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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2013

Last treatment done
I received my last treatment Tuesday and now I have to wait for my PET scan schduled for June 21st and results on the 25th lets hope for the best.
Symptoms
Hi I just wanted to hear if anyone can share their story or symptoms before diagnosis. 3 years ago my ent removed a lymph node from my neck, only one of the few that were swollen. everything came back negative which was a relief but I still have swollen lymph nodes all on the right side of my neck and back of neck. I've…
CT Scan Results
So I'm still in limbo, kind of. The CT scan was compared with my PET scan from Feb and all of the nodes that were "hypermetabolic & likely malignant in nature" are still enlarged. They haven't grown, so that's a good thing right? But they haven't gone away, so whatever's going on is less likely some random unknown virus…
CCG-550 Protocol
I was diagnoised with NHL at the age of 17 in 1982. I was told at the time this protocol was the only chance I had of survivoral. The long term effects have been one thing after another. It started with lung problems such as fibrosis and 7 pneumothoraxes. The tumor was growing around my heart and covered my entire chest. I…
Checking in
Hi everyone It's been awhile since I said hello. I try to read through the posts everyday. I've been busy flying acroos the country to deal with our business. Most likely it will be monthly for awhile. I received the results from my latest scan, and overall things seem positive. There are a few issues that I'll deal with…
Coming back
Hello everyone, I used to post in here when newly diagnosed with FNHL as a way to express my feelings and find out about this disease. I was first diagnosed in Oct of 2009 and went thru RCHOP in 2010 following a two year Ritux treatments in January of 2011. All the test concluded that I was back in remission and no signs…
Swollen Joints
Does anyone here have any history of swollen joints due to Lymphoma? If so, how was that determined? My right knee swells up. As soon as I get a Rituxan infusion it goes down, but not away. Dr. says it looks like arthritis to him. I am considering getting some fluid drained by an orthopedic surgeon and have it tested for…
Cutaneous Tcell Lymphoma - 2013
hi Looking for patient or caregiver to discuss diagnosis. My husband has CTCL and LGL Leukemia. Having both is making treatment for either very difficult. anyone else in the same small boat? I'd love to chat. thanks! amy
This will be my last post
Hey members, I want to say this will be my last post. I will not just drop out of sight after I get all the info I need,I want all to know I have posted here since May 2010 when I was diagnosed with Follicular NHL. I went into remission in Sept. of 2010, but continued to post when I saw fit to where I could help someone…
My New Project
Heartache, Hemmorhoids and Hairloss, You Are Not Alone!! Everyone struggles with something either financially, emotionally or physically; it can be done privately or publically. If you have never struggled , you have never lived. While you are struggling, know that you are not alone, somewhere else in this world someone is…
Necrotic Cells: Possible Lymphoma
A family member in India has a fairly large tumor in her left upper chest area. The tumor grew within 3-4 months and has reached her neck area. Her PET scan shows high possibility of cancer. She went through needle biopsy twice and they only found necrotic cells. Doctors say: - It is very likely she has non-hodgkins…
Neighbor with no Diagnosis
I have a new next door neighbor, male, about my age or a bit younger (50 or so). I was speaking with him yesterday, and somehow got on the subject of health. I mentioned my stage 3 HL, and he then stated that he had been told he had stage 3 lymphoma, but was later told he is benign. He has been going through a diagnostic…
thinking about everyone
hi all i just wanted to check in and say the last 2 rounds have kicked my butt with low white blood counts and having to give myself shots. most of the last week i was very tired but i took my dads camper to the lake that is near my house. two nights of camp fires and fishing when i could or just i great view out the…
Insurance
After receiving treatment for over a year, my dad's job let him go. He is on Cobra, but that will only last a year and a half. He attempted to get insurance and was refused. This makes me sick. My dad thinks that after 2014 insurance companies will not be able to refuse coverage based on pre-existing conditions. Does…
Hiatal Hernia Repair
Hi, I am a long term survivor of Hodgkins with full mantle radiation in the 1990s. I have severe acid reflux caused by a hiatal hernia and surgery is recommended for repair. This problem started before I got sick but the radiation made it worse. I am wondering if any long term survivors have undergone this surgery. The…
NHL types and sub-types
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks
NHL types and sub-ytpes
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks
CT Scan tomorrow!
Hey everyone, sorry I haven't been posting a lot but I have been checking in often to see how you're all doing & I've been praying for everyone here! Just wanted to let you guys know that the doctor moved my CT from June 10th to tomorrow morning. I have 4 more enlarged nodes that popped up in the past 10 days that I can…
How I deal with Prednisone
Hi Everyone.... I have DLBCL, 2nd stage, and had my first R-CHOP cocktail 4 days ago. I've been on 100 mg of Prednisone 5 days before & 5 days after, then I go to 50mg till the next treatment. I don't think I'm a highly sensitive person to drugs, so that's of help to me, but those dosages can really rev you up. I hold my…
Nathan - How are you doing?
Hi Nathan! Just wanted you to know we're thinking of you. Would love to hear from you even if it's only a "Hiccup";). Hugs - Jim
DIFFUSE LARGE B-CELL LYMPHOMA
I'M VERY NEW AT THIS and cannot navigate this site very well (i.e., AT ALL) Any help would be greatly appreciated. E.g., how do I find my posts, which I think are blogs? Thank you.
1st Rituxan Maint. Done
My first Rituxan maintenance that I was fretting about so much is behind me. I got many smiles and warm hugs at the clinic and that was really nice. I had some errands today and that was tough--but I did it and that makes me happy. I was away from home for about 4 hours, went 5 different places, and now I am tired!…
Arm vein discoloration after ABVD, did it happen to anyone.
I am taking ABVD and yesterday was my #7 treatment; I notice that my arb vein discoloration to reddish brown along the arm to the elbow. Have any one experience it. is it permanent tattoo, or it will go away after treatments. Please advice.
How are you doing Maggie?
Hi Maggie, I've been thinking about you quite a bit lately and wondering how you are doing since your hip surgery. Hope everything is going great and you are out dancing, hiking, or kicking up your heels because you feel so wonderful! Check in soon and let us know you are ok! We miss you! Much love...Sue…
I'm LOST
Good News
NO LYMPHOMA in the brain. Man it was such a relief to hear the doc say that. Thank you all for the best wishes and prayers. I feel its a more manageable fight now. My best wishes and prayers are with you all. Mark
Bumpy Is GONE!!!
hey friends good news, last week my port a cath AKA bumby has been removed!!! no longer having that ugly attatchment located in my upper chest. thank you all for your prayer and love coach mike
Checking In
Hey All, Just checking in to see how everyone is doing...I have been M.I.A., working on a top secret mission as Jim put it...lol Just had my 2nd Chemo on thursday and am still feeling great <----BLESSED!! I hope this finds you all feeling well both physically and emotionally, I have learned that this ugly lil disease can…
t cell lymphoma nos - ptcl
Hi have recently been diagnosed with PTCL nos, keen to hear from any other survivors with this rare diagnosis. many thanks jason
Anxiety--1st Rituxan Maintanence Thurs. 3/16
I keep telling myself not to worry. Everything will be just fine. I have had Rituxan 8 times already. It is no big deal. They keep telling me there will be no side-effects. It hasn't bothered me before--or has it? I really don't know because I was taking it along with 4 other drugs. Which one caused what? I CAN. NOT. make…

Lymphoma (Hodgkin and Non-Hodgkin)

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