the lympnodes went from 10cm to 2cm. He did the last 2 cycles, had a PET scan and now it is showing large…
New to this
I had two inguinal lymph nodes removed last week because there was a noticeable mass that appeared a few days before. I am waiting for the results that I will get Wednesday. I understand swelling after surgery. But the incision site still looks like the mass is there. It is hard and even visibly noticeable. Is that normal?…
The latest
Well had a scan last week all is clear but, theres aways a but, i have now an auto immune disease called oral lichen planus, which is horrible ulceration of lips and inner mouth, tongue and cheeks, i have been dealing with this since end of Oct, i thought it was just a case of very chapped lips but it progressed in to the…
High Proliferation rate and NHL
i would like to hear from anyone whose lab slide biopsy shows a high proliferation rate. My node excision biopsy showed a proliferation rate of 70-80%. I am particularly interested about your oncologists' feedback about your proliferation rate and also how you have done in treatment. Does your proliferation rate affect…
Paella, here, asking a big favor
3/11/17 Hello to all – First of all and for all stem cell transplantees – keep on keeping on! At 8 months post SCT, I’m doing really well…occasionally overdoing but feeling good and strong. But husband Mac’s pancreatic cancer is something I’d like to bring up again even though this is the lymphoma forum. Why? Because we’re…
Maintenance Rituxan NHL
After initial treatment and during the every 2 month maintenance with Rituxan, are you receiving the same amount of Rituxan at the maintenance visits as you received during treatment? Are some of you receiving a smaller amount of Rituxan during maintenance and if so, how much? i would really appreciate your input. I am…
PICC line for PET scan?
Hi I am a patient of hodgkins lymphoma. I have a PICC line inserted for the chemotherapy as my veins can't get located easily. I am done with 4 cycles and now I have a PET scan. So I want to know, Can my PICC line be used for the tracing medicine that is injected during PET scan or That has to be injected separately? I…
ABVD treatment barely bothered me?
i just started my treatment on the 28 of February, after the first few days I felt normal except for a little more tired than usual. Should I expect this from every treatment? I understand everyone reacts differently but I don't have anyone to really talk to about this. I really only felt nauseous for about two days…
Skin care after radiation therapy
Hi everyone, I have a query regarding post skin radiation treatment. I got diagnosed in 2014. Went through the routine, chemotherapy and then radiation of thorax. My neck got really dark. I used a mask and the front skin came off but i didnt use a mask for the back so my back neck skin is still very dark. I relapsed again…
Husband Just Diagnosed- Stage 3
Hi everyone, My husband and I are both 29-years-old and 3 weeks ago he was diagnosed with Hodgkin Lymphoma. They just confirmed he is stage 3 after the bone marrow biopsy came back negative (thank goodness!). This has hit us like a ton of bricks. My husband overall is a healthy young guy. He has had no symptoms.…
update and a few questions...
I started maintenance Rituxan treatments on Dec. 28, 2016 - and the second treatment was February 22. When I saw my oncologist before the treatment I told him I have been experiencing pain in the areas where the lymphoma was not eliminated with the prior Rituxan treatments. I was surprised by this, as it has never happened…

Lymphoma (Hodgkin and Non-Hodgkin)

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