Leukemia
Discussion List
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B Cell Prolymphocytic Leukemia Treatment, Future Plan, Life Expectancy
My father, Age 63, was diagnosed with "B Cell Prolymphocytic Leukemia" in April 2017 and his treatment started in August 2017, after 3 months of wait and watch. He has so far received 5 cycles of Rituximab + Bendamustine and is planned to receive 1 more cycle of the same. Before starting treatment his spleen size had…
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Flt3 mutation
my wife has aml, which is obviously one of the worst of cancers (If not the worst). She is even more impacted by this terrible, terrible illness by a flt3 mutation. She is being treated at the karmanos center in Detroit and has undergone both induction chemo and a stem cell transplant. Neither worked. The stem cell lasted…
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Cancer Cluster Information
Hi, My daughter, who is now 18, was diagnosed with ALL when she was 2 years and 9 months old. She survived. My son, who is now 16, was diagnosed also with ALL on Noveber 7th of this year. I understand that part of this is genetics, however in talking to one of his oncologists I understand that the chances of anyone…
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Extreme extreme severe burning tongue after aml salvage chemo
My wife has undergone induction chemo and a stem cell transplant. The stem cell transplant failed a couple of weeks ago and she received seven days of salvage chemo. Unfortunately, she now suffers from a burning tongue that is so extremely severe that she cannot eat. Has anyone heard of this? The doctors seem to think it…
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APL leukemia bone marrow transplant
Anyone going through APL leukemia have to get a bone marrow transplan? If so any info you can provide it would be much appreciated.
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Looking for ALL survivors who had 2nd transplant
Hello, I decided to finally reach out for some support from other survivors. It’s been hard to find other ALL survivors, but I hope to hear something. I got ALL in July 2012, age 57. Thought I had fibromyalgia, but not so. After a stem cell transplant from related donor in Jan.2013, the ALL returned in July 2017. So, after…
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New diagnosed CLL waiting for staging 48 year old female
I am a young one I am told ... to get this so that really freaks me out ... my WBC has been high for a year and my atypical lymphocytes 27% .. went to hemotology oncologist and he is sure i have CLL lower stages.. and slow growing i pray. he took 10 vials of blood from me to determine i dont have any aggressive subsets...…
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Medical Cannabis
I have Myelo Fibrosis (stage4) . I have been on Cannabis RSO (rick simpson oil) since april of this year. In Jan. I started medication (kakafi) 30mg twice a day to shrink my spleen . I have had 3 transfusions , last one was 5 mos ago. In Sept. my hgb leveled off at 8.2 , in oct my hmb rose to 8.6 in Nov it rose to 9.2 . My…