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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2010

Been a year
Well, it's been one year since I had my last RCHOP treatment. So far so good. I have had two CTscans and both came back negative...Woo Hoo! I was dxed with follicular nhl on March 17 of 09. I did six rounds of RCHOP. Not the best thing to have to do, but I was able to work, but it wasn't always fun LOL. I know this is…
just diagnosed in april with nhl
I WAS JUST DIAGNOSED WITH NHL IN APRIL. IT IS FOLLICULAR AND LOCATED IN THE ABDOMIN. SOME OF THE TUMORS ARE UP TO 5CM. I DO NOT HAVE ANY B SYMTOMS YET. THEY ARE USING THE WATCH AND WAIT ACTION. IT REALLY HAS ME SCARED AND DON'T KNOW WHAT TO DO. I AM 61 YEARS OLD. DO NOT KNOW HOW FAR THEY HAVE COME WITH ADVANCES IN THE…
little red spots
Anyone know what they are?
Radiation in Infancy
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
Constipation
OMG! Ok so I am trying to eat more so I don't lose any weight. Well I have had very small movements, but I am used to getting a bigger deposit but its narrow and not very rewarding.So to those that have had this is Mirolax ok?
Progress report
Hello to all and I hope this finds everyone in a peaceful spot. As many of you may remember I had Zevalin treatment for Follicilar NHL in April. I went for a follow up check yerterday 5-27-10. It looks as tough my blood work has rebounded and is now normal, so normal in fact that they were able to cancel my remaining 6…
Rituxan is doing it's job
Had my pet scan yesterday with results today. It's working, the spots are gone. This is my 3rd time around with this stuff and we chose 4 weekly treatments and maintenance every other month for a while. I am just so greatful it's working since the cancer started spreading.
Rituxin FDA Warning Letter to Genentech Over Claims about the Effectiveness of Rituxin
Did anyone see this Warning letter on the FDA website that was addressed to Genentech the makers of Rituxin? I am absolutely sick about this. ROCKVILLE, Md., May 5, 2010 - The FDA today posted on its website a warning letter sent to Genentech regarding table top panels for cancer drug Rituxan. The letter is below.…
Nothing tastes good
I don't enjoy any food. Of course bland is what they want us to eat. What did you all eat when your mouth got sore?, and you had no taste?
marginal B Cell NHL
Can anyone out there give me information on marginal b cell NHL? Stage 1, low grade, B Cell. If so, what kind of treatment did you receive? I was DX sept 2009. I had treatment of Rituxan for 4 weeks, once weekly. Somehow, I thought I had malt NHL. Not so My problems started when my small bowel perforated and ulcer was…
3 days out from first chemo treatment what to expect in next few days???
I really feel pretty good and this morning I can tell the tumors in my belly are already shrinking. I have several and one is as big as a football. The last few days before treatment were painful and I was so swollen. Now I look normal. I mean my skin felt like it was being pulled so tight it was unbearable.I haven't…
First chemo treatment.........check
Well I had my first treatment today.RCHOP The R caused my throat to get scratchy and burn a little, like when you first start getting sick. I had also a heavyness in my chest. Those past and all in all it was ok. I am tired but fine. It took about 6 hours to do. They say the next one will be an hour shorter...woo hoo
anaplastic large cell lymphoma
My 3 year old just had a growth removed from his skin on his stomach. We were called by our doctor on Tuesday. She told us that the lab results had come in and the growth was anaplastic large cell lymphoma ALK+. We are meeting with an oncologist today at one. He hasn't shown any side effects, but needless to say we are…
I'm a little confused about my nh lymphoma
The more I read I wonder. Can follicular Lymphoma be small b cell? I keep reading about large b cell in connection with follicular. My Onc isn't sure I have follicular, he didn't do a bone marrow biopsy, says that the chemo is the same.
After Effects From ABVD
I am 44 now & had Hodgkins when I was 25--1992. I have had thyroid & infertilty issues in the past. But this weekend I found out that I have major heart issues. I have to have my mitral valve replaced because of the damage from the chemo. And I have nonischemic cardiomyopathy....your heart "squeeze" is weakened. Has anyone…
My first chemo session
My first chemo will be thursday R only then the next day CHOP. Wish me luck!
What did you take with you to Chemo
What kept you occupied? What did you wish you had taken.
sleepless
Hi everyone: I dont know what my problems are but lately I go to bed and can not sleep. I dont know if this has something to do with this condition. But I am so tired from not sleeping. Has anyone run into this? June 2nd is my cat scan and then June 9th I see the Oncologist. Hope you all are doing well. Hilde
Hodgkins Lymphoma
Hi everyone, I'm new, but have read many discussion boards concerning Hodgkins. My husband had been diagnosed with HL in July of 2007. All indications and remarks were positive. He was between stage1-2B. Chemo treatments started in Dec. of 2007 ABVD, after 8 sessions, there was still activity. The oncologist then sent all…
Hodgkin's at 20
Hi everyone. I'm new to this site. I was diagnosed with Hodgkin's at age 20 in 1989. 6 weeks mantle radiation/spleenectomy 6 months chemotherapy Breast cancer (DCIS) in 2005 (exactly 15 years post radiation) Lumpectomy/targeted radiation (bizarre) Thyroid issues Infertility Menopause at 39 (can't do any HRT b/c of estrogen…
In the dark
My husband is half way through his treatments. He was diagnosed with stage 3 tonsillar lymphoma. He's been set to have 8 months worth of intense chemo, no radiation. He had a PET scan (results to come on the 19th). He refuses to tell anyone of his status, and won't let anyone go to or call his doctor. He did say if the the…
gleevec for treatment of NHL
Hello all, I was watching the Dr. Oz show on tuesday, may 11. The subject was the chemo drug "Gleevec". It was an all inspiring show. People that were on death's door, including hospice, and months to live. Dr. Oz had about 20 patients on the show, all that were hopeless. Amazing as it may seem, they all looked wonderful…
REMISSION
The word remission is beautiful! CAT and PET scans show no signs of lymphoma so only 2 rounds of ICE chemo are needed. Now that I am done with ICE (which was well tolerated for me), I went to my transplant facility yesterday meeting with my specialist. Bone marrow biopsy, bloodwork, chest xray, urinalaysis, and an ekg were…
Watchful Waiting Treatment for NHL
I was diagnosed Sept. '09 with Stage IV Follicular B cell NHL. 8 months later, due to no visible symptoms, we're following Watchful Waiting treatment. Went to Moffitt Cancer Center in Tampa for a second diagnosis and they agreed with my local Oncologist. I'm very happy with not having Chemo yet, but has anyone else done…
has anyone who was cured of HL gone on to get bone cancer in later years due to treatments of the HL
t THE TITLE SAYS IT ALL! Just wondering if anyone had this?? I had HL 19 yrs ago and had chemo and mantle rads and raed online that im now at an increased risk of developing bone cancer (amongst others) due to the chemo and rads i recieved to cure the HL. iT REALLY WORRIES ME AS I GET ALOT OF JOINT PAIN AS IT IS. Bur the…
N-102 Protein
Wanting to know if anyone is familiar with N-102 Protein to fight cancer.
Gastric NHL B & T Cell Bulky Treatment Side-Effects: Short-Term Memory Loss
I had 6-Velcade & 8-Rituxan which did not work in 2004 & then had 23-days of radiation at UCLA in 10-04. That made remission which is continuing. I did have nasty swollen veins, with tattoo like long lasting vein reactions to the Velcade (Bortezomib) when they did 30-second push. After two doses I requested a 3-minute…
Hodgkin's Lymphoma and SCT Survivor Low Platelets
I'm a Hodgkin's Lymphoma survivor and have been in remission for about 5 years. I recently noticed a few bruises on both arms and one of my legs. I have been feeling fatigue and worn down, so I went to urgent care this weekend. They told me my platelets were 25,000. Back in September, they were 96,000. I've been reading…

Lymphoma (Hodgkin and Non-Hodgkin)

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