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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for October 2013

Happy Halloween!
Here's a little funny for you today: Happy Halloween! Two brooms were hanging in the closet and after a while they got to know each other so well, they decided to get married. One broom was, of course, the bride broom, the other the groom broom. The bride broom looked very beautiful in her white dress. The groom broom was…
Book being published NHL Two Time Survivor
I want to share my story to help inspire people who have Cancer in their life somehow. I was 28 when Diagnosed with Non-Hodgkins Lymphoma (Cancer of the Immune System). I did Chemotherapy for six months. Because of the chemotherapy, a blood clot formed in my heart and I needed Open Heart Surgery. A year later was told the…
Biopsy advice please
I first want to say that I considered for a long time whether to post here or not. I know many of you are going through very real battles with lymphoma and I respect that. I have lurked the web for a long time on various forums trying to find information that would help guide me, but this is by far the group that is most…
4 suspicious lumps under my arm
I just had a ultra sound and I'm worried it's not good. Here is what my report said: lymph nodes maybe infectious or inflammatory biopsy should be considered as neoplasms is not excluded. 4 suspicious abnormality Largest 5.4 x 1.9 x 3. CM My dr started me on antibiotics for a infection but I havnt been sick for literally…
Treatment dilemma
i have successfully completed 6 rounds of rchop for stage lV dlbcl nhl and am in remission. My oncologist wants me to have radiation treatment to lessen the chance of reoccurrence. I have a consultation with an oncology radiologist tomorrow and am wondring if anyone has suggestions as to what I should be asking during this…
Walking in honor and memory tonight
Hey everyone just wanted to drop by and check in. For those that don't know me I am in remission from DLBCL. After 11 rounds of chemo and an auto trans I have been living life without cancer for almost a year and half!!! Tonight I will be walking in the leukemia lymphoma society light the night event. I will walk as a…
Home sweet home!
Hi Guys, Feels like I've been gone forever! We are finally home from our cross country road trip. Total miles we traveled was 6,035. We had a wonderful time and enjoyed every minute. I have been feeling great with nothing to complain about. My next check up and blood work will done the first week in December. No scan until…
First Rituxan Maintenance DONE!!!
Fellow Lymphomaniacs, I just wanted to let you know that I kicked that first Rituxan treatments butt today...It was a rough fight, not really.. I was a might bit concerned when the oncologist office called me yesterday to tell me that my B-12 level was at like 230, which is apparently too low. Oh well, they gave me a shot…
did anyone begin with enlarged underarm lymph nodes, one 2.5cm?
I had an ultrasound and they are waiting to repeat in 4 months or so..............I am a breast cancer survivor...... just worried. Thanks, Carol
Diagnosis
After a very long month, we finally have a diagnosis. My husband has Hodgkins lymphoma. Although he told us in September that this was what he thought it was, it was very hard to have it confirmed. The main mass is in his lung, and the least invasive biopsy came back negative. We had a biopsy done on some swollen lymph…
new cancers
Have any of you developed "new" cancers after having NHL? My brother had NED for over 10 years and 2 years ago he developed rectal cancer. Now it has metastasized to his lungs and liver. Do the chemo drugs cause other cancers later in life? Just wondering...
The Last Post !!!!
3 times in the last month my post have been pulled because of political overtones. I was only trying to give everyone a heads up of what is in the future for us as far as health care goes. Needless to say I believe Freedom of Speech has been taken away as demonstrated by the post being removed. If I can't say what I feel…
Hope all is well with everyone!
Hello my family and friends, I honestly have been extremely busy with school, work, and flying back and forth to Denver for Kyle. I am running arond like a chicken without a head! Haha, it's okay though. I am taking it one day at a time. So much has seemed to have happened within the last I wrote on here. I always try to…
The most beautiful word...
Remission!! Don't go back to my onc for 6 months! Whoo Hoo!!!!!!! Dealing with the collateral damage from chemo. Gut continues to be a big issue but...I'm in Remission!! So I have hit a high spot on this crazy journey. I'm running with it! :) I pray you all hear that beautiful word too. Blessings, Donna NMZ NHL Stage IV Dx…
Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
Excisional biopsy today after pos FNA report rt groin
After having a +FNA report of rt groin, my surgeon took out groin node immediately ( same week). surgery went well & he tells my family it's benign but he has to send it off for path report. My question is, how would he know it was benign by looking? I thought lymphoma was dx By path report only??? any replies greatly…
Hodgkins & Non-Hodgkins Lymphoma survivors
Hi, I am a 12 year survivor of advanced Hodgkins Disease Lymphoma. I had nodular sclerosing type of tumors, about 30 in my chest and neck. When diagnosed I was stage 3 with type B symptoms if I remember correctly and about 26 years old. I received chemo for about 12 weeks and then another 12 weeks than radiation for…
BREAKING THROUGH CANCERS SHIELD
http://www.nytimes.com/2013/10/15/health/breaking-through-cancers-shield.html?hp&_r=1&
Terry's nails during and after chemo (ABVD).
Did anyone developed Terry's nails during and after chemo (ABVD). My Liver function is normal, my blood sugar is normal, but I still have that brownish color stripe on the upper side of the nail, My oncologist say it maybe from chemo, but not sure if it will go away. Any input about the matter is greatly appreciated.
Nights Sweats
Folks, I have a quick question for you. By now you know I've gone through an alphabet soup of treatments trying to kill this chemo resistant DLBCL and get my "dairy air" into SCT. I've had 2 R-CHOP, 3 R-DHAC, and now 1 R-ICE with a second treatment coming up in a little over a week. I had some pretty bad night sweats when…
muscle cramps
Finished chemo for CLL a year ago - total remission (YAY!), but have serious muscle cramps now - mostly legs and feet, mostly at night. Drugs were Rituxan, Revlimid, and Cytoxan - anyone have similar experience/after effects?
New Word
Recently, I said to my husband, "You know that expression 'scatter-brained'? I know what it means". He said, "Um. . .yeah". Yesterday, I heard a new word for it--Chemonesia.
nonhepatosplenic gammadelta T-cell lymphoma
Hello everyone, i was diagnosed with stage 4 peripheral t-cell lymphoma unspecified in May 2013 after a year of suffering with nasal congestion that did not respond to frontline and secondary treatments. I also had a small rash on my left temple that was originally diagnosed as sarcoidosis, but turned out to be part of the…
Stem Cell - High Dose CEB (or CVB not sure)
Hi all, Need a little help here. I'm meeting with doctor tomorrow to discuss my stem cell transplant next month. Remember, I've been through 2 R-CHOP, 3 R-DHAC, 1 R-ICE (second scheduled for a couple weeks from now). They believe my DLBCL is becoming chemo resistant. The plan to start the SCT in early November. SCT starts…
Lymphoma*versary
I am having an anniversary (lymphoma-versary). At the end of September, last year, I was told I had lymphoma and scheduled for a biopsy to confirm. Three days later, it was confirmed. And 2 days after that I saw my oncologist for the first time. That day, I had an ultrasound, 11 vials of blood drawn, and a (unprepared for,…
Crazy town
Hey guys. Got some bad news but not about me. My fnhl cancer treatment is going great so far Thank God ! Going back for round four starting tomorrow. So the bad news (wish I was making this up) and im still a bit in shock. My brother has been having a lot of headaches, just generally feeling bad, etc, falling (which he…
Halloween costume
This is a picture of our beautiful 4 yr. old granddaughter, Katie. She's off to see the wonderful wizard of OZ in her Dorothy costume. She needs her basket and TOTO to complete the look though. Mom and Dad are searching for it. Next year she'll have a baby brother or sister to join her with trick or treating (older son).…
SENATE HOLDING UP CLINICAL TRIALS
I sent the following to my senator this afternoon: Senator: I have been hearing about children whose chances for clinical trials have been halted by Congress. I am so very tired of the political games you all are playing. Senator: I have cancer and am saddened by what you are NOT DOING for sick people, people whose chances…
Question
Has anyone heard of a very rare condition called Reactive Mesenteritis which can be a side effect of lymphoma?
Greetings to Shoopy
How's it going today, Karl? Are you still at Area 51? I was wondering about the RICE--any weird dreams or hallucinations? You sound perfectly stable. When will you go home? I know you will have to be extremely careful about infection. I hope it is all going well for you. I just wanted you to know I'm thinking about you…

Lymphoma (Hodgkin and Non-Hodgkin)

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