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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for September 2016

Awesome news
We decided to seek out a new doctor for my Dad. The new oncologist ordered Dads first PET scan to see if the R-chop was working. Today we got the results. The two lymphoma cancers that Dad is fighting did not light up on the PET scan. The lymphoma is dead. He still has 3 more rounds of chemo to go through but it is…
Shortness of breath, Single agent Rituxan
I have been dealing with shortness of breath since my treatment in 2014. I have been seen by cardiology, wore a halter monitor, mutilple stress tests and thankfully my heart is good. Next a pulmonologist and many more tests and scans. Nothing remarkable. Ok, thoracics they will find something. Tests, tears, tests.....…
Free T-Cell Lymphoma seminar in Honolulu, HI October 8th
The T Cell Leukemia Lymphoma Foundation is offering a free day long patient education seminar at the Waikiki Beach Marriott in Honolulu on October 8th, 2016. Presenters will be Dr. Andrei Shustov, a clinical and research hematologist at the Fred Hutchinson Cancer Research Center. He will be joined by Dr. Michi Shinohara,…
When the hair comes back after last chemo?
Hi All, Today I had my last R-CHOP treatment and I was already wondering when my hair will start growing back. How was in your experience? I suppose everyone is different in this matter but if you could share some of your experience would be great. Thank you, Dana
Free Educational Conference in Phila, PA 11/18/2016
I wanted to share the following information with all who may be in the Philadelphia, PA area and interested in attending in person (or via livestream for those not in the area or not able to attend in person): OPEN TO THE PUBLIC: FREE Educational Conference - Focus on Leukemia, Lymphoma, Myeloma, and Bone Marrow/Stem Cell…
Insurance Considers Rituxan for Cancer to be under study?
Just received first EOB in the mail for Day 1, Rituxan therapy. They have 'rejected' payment stating that it is not generally accepted treatment or experimental? I am floored. Of course, it's Saturday and I can't speak to anyone until Monday. The total amount I owe provider column is $6005.00. Holy ****! Has anyone else…
Blood clots during chemo
I am currently receiving RCHOP for DLBC lymphoma transformed from Follicular. I have completed 4 treatments to date. When I had a visit with my Onc. before 4th chemo, I told him I have a slight sore spot in my neck and he ordered an ultrasound. I was totally caught off guard with the results, and really upset. I have an…
SCT scheduled
Well, I'm getting close. 5.8 million cells were collected last week, I've passed all my pre transplant tests with flying colors. My journey starts next week Tuesday with 7 days of high dose chemo and day 0 scheduled for Sept 27th. Hotel reservations set for my husband and daughter who will takes turns staying 90 minutes…
Enlarged node-no other symptoms?
hi everyone I apologize as I am new here and have not yet been diagnosed but I had some questions I thought maybe someone here could answer. I have had enlarged lymph node about 3 or 4 weeks now in my groin. I am 31 and I have had no other symptoms or sickness or injury prior to finding it. It is painless. Bloodwork…
R-Chop and diabetes
Hi there. I just finished my 3rd R-Chop. However, my sugars are off the roof (200-350). I understand that the chemo will keep them crazy and unbalanced. My medical dr. has started me on insulin (Humalog and Lantus). I have been expermenting on my own trying to figure out the units to take. Because what she advided me to…
Possible/worried I have lymphoma
First off I just want to start off by saying I'm sorry because I haven't been actually diagnosed with lymphoma. I am also very worried. I can't get my mind off it. In the summer I noticed a groin lymph node swell after I had a severe allergic reaction to horse fly bites. I didn't think much of It. But about two weeks ago I…
Rituxan- Bendamustine and Veins
I have my first infusion this Monday coming, Rituxan - Bendamustine, then Bendamustine only the following day. Every third week, 20 days (give or take) My Onc didn't say I needed to get a port and when I asked he said he didn't think I would need one. I have Follicular Lymphoma, Stage 3, low grade. When I met with the…
Conjunctiva MALT Lymphoma
I hope this is okay. I thought since I've had trouble finding others with ocular cancer I'd post my story to-date for future readers. At a regular optometrist check up in May I was told I had bad inflammation in my eyes due to allergies. I used steroid drops for three weeks for inflammation. At a follow up visit my left…
I'm afraid & tired !
For 15 years I've cared for my mom & dad ( dad had emphyseima and has passed & mom is stage 4 non hodgkins ) my siblings lived their lives and left all care to me. recently, I have moved from my parents house after my dad passed ( I am single, never married, no children & 55 yrs. old ) however, my sister who is now…
Follow Up on my Recurrence
Hello friends, I had a CT scan late last week and saw my hematologist/oncologist yesterday. Bottom line: my disease is stable and no treatment is needed at this time. I don't need to see the doctor again for six months (unless something changes). So, Yay! In April, I had 3 minimally enlarged lymph nodes in my abdomen which…
Pregnant a few months after my husband's last chemo
My husband had non-hodgkin lymphoma and his last chemo (he had 6 chemo cycles) was at the end of May 2016. I just found out I'm pregnant today. He doesn't know yet. I'm worried if the baby will be healthy. Should I keep it?
Sharing "The News"
After several weeks of reading this discussion board while waiting for my final pathology report to come in, I am finally posting. I have Follicular Lymphoma, Low grade Stage 3B. I received this diagosis on Friday, Sept 2nd just about 4 weeks after being told I probably have Lymphoma. A tennis-ball sized mediastinal mass…
B cell lymphoma
Hello my dad was just diagnosed with B cell lymphoma. He is 70 years old and always and active man The cancer is so aggressive that right now they are fighting to keep his organs from failing before they can actually treat the cancer itself. He has gone into renal failure and is on 24 hour dialysis. They are working on…

Lymphoma (Hodgkin and Non-Hodgkin)

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