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Leukemia
Archives for December 2017
Discussion List
B Cell Prolymphocytic Leukemia Treatment, Future Plan, Life Expectancy
My father, Age 63, was diagnosed with "B Cell Prolymphocytic Leukemia" in April 2017 and his treatment started in August 2017, after 3 months of wait and watch. He has so far received 5 cycles of Rituximab + Bendamustine and is planned to receive 1 more cycle of the same. Before starting treatment his spleen size had…
Flt3 mutation
my wife has aml, which is obviously one of the worst of cancers (If not the worst). She is even more impacted by this terrible, terrible illness by a flt3 mutation. She is being treated at the karmanos center in Detroit and has undergone both induction chemo and a stem cell transplant. Neither worked. The stem cell lasted…
Cancer Cluster Information
Hi, My daughter, who is now 18, was diagnosed with ALL when she was 2 years and 9 months old. She survived. My son, who is now 16, was diagnosed also with ALL on Noveber 7th of this year. I understand that part of this is genetics, however in talking to one of his oncologists I understand that the chances of anyone…
Extreme extreme severe burning tongue after aml salvage chemo
My wife has undergone induction chemo and a stem cell transplant. The stem cell transplant failed a couple of weeks ago and she received seven days of salvage chemo. Unfortunately, she now suffers from a burning tongue that is so extremely severe that she cannot eat. Has anyone heard of this? The doctors seem to think it…
APL leukemia bone marrow transplant
Anyone going through APL leukemia have to get a bone marrow transplan? If so any info you can provide it would be much appreciated.
Looking for ALL survivors who had 2nd transplant
Hello, I decided to finally reach out for some support from other survivors. It’s been hard to find other ALL survivors, but I hope to hear something. I got ALL in July 2012, age 57. Thought I had fibromyalgia, but not so. After a stem cell transplant from related donor in Jan.2013, the ALL returned in July 2017. So, after…
New diagnosed CLL waiting for staging 48 year old female
I am a young one I am told ... to get this so that really freaks me out ... my WBC has been high for a year and my atypical lymphocytes 27% .. went to hemotology oncologist and he is sure i have CLL lower stages.. and slow growing i pray. he took 10 vials of blood from me to determine i dont have any aggressive subsets...…
Medical Cannabis
I have Myelo Fibrosis (stage4) . I have been on Cannabis RSO (rick simpson oil) since april of this year. In Jan. I started medication (kakafi) 30mg twice a day to shrink my spleen . I have had 3 transfusions , last one was 5 mos ago. In Sept. my hgb leveled off at 8.2 , in oct my hmb rose to 8.6 in Nov it rose to 9.2 . My…