Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Archives for September 2023

Any new treatments available for Kidney Cancer?
Has anyone hear of any promising new treatments or research studies for Kidney Cancer?
Kidney Lesion
So I'm not actually diagnosed with kidney cancer. I'm 21, fixing to be 22 in October and a little over a month ago I was diagnosed with papillary carcinoma of the thyroid. Done the ultrasounds and fna's. All that fun stuff. About three days after my first biopsy I had my first ER visit for ear pain/pressure that was…
How to overcome fear of losing your spouse?
Hi, kidney cancer family. My wife's story is a unique one. She found out about her kidney cancer in May of this year and by July she had a full nephrectomy of her right kidney. After analyzing the stage 3 tumor, the surgeon said there is no evidence of spread and that they were able to completely remove the cancer. He…
Just Checking In
Hi everyone! I had my Nephrectomy Aug 2021....stage1 grade 1. I'm 2 years out and still NED. Seems surreal sometimes, like it happened to someone else. It's weird. I can remember two years ago and thinking that I would never feel the way I do now about it, I was sure that I would never feel better about it. I do though, so…
Potential Prognosis?
I have a family member who has stage 4 Grade 3 renal cell carcinoma that has spread to her lungs and brain. She had a nephrectomy of her right kidney to get rid of all of the cancer on her kidney. She is going to undergo Gamma Knife radiation and 2 infusions of immunotherapy. When I look online it shows that the prognosis…
My 7th year scan - NED
Hi all, hope everyone is doing well! Have check the group for a little while. I would like to share my NED result after my 7th-year scan (Ultrasound+Chest X-Ray). Somehow, my scanxiety is much lower this time and I found that CT causes a lot more anxiety to me. I still haven't talked to my urologist, but I've read the…
Fatigue and fear of eating after open radical neph and ileus
Hello everyone, I'm 38, german, had erythema nodosum on and off for the last 25 years or so, had a particulary hefty bout starting late December 2022, left me bedbound for over six months, PCP checked my blood, creatinine was 1,2, referred me to a nephrologist. She found a mass in my abdomen, X-ray, MRI and CT confirmed an…
My scans are next month
I have my scans next month
16 months after partial nephrectomy for stage1 PRCC Grade 4
Hello everyone. I hope everyone is doing well. I haven’t been on here since I had my partial nephrectomy April of 2022. I felt like a new person after surgery in regards to my energy level. I felt like I walked out of a fog a few weeks after surgery . I wanted to get as far away as I could emotionally from being told I had…
kidney cancer
I am so scared. There is a cyst on my kidney. Have had an mri and ct...They are suggesvine of renal cell..I do not have a support system or anyone to talk to. My husband passed in 2011..Dont know what next step is they will take...
NED!!
Partial nephrectomy in January 2020 and most recent scans August 31 2023 again show no evidence of recurring disease. Now I can relax for 11 months😁 (also 6 years undetectable PSA for prostate cancer)

Kidney Cancer

Discussion List