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Cataracts
I went to the eye doc this week, and discovered that I have developed cataracts in both eyes. The doctor said they will probably need surgery within two years or so. The doctor noted where I listed lymphoma on my medical history, and asked if I had received steroids. I said "no," since r-abvd does not include a steroid,…
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Happy Mother's Day
Happy Mother's Day to all the mothers, grandmothers and greatgrandmothers. Have a wonderful day. Huge hugs Lisha
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First Round of Chemo...
Was not as expected. Kyle and I had suscepted there would be complications along the way through this battle. We were aware of this. However, I guess, not so soon. Let me just start by, Kyle is okay and better. I am extremely grateful for that. :) However, His first chemo was on Monday (5/6/2013) in which it went well and…
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cns nonhodgkins lymphoma-poojarastogi..need help
my wife is a patient of non hodgkins lymphoma,she is a case of relaplse in her cns ( optic nerve comressed ) cant see now from her both eyes...her body is going down day by day...and my doctors are confused now....can anybody guide what treatment we should plan now...she is 33 years old.and about 90 kgs by wt.
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Relapsed B cell Non hodgkins Lymphoma
Hello, I am new to the forum having not posted previously. My husband (39 yrs at diagnosis) was diagnosed with Stage 4B DLBCL Non-Hodgkins in May 2012. He underwent 6 rounds of RChop with 2 additinal rounds of rituximab and 4 x IT meths (as a prophalactic because he was high risk of a relapse and also CD5+). He achieved…
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I NEED HELP!!
Hi, I'm a gay man and have been involved with a married man (common law) for a few years. He has several young teen aged children and lives with his girl as a family. He claimed to be in a loveless relationship and I've always had commitment issues so our connection seemed like a "win-win." Eventually our feelings grew out…
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I'm Curious
I had/have large B cell NHL, found when it was a large mass in my lung. I had 6 treatments of R-CHOP last fall. Now, I am simply stable. The last PET scan 4 months ago still showed some activity, but no growth. The doctor has never used the word remission, and every time I walk into his office and report that I am feeling…
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Neuropathy,Muscle,Joint and Nerve Pain Severe W/Autoimmune disorders AFTER Chemo?
New Here! NHL Indolent Follicular 3rd Stage(docs keep sayin THE ONE YOU WANT TO HAVE...NOT!) First Chemo Nov.2012 Bendamustine/Rituximab Severe Reactions severe pain at injection site,unable to use limbs,in wheel chair as one day I could nt walk! Doctors baffled?Me? TERRIFIED. Stopped Treatment Until March.2013 Able to…
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First Post
Shortly after my dx I found this site and have been reading for a couple of months. There is no finer group of people than those at this site that give of their time to advise, comfort, and support ones just begining this journey. I cant thank you enough! While new to this site, my fight with cancer started in a different…
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Return of B Cell NH Lymphoma 18 months after stem cell transplant.
Has anyone else out there had stem cell and then had the cancer to return? I am 18 months out from stem cell and now the NH Lymphoma is back and I have had two treatments of Treanda and one of Rytuxin. I am curious as to the side effects. Has anyone had the Treanda and Rytuxin treatment?
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Orbital cancer
I had stage 4 NHL with bone marrow involvement a little over a year ago. It was also found in the left orbit. I had surgery on my orbit. Went through chemo and radiation. My last scans in late Feb. came back negative. But I've been experiencing problems with my left eye again. Pressure, a blurry spot and some swelling…
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4th round of chemo tues May 7th
hello!!!! My 4th round is coming tues May 7th. I'm a little nervous because my food selection has become less and less. I try to eat but its hard to tolerate at times. I'm afraid it might get worse? eek Im good and positive!!! Cindy : )
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4th stage lymphoma cancer can be defeated
This week I visited my oncologist after taking several blood samples and was thrilled to see the results - all levels back to the normal range-it's been a year in remission-only having to have my port flushed every two months and oncologist visit every three months with blood tests. I want to encouage everyone to stay…
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T-Cell Lymphoma presentation
Here is a presentation on T-Cell Lymphomas that occurred at the North American Educational Forum on Lymphoma in California in November, 2012. The presenter is Dr. Andrei Shustov of the Fred Hutchinson Cancer Research Center in Seattle. The audience was a patient group, so some of the information is quite basic. However,…
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Mediastinal grey zone lymphoma (MGZL)
Hi there I was recently diagnosed with this rare lymphoma. Since there isn´t much information about greyzone lymphomas on the web, I figured I might aswell try here instead . I´m currenty being treated with DA-EPOCH R Has anyone got this? Thanks
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Peripheral T-Cell Lymphoma, not otherwise specified (involving bone marrow w/ cytotoxic phenotype)
Finally, we got the doctors final note from the Mayo Clinic and Kyle is a member of the PTCL-NOS family. To be quite honest, I am feeling really down and depressed today. It started with me waking up and wanting to work out. That turned into me excersing in rage and screaming out of anger, "@$#$^@#$@ CANCER!" All the most…
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NLPHL 50-60 % shrunk afer 4th treatyement PET scan.
My lymphoma shrunk 50-60 after after 4th treatment, Well I guess it's good news that ABVD is working as expected. Yesterday was my 6th treatment. I remember my first one once I said (1 down and 11 Togo :) . My oncologist told me I am going to have a CT scan after the 8th one but not a PET scan (don't you think that PET…
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entertaining lil story_read at your own risk*
Well my fellow Lymphocytes...I embarked on a weekend getaway with the girls, sponsored by a random stranger Sit around the campfire while I tell this one...Ok so this random act of kindness complete stranger offered his vacation home on a quaint little lake in Traverse City, Mi for myself and whomever could join me..(sorry…